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excuse me while i vent


CagedBird

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I go see my therapist again today so it helps to blog to get my thoughts together before I go see her. I have a friend (actually my ex-boyfriend) who graduated college, worked for years, and drove a van modified just for him because he has muscular dystrophy. Well it is a disability that gets worse over time so eventually he got too weak to work, had to turn in his license, sell his van, and live at home with his parents. This is how I feel.

 

I tried so hard to do everything I could to make sure I could have a successful life. I worked hard, studied hard, drove cautiously. But what was the point? I finally had my first full time job with benefits and had to quit because of the stroke. I was the valedictorian, did every extra curricular, community service every semester then worked every summer break for the federal government so why am I begging for a job? It just feels like every time I do my part to make progress, the stroke knocks me back down. I am going to Vocational Rehab on Monday for a job placement workshop and to get a counselor but I don't know if I even feel like working anymore.

 

I have had an attack everyday since I last seen my therapist on Saturday. Sometimes I try to keep doing what Im doing until the feeling goes away, sometimes I have to stop and just stare until I feel back to normal, and sometimes I call for help because I just know Im about to have a seizure. How can I be productive at a job with this crap?

 

Oh and the DMV medical review board finally sent my papers. I have to see my neurologist next Wednesday so I just don't even care anymore. Im sure once I tell him about the auras, dizziness, etc on top of the fact I haven't had a review since 2012 and have had numerous seizures and been in 2 accidents cause of my vision loss since then, there goes my license.

 

I just wish I could live a normal life. Start a business without worrying about it failing because of my health, work without anxiety, drive without worrying about an accident. Date without having to explain my medical history. THINK, LIVE without wondering what's going to happen next every minute of the day. I cant even sit quietly anymore without freaking out. It's like I always have to have something to distract me so I wont think Im going to have an attack. I've always had the motivation not to let anything stop me from being successful but now I feel like every time I go one step forward, the stroke is there to bring me 2 steps back. So why even try

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Katrina :

I know you are just writing your thoughts about woe is me to take it to your therapist, it will be interesting to see what her response will be to your woe is me thoughts please do share with us her response. have you read everybody got something book by robin roberts. I feel as a human being none of us are exempt from pain & loss in our life, to make it suffering is our choice. our thoughts have amazing power to either lift us up or drag us down choice is all ours is what I believe in.

 

Asha

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Katrina: stroke for all of us is always one step forward, two steps back. You know that honey and you have dealt with it since day one post stroke. Just way too much too fast. I know that. Do let us know how the appointments work out and your Vocab appointment. You know you are always in my prayers. Debbie

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you articulate so well Katrina what its like from the inside out to be confronted with terrible situations. I have never had anything even closely resembling what you face in your day to day existence.  your continued trying Katrina gives strength to me and likely others whose difficulties are only slight shadow of yours. and so to you I can only say thank you.

 

david

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Some times I find it just helps to get it all written down.  Then you can see where you can change things.  I know that feeling of despair, every time I planned something for myself during Ray's last few years of living here something went wrong, but I think I gained from that the experience of solving problems on the run.

 

Will any employer from the course be told you have those health problems? If so it will be out in the open and you will be able to say: "this is how it is"  feeling no embarrassment or as if you have let the team down.  Keep on looking forward to good things in your future.

 

(((hugs))) from Sue.

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