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dont know how to feel about today..or anything


CagedBird

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My stroke was 13 years ago from today. This was the weekend I was in ICU while the surgeons tried to fix their mistake. I did not know how to feel about today or what to do. Everything seems so confusing now because I have too much time to think. Ever since I moved to my apartment 6 months ago I have done something every single Saturday. I always looked forward to the weekends because that was when I could take a break from sitting on my couch watching movies from sunrise to sunset and actually hang out and talk to my family and friends. Even on the Saturdays that I didn't plan anything I still ended up doing something or getting in my car and going somewhere even if just back to my dad's house to get away.

 

So even though I hung out with girlfriends from church lastnight for Bible study at the coffee shop, I stayed the night at my dad's house this week just to get away, and my boyfriend came over one day, I just don't know what to do today because Im so used to being around other people on Saturday.

 

I don't know how to feel about my stroke anniversary. I am thankful that I still have my license for now, I have my own place again, and I don't have epileptic seizures anymore. I still want to work, to keep my license, and to not have attacks at all though.

 

On Thursday I started taking my medicine at 10 instead of 9 so I can go to bed later and hopefully wake up later. I seen my doctor this week. He's giving me referrals to another psychiatrist and neurologist for a 2nd opinion. He also mentioned valium might be better than clonazepam. He also told me not to be afraid to use my left side. Just because it trembles does not mean I am going to have a seizure so I shouldn't be afraid to exercise it.

 

Everything seems more confusing with a psychological disorder. When I just wanted to use my left hand, I just went to therapy and exercised. But with this anxiety/panic/psychogenic stuff I don't know what to do. My therapist gave me a list of coping techniques but its hard because I feel like if Im afraid to do them or I do them wrong, then they're not going to work or make things worse. She tells me Im suppressing my emotions and just need to let them out. I shouldnt suppress the panic attack. Just let it happen. But if that's the case then why do Christians preach about turning your problems over to God and not worrying about them? Do I need to breathe deeply and stay calm all the time so I wont have an attack? Or do I need to start doing fun active things to get my heart rate up and take my mind off anxiety. I've never been wild and outgoing and I mean lets face it I had a stroke at 12 and been on seizure meds ever since so my teenage and young adult years were limited as to what exciting wild and crazy things I could do. I just want things to get better and not worse and part of me wants to do whatever I can to make things better but part of me just wants to go back to my regular life and pretend this condition doesn't exist until it goes away.

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I don't know if this will work for you but I plan my Saturdays.  I have a Saturday meeting once a month and stay on to lunch, I also have friends who meet one Saturday a month.  The others I go to our local shops which is in a mall and have a coffee, alone or with any acquaintance I see.  I find that if Saturday is taken care of the week seems to go better.  As a widow I can find the weekend very lonely as other people are caught up with family matters.

 

I would just fill the days by whatever means are at your disposal, reading, craft, games on the computer if you play them, phone calls to friends, outings if anyone offers.  I think if you can keep busy the days just fly by.  Of course I am not stroke affected but do realise that you have limitations because of that.  How abut hanging in one of the local libraries or a bookstore and seeing if you meet any interesting people there? A lot of interesting people love to read.And if you are interested in others friendships are a possibility.

 

Wish I could help in some way, but all I can do is say :"I'm here."

 

Sue.

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 Sue ideas are spot on, going to the library or a bookstore, even going to a park, all thing that are free, and a way to met people.   The question about turning your problems to God. The bible tells you to laid your problems on his shoulders because his is  strong while ours is weak. Also worrying does nothing but stress us out, plus keeping things inside is not good for us, that is how our blood pressure goes up.  Trust me I know!

 

About going and doing fun things, you can without going wild and crazy.  Get out there and enjoy life is short, and I have make a pack to myself that I am going to find the joy in every day, even if I have a pains.

 

You are in my prayers

 

Yvonne

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