Up and Down (as usual)
Entry posted by Jhari
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Yep, the normal week,up and down and up again. Sunday night when I got to the home, mom was coming from the dining room in her W/C. When we got to her room, she said she had to go to the bathroom, so I put her on the toilet, only to find her pull-up was full of bm. So I changed her completely. She seemed surprised that she had gone, so I don't know what that's about. An hour later she had to go again and had another bm. I reported this to the nurse. Weekends are hard because there is not as much staff and hardly any activities. Plus usually on the weekends I only go for an hour or an hour and a half at night, instead of the 3+ hours I am there during the week. Monday was a hard day. My 2 grand-daughters went with me. Mom is always glad to see them, but when I saw the therapist, she said mom did not want to walk that morning and told her to get out. Told her she hated her. So while we were there, she walked a little bit, but only 1/3 as far as normal. I think she really did not feel well that day.
Tuesday was good, except when I got there her pull-up was saturated, plus her jeans were wet, so a total change. Oh, and I forgot to add on Monday it was the same thing when I got there. The therapist told me she had found mom on the toilet that morning and had put herself on. She had also gotten out of bed by herself. She had gotten 2 cards in the mail, one from her sister. I opened it for her, and she was saying something when she looked at the inside. When I looked she was reading it , saying each word perfectly. I opened the next card an d she did the same with that one. I said "Mom, you can read!" "I asked, "Do you know who this if from?" She said, "Jesus." Her sister's name is Joyce and there was a picture of Jesus on the front. I was telling her that my cousin's son and his wife were going to have a baby, and she said, perfectly, "It's funny Joyce never said a thing about that". When she does things like that, I am so happy I just want to cry.
So Tuesday was good, she walked to the dining room and also was on the stationary bike for 15 minutes.
Today was a pretty good day, too. When I got there, though, she was on the toilet and had transferred herself. She had the fall alarm clipped to her shirt, it hadn't activated. There was pee on the floor, the brakes weren't on and her pull-ups were saturated, her jeans were wet as were on of her socks and shoes. Again, a complete change. This time I talked with the DON. They need to put her on a schedule, especially before and after meals. She will not ask for help, this was the way it was even before the stroke. If she knows I'm coming, she'll wait for me to get there. So hopefully this will be resolved. I took her out for the morning activity. They were using tamborines and moraccas. Mom had 2 moraccas, shaking them and laughing right out loud or lol. We walked with her to the dining room before lunch and after lunch 15 minutes on the bike and 15 of the heat lamp on her neck and shoulder. So I was pleased with the way things went today.
You would think I would be used to the ups and downs by now, and every time there's a good day, I try to remind myself that the next might not be so good. But then when the bad day comes, it still makes me feel so sad and depleted. I guess I just need to remind myself more on the bad days, that a good one is just around the corner.
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