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everyday different


nancyl

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Dan for the most part has been doing pretty well with the move and all -- pretty ok mood and we sorta have settled into some sort of routine... so the ugly depression and mood swings have been at bay.. but yesterday - he was crabby and i should have just left him in bed... he was just a thundercloud sitting and waiting for something/one to make him mad... we were walking out to go to therapy and his leg sorta weakend ( does this on occassion) but he blew up - of course it was my fault his leg got weak... and i didnt take it like i normally do-- i let him know that it isent my fault or hi fault it just- IS-.. than he refused therapy.. i told him we dont go to therapy for ME we go for him.. didnt matter he just was cranky all day.. he did come out of that mood at about 8 pm or so he decided to eat a little something and drink some as well... today nothing is scheduled and i am not evn gonna wake him till he asks to get up.. also he is "due" for a seizure if the every two month theory of mine holds out... but since he had the seizure after the surgery it might not happen?? i still think it will. cause the every two month seizures are something else.. i have written about my belief of his cognition improving after seizurs if that is true - he will still be on the timeline to have one... so we are making slow but sure improvemnts but that depression and rage in dan still lurks... but i guess if the table was turned on me i doubt i would be any different.. nancyl

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Nancy, maybe yesterday was his day to complain about something so his weak leg was a good start and he probably didn't want to take therapy anyway! That does get old just thinking about getting up to go there!

 

I suppose he has just a good of chance not to have another seizure soon as to have one close to that time!

 

I wish sometimes I could stay in bed but for me that's real hard to do I have to be up and see what's going on in the neighborhood once my wife is up and getting dressed for work at 630am!

 

If I do just lay there the little puppy lays on the floor beside the bed for awhile then she will wake me up I think to see if I'm still alive and give her a treat!!

Your dogs still running in the mornings?

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Nancy: there is nothing like the horror of waiting for something to happen, when you are probably sure that it will. I posted several weeks back that I was so tired, exhausted really, of living in fear and this was in reference to leaving Bruce alone. Yes a fall of any type is serious, but in no way compares to seizure.

 

Nancy, if he has nothing on his agenda and you do not need him up and about, maybe that truly is the way to go. Let him get up when he is ready. I don't know your daily routine and yes, there are days he absolutely must be on deck - therapy, appointments, visitors, chores. But I think you might be onto something in regards to both the mood swings and the seizures.

 

I know he is frustrated and angry. I am also so sorry he takes it out on you. But we learned this as Moms early on. They do it because they know, absolutely, that we are safe and always there. In an adult male, this is hard to justify, but really the same thing. As angry, tired, frustrated I get, Bruce knows, absolutely in his heart, I will always be there for him. Like Julie and Ruth, appreciation for all we do is slow in coming, but they do get there. A gentle pat, a smile, a laugh out loud (always my favorite) - it does come.

 

Bruce seems to be taking longer, more restful naps lately. Really sleeping, not just lying in bed, channel surfing. Part may be the season change, part the change in our routine; but I do know he must need it or he would channel surf for a half hour or so and then be up.

 

Please do let us know how things are going. Interesting take. Debbie

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Nancy , I an still quite paralyzed on my left side in order to walk & do our stairs I have to give it 100% concerntration - litterally telling mybad leg what do do -- I can't talk to hubby during those times or I will screw up -ig we kind of stumble or wobble - it scares us & the muscles tighten worse making ithardto to get back in sink-- Maybe he was too busy focusing on being a grouch

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and Nancy I am very dependent on a schedule or routine . if I miss a nap or two or get too tired after being too active & busy with people - it takes me a week to get back to my comfort level. just thoughts from my point of view

 

Susan from Alberta Canada

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