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New Experiences


nancyl

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a well - new experiences... travelled all the way to NY and spent time with Sting ( Ray and Colleen) we did lots!! mostly toured the area getting a taste of the different "culture" we have way more in common than not.. and we all treated ourselves to a cruise..and with the hurricane we drove straight through we had an experience..and we went to the Bahamas - Dan and I did get off the ship but stayed in our comfort zone.. of course the actual beach was out due to wheelchair and mobility issues but we walked the streets and treated ourselves to Mc Donalds ( haha) and that Mc Donalds was so accomadating I am still in shock.. security opened doors for us, a gal came around the busy counter and escourted us to a table and took our order at the table and brought us our food..and she turned down my tip so it was not a tip motivated thing..we really only spent a couple hours on shore because of mobility issues and dan and i were doing this solo ( as was Ray and Colleen) we were together but seperate on the cruise.. moral support mostly- just knowing about each other on the ship was enough..I wont say the cruise was the time of our lives - I am way to grounded for that. but it was a experience and i wouldnt change any of it.. i know with a lot of effort we can travel..I know dan didnt melt... i know with a LOT of planning we can still do things.. I know that the single best part of the trip was dan and ray meeting-- seeing another person with very similar deficits and personalities..and they did get along ( which given our guys personalities could have gone either way)..In fact they seemed to understand each other on a whole different level, and spoke their own language..believe me- ray knew what click, click and all around the world meant to dan ( along with dans hand gestures) ..they communicated so well. and now they both know they are not alone!! although dan might forget who specifically ray is, we have pictures, and i believe he will retain..and sting and I have plans for more escapades as money will allow (LOL)- huh people?? The trip home was intresting Dan was in a bad mood - anytime he has to be up early is almost a guarantee of a bad mood...we get to the airport early..and low and behold delays and flight cancellations.. so we sit for 4 hours at a packed airport.. finally fly out to MNPLS .. and miss our connection literally by a minute!!! OK dan is crabby - i have ran a half a mile pushing a wheelchair..boy did that guy get it-- and thick... so we got reassigned to another later flight.. dan still a crab, has refused to eat or drink all day-- but he does recognise the word FARGO and points to the screen.. after that he is animated and happy..despite all i had been telling him all day - we are going home-- he had locked in on being a crab ( survival mode i am sure) .. so he agrees to eat and drink and the flight home was fun.. of course it is like a half hour flight from MNPLS to Fargo .. but I had to go to the BR and while i was gone ( like 1 min) he had pressed the flight attendant button a few times ( i had warned her though) ripped the do not smoke sticker off and wass trying to stuff it down the shutter of the plane window.. i get back have him put the sticker back, of which Mr OCD man had to reposition a dozen times.. but it kept him busy then on to turning the lights on and off above our head.. all this time trying to treat him as an adult and my husband, but also correcting a two year olds antics.. but i prefer that to the locked in crab anyday!!! we get home and dan is sooo happy.. but of course there is a stomach bug in the house we are trying to lay low and avoid-- wash , wash wash your hands.. luckily as colleen and ray learned dan has no problem with.. dan is obssesivley clean and either him or I have to clean the bathrooms of everywhere.. yes even a NY public bathroom ( thanks to wet wipes i can usually accomplish this)....so my trip may sound " care free and fun" and it was - but - it was a LOT of work.. and a test for myself and Dan-- what are our limits?? many can be overcome, some will not... I do have a few travel tips --- and my carefully selected wheelchair is a true gem----- Ultra-lite by drive-- folds like a stroller weighs 15 lbs and one handed pushing and turns on a dime.. believe me if you try to travel this will make your world more do-able !! one handed folding to!! I was assured by every flight person this was the coolest thing they had ever seen..... LOL the things that thrill me now... Life is still here no doubt but sure is a lot of work !!!

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WOW, Nancy that was so great you all got together and traveled all over on top of that!!! Who says it can't be done?? I look at myself I don't see handicap, I see a man that can do so much myself and what I can't or don't do I really do not miss that part of life!!!

No matter what survivors have our day/night or moments that just don't agree with how we think at that moment but like Dan did, it passes after a little time!!

 

It's so good to hear all went well over the miles you traveled for this member meeting member outing along with the cruise!! I often wish all of us could plan a meeting to see and observe how each survivor is taking life and what matters the most which is our care givers, family and friends!!!

 

Well Nancy, hopefully next summer you and Dan can park the motor home at my house, stay awhile, and we can go catch some fish on the pier at the military base!!!

 

I visited Ruth and William in Houston last year and that was a great trip too and I'm looking forward to them coming to Fort Hood and see the military post, the Troops and how they live when not at war!!! Lot's of stuff and things to see and do for everybody!!

 

You'll see many of the wounded Warriors living their lives with their families but with missing limbs and using scooters and power chairs to get around any where they wish to go!!!

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Nancy, when Ray had his bad strokes in 1999 I thought life was over but in the good years 2001-2006 Ray and I did two coach trips a year 8-10 days seeing parts of eastern Australia we had been planning to see as part of our retirement . Our friends used to ask if I had had a good time and I always said yes but like you I was paddling as hard as I could to keep upright! Was it worth it? Yes it was, it helped to "normailise" our situation and I did have someone else cook the meals and drive the coach, so I did have time to sit back and relax while we were sight-seeing.

 

Do what you can to fill in those gaps in your life whether it is travelling or dancing or whatever it is you're missing out on. There is freedom within the limits and we all need that.

 

Sue.

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Nancy, thanks for sharing your trip adventures. I don't know if I could handle everything as well as you, but I note you are younger and must have a lot of energy. The one thing I feared about traveling are those dreaded airline delays. I would be sooo stressed out. I'm surprised the airline did not give you the required time to make your connection. I don't blame Dan as I would be crabby too.

 

As you mentioned, the best part was gettting together and having your spouses meet and bond with each other. It is so neat that you and Colleen made the connection with each other.

 

Larry and I loved traveling and I intend to get back to it one way or the other.

 

Julie

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Nancy,

Thank you for sharing your trip experience.

I can only imagine some of the hardships. But, all in all it was doable and very worthwhile to learn that you could do it.

 

I am still afraid to do a trip like that. Bathroom issues. I could not stand the delays in an airport. Wm is so unreasonable about waits..

 

Good for you. I am so proud of you and Dan.

Ruth

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Dan is also unreasonable about waits--- but cognitivley he cant really tell if he has been somewhere a hour or four... i know as i type this how sad that is but unfortunatley true.. soo although he gets upset he has learned to let it go-- but persephony ( locked in on emotion) is reality for us..the speach therapist described the condition so well to me that no i can identify when it is happening and capatilize on the "mood breaker" like when he seen FARGO on the screen.. and fred how far are you from MESA -- AZ ???? Ruth I am so sure you could make it happen - and i know you will when the time is right.no doubt.......Julie it can be done -- lots of senerios played out some did not ( i am thank full for the good and the bad, as i need both to learn and plan for) cause i and dan will live ,darn it... energy-- i dont have enough sure wish i had more but--- it will be interesting to get my blood work done and see how my anemia is-- i slip so slow i dont know it is happening--- and since my back is hurting ( a sign of it) i might be dwindeling... oh well only choice is forward cause aint hardly anything behind me... LOL nancyl

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I had it a lot easier than Dan and Nancy, since we got to visit with them while being home for the week before and after the cruise. No airplanes to add to the drama. To top it off, we escaped the hurricane by a day (barely, the ship did drive through it full steam ahead going south) that was a blessing, despite some seasickness by half of our group. By the time we got back from the cruise, everything in my neighborhood was cleaned up, except for MY lawn of course! We had lost power for three days while gone, much better than the rest of Long Island....Dan and Nancy got to see the gas shortage lines and the mess in other neighborhoods, and our local river at lowest tide ever. There was never a dull moment, we barely stopped to rest. Ray and I got off the ship at Cocoa Beach FL and in the Bahamas, and just wandered til we found local places to hang out, it's really the same the world over. Now that we have passports, I'm seriously thinking of getting back to Europe someday although on a handicapped tour. It might tire Ray out a bit, but that's a small price to pay.

 

Nancy somehow knew Dan and Ray would hit it off, I was just along for the ride. I'm not one to doubt, but the way they bonded instantly just blew my mind. Ray was always watching out that Dan had what he needed, and instructing us on how to fix it, and their extended conversations were a riot! The three weeks just flew by, every day a new miracle with those two. Ray was so inspired by Dan's walking and talking, and Nancy spent plenty of time giving Ray the pep talks he so desperately needs. He made some major advances overall.

 

Locally, we did several day long trips and the guys were great. Our last day, we took a high speed ferry over to Connecticut (so disappointed that Debbie had car issues) and spent the day at one of the casinos, just being normal. The feeling of going somewhere with my husband, not an "invalid" despite the wheelchair, was something that has jump started me, and made me stop feeling so sorry for myself. Yes it was some stress and a lot of work, but there were so many new facets of Ray I never glimpsed before that I have more hope than ever that we will get by. This was the best therapy ever! Oh and the ultralite wheelchair.... I now have one too, thanks to Nancy, it is the best!!

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Ha! I was the one sitting home, angsting about the four of you cruising through a hurricane and knowing that Long Island was hit so hard and you all had little info about what you were cruising home to. I had visions of the four of you stuck in some high school gym! Fortunately Colleen had great contact with people at home.

 

You all had a wonderful time and yes, the cruise was a major event, post stroke. And I certainly hope someone had an umbrella drink for me.

 

What I love the most is the bonding, connecting. Dan and Ray becoming so comfortable with each other, so quickly. You just never know. You make the leap and just hope the landing is soft - LOL. Good for you all and I know there are some ideas for future

 

Any outing, post stroke, is an undertaking. It is funny, because Mary Beth said that just last week when I was mentioning the prep and organization. She said "Yes, but you are used to it now." Yes, there are days I just don't want to deal with the hooplah! But at the end of the day, I am always glad I took the extra steps. I am so glad you both confirmed that on such a larger scale. Debbie

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