• entries
    215
  • comments
    1,685
  • views
    42,661

a little bit better...i think..


nancyl

741 views

so I was manic- possible for the last 4 years when dan stroked and mom died and so began the worst year EVER --2011, In investigating - how long was i "out" i get different answers from different people. but a few people swear that i "flipped" 4 years ago. Not obviously- but, bit by bit and day by day.

It is odd to think of all i have accomplished while "out"... and i have clear remberences of what i did when i did it. And the slow shift into a manic state happened . the peak of the manic stage was of course this last winter. I remember feeling normal in early October and by end of October I was a different person with different priorities.

Then the slow tumble into a pit ( from end of November into January) .. I stayed in that pit for at least the past 7 months although I seem to have found some footholds and am getting closer to climbing out. And I may never escape the pit. But may be able to find comfortable cave inside the side of the pit , hopefully near the top ( lol)...

Some days are OK ( sorta) some days ARE NOT OK. and the meds to keep the spin out cause me to eat, eat, eat.... so I am up 20 lbs.. i look fine, but the next 20 up could be a bugger...

I am so very thankful to my stroke net friends - the phone calls from a few, the supportive feedback. all of it was so very helpful and appreciated. Now folks we gotta be on the lookout for the " newbie" who thinks they can do it all.. Ummm you can until you can't anymore... and i think my sub conscience already knew and started grieving before i knew I had to give it up - ( by that i mean dan to the nursing home) he is adjusting slowly . How odd it is to think I should have been able to do this ( take care of Dan) but I couldn't , and I usually if goal oriented "get my way" - I do the work to get my way. And this is a whopper to have failed at. And yes i know i didn't fail per say, but in my own heart I did. and so there come the guilt. Even though I KNOW i did my best, I am my own worst enemy. I was asked the other day, what do I fear the most? My answer- ME- I myself have done the worst thing i could ever do. and that is something. I have been around a lot of dangerous people in my law enforcement years. And not one of those people scare me like I scared my self... to learn what you are capable of is truly a scary thing. I know I am not a bad person, and i know all my thinking of having failed at caregiving, child rearing, grandma'ing employee - has scared me - those are all my values and I was and did ( for awhile) dispose of all those characteristics to become some other person who was off by just a few degrees. But those degrees matter, just the littlest degree can be detrimental, and make a person, be not who they are... like twins, the same but different. oh man i am rambling .. Dan is in actuality doing ok.. as good as he can. The blood infection has resolved for now. But I have a feeling ,it now lives in his body hidden ,but will rear its ugly head. We shall see.

5 Comments


Recommended Comments

Oh honey - I wish you wouldn't dwell on "fail." I don't know how one can fail at something so complex as brain injury - there is so little that is known about the brain.

 

In our own way, all of us felt we could do it all - a total change in our lives and yes, lets get over it and move on. God knows, we talked all the time. We were here on StrokeNet every day, Emailed, phone calls. But at the end of the day, all of our situations were so different. The husbands were all so differently affected, all with very different personalities. I think we, as a newbie caregiver group so many years ago, melded together very well - the one thing we always had was respect for each other. But then, look at the age difference. We were all shuffling very different lives - children, your Mom's sudden death, retirement for some of us. So we shared, tossed around ideas, suggestions. But at the end of the day, our decisions were so individual.

 

And who is to say that if you had lived here in the Northeast, as Colleen and I do or in a major Midwest Hub like Julie, services may have been much more accessible for you and Dan than on a farm in rural North Dakota.

 

Part of it too is the personalities - we are all very strong-willed women. Maybe the biggest lesson we have all learned in our recovery journey is becoming humble. Stroke is going to change everything and to finally come to that acceptance and learn to move forward was the biggest challenge.

 

Rest, pray and tomorrow we start again. Debbie

Link to comment

Wow Debbie, you said it all.  If not for you two, I'd be in a much worse place, so much support...but it does catch up with you eventually.  Not exactly defeat,  more like resignation. Can't say we didn't give it our all though  ;-)

Link to comment

Nancy we all fail in some ways, whether it is raising our voice in frustration or just failing to keep up with housework, bill paying, social engagements etc which was the hardest thing for me sometimes.  Our personalities do change, it is a response to what is going on around us.  As the voice from the other side of caregiving, for me at least, I didn't go back to being the Sue I once was but slowly a new me is emerging, older and wiser and perhaps a fraction more cynical.

 

We all get there in our own time.  Some of us rush, some of us take it slow, depends on our personality and our circumstance.And i think you did the best you could under the circumstances  I want to stress that there is no panel of four looking to give us 10 out of 10 o 3 out of ten come to that.  We all struggle to keep our values and our temper. And as for being a mother, grandmother etc just do your best, that is all you can do.

Link to comment

Nancy :

 

please tell that roommate sitting in your head to shut up. I sometime feel we are our worst critic. you have to realize you did the best you could  with information you had.  I feel as long as you gave your best, rest does not matter. 

 

Asha

Link to comment

I like your descriptions of how you see yourself getting a foothold to try to get out of the pit... or at least a comfortable cave in the pit.   It's good to see yourself scaling the wall UP.   You are doing well Nancy, and you and Dan will both see the reward from it and get 'more' from your lives because of it.   I'm glad to hear Dan is getting over the infection.   Keep going Nancy, we're pulling for you!

Link to comment
Guest
Add a comment...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.