changes
well the farm hame is not handicap assessible - old ranch style long narrow hallway - you know the type... it is a very nice home i put a lot of money into trying to get it more assessible .. to a piont it worked and as the PT called it minimally assessible.. well minimal at dans age does not cut it-- at 53 i want him to no be limited by structure... so with the help of my SIL i have managed to purchase a condo -- one level about as assessible as possible... this of course is causing a big change in our world and dan is not likeing it.. i have tried to make this place have availability for him cement slab patio, nope - still wont go outside... no one wants to come out here cause the sadness in our world is just so profound..and the good memories of my family growing up are being replaced with bad ones ---- here is where dan had the stroke, here is where mom and i used to sit outside and enjoy the view( mom passed shortly after dans stroke in part due to his stroke) long story..... oh over here dan had a seizure, and there and over there to and over here he fell and bruised up his entire body,----- i guess i am running from memories looking to create some new ones.. looking to perhaps see if my husband can shed some sadness and maybe do a little bit more.... but he is fighting this move-- on one level he knows it has to be.. on the other he is scared of the new, on another scared of money issues,and he will miss our little piece of life we created here.. this stroke happed at such a young age the man never got to enjoy anything-- not one aspect of positive towards aging... just the negative--- chronic pain all the tiem hurts to eat hurts not to eat------same with drinking... makes choices and forgets he made them.....loves me and hates me... can not enjoy his grandkids cause they are to loud and boisterous ( the exact type of kids he loved ) his quality of life is nill and now i am changing the quality fo him.... i hope for the better..... but if i am going to care for him i need a little more ease other than being squatted in a bathroom door trying to take his shoes socks off/on underwear ( briefs) and pants... the shirt i can stand but the the bathroom is so awkward he cant assist as much as he would like without hitting his arm.... oh i will still need to be with him pretty much every minute-------- just today and this is a normal day he stumbled 5 times while walking -- if i am not one on one with him he will fall--- it has happened ..and while i took a shower today he reached over to open the window causing himself to slide off the toilet seat he was sitting on ( he waits while i shower) he showers first then gets all dressed then its my turn.. if i was jot there he was unable to unwedge himself----- this is the 3 rd time this has happened...the balance is so poor once he looses it -its gone.. and then he panics.. and gets mad... and later sad..... he tries to do all those little things like wash up the bathroom counter -- but he forgets to wash his own hands sometimes - because is so set on cleaning the counter... and he knocks alll the stuff off the counter while trying to clean...... i have to take babywipes every whwere i go he wants to clean everything the resturant table -- not all bad... the resturant bathroom sink -- gross but the worst is i have to clean a toilet in a public mens bathroom before he will use it oh he would try to clean it -- but he likes to pick at things ( that are best left alone) so i clean it pretty much puking the whole time--------- we AVOID these places and try to paln ahead but --- life...its is always difficult trying to stay one step ahead of him... and consequential learning will not help--- you need a memory to have that work........every now and them some fool makes the comment oh i wish i had your life---- really !!! really!! my old co worker said that recently about the condo --- ohh wish i had a sil who could help me -- i 'm so jealous -- ARE YOU KIDDING ME?? cause boy this is not what I/ WE would have ever chosen... just a little rambeling about this wonderfull life i have going on... and now dan has developed panic attacks when i leave him to long at our daughters--- he is with family but worries about me non stop --- has even cried he has gotten so upset ( i was gettting my hair done) now he comes with me when i get my hair done...but this move is gonna be interesting if i can get some muscle to coordinate to help me........ funny cause dan used to be the first one to help others -- one person he moved twice... not so much as a peep from them when facebooked a request for help....
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