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Kicked out of Therapy


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It's been 1 month and 4 days since my mother's CVA.

 

Today I was told that my mother's speech therapy will be "temporarily" discontinued because she's not really even vocalizing. She has severe aphasia. She doesn't speak, but can spell and communicate using a spell board. We were offered information on puchasing a laptop computer/communication device using scanning software to spell.

 

I am thankful we can afford to buy this machine ourselves instead of waiting on Medicare to approve it. I am thankful Mom has good cognitive function. I am thankful she can communicate her needs and tell us if she's being mistreated. She still laughs and acts like her old self. She spelled the words checkbook. She wanted to balance her checkbook even though she's paralyzed from head to toe and lying in a nursing home!!! Same old mom.

 

I also learned today that my mother's physical and occupational therapy may be terminated in 1.5 weeks because of lack of progress. I fault the night shift nursing staff for leaving the TV blasting, not changing her diapers and leaving her wet and/or soiled, and not turning her every 2 hours. I couldn't function without sleep, how's a stroke survivor supposed to get up and exercise???

 

If anyone can think of something I need to say to prolong therapy, I would sure appreciate it.

 

I'm putting this blog under the category of Good Day since I am alive and healthy and so are my husband and 3 beautiful children. I have so much to be thankful for, mainly the strength to persevere another day and get the necessary care needed for my mother.

 

God Bless.

 

Thanks for reading.

4 Comments


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All of us stroke survivors were helpless and at the mercy of others for a period of time. Thats when you rely on your family to be your uncompromising advocate. Demand those treating your mother to be considerate, even if you have to threaten legal action or involve the press or news media, or even the church. They should not have a moment of peace until you see them treating her with dignity and respect. Do not be ignored. God bless you.

Lighthorse

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hey devoted daughter:

 

I agree with lighthouse, family member has to be advocate of patient, when patient is not able to do it. luckily I did not have speech problem and I was just 34 so doctors and nurses were kind to me, but my hubby, sister they all took very active part in my treatment. when I was still in ICU drs were nuisances, they would come and tell me things will get better once you r in therapy but u can't go in therapy cause we have to adjust ur INR level for coumadin, once Ipush one doctor too hard in prescribing me coumadin, he bluntly told me if we don't get ur INR level theraupetic, you could bleed to death and stuff like that, and making me more depressed, finally my family blasted that dr, and told him not to visit me anymore if there is no uplifting things he can say. anyway point I m trying to make is family member has to be active in their loved one's care, I know you are very busy with your kids, then maybe get somebody else involved. I wish I was closer to help out.

 

Asha

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hey devoted daughter:

I AGREE WITH LIGHTHIUSE AS WELL OPWN THAT CAN OF WHOOP AZZ UP

AND LET IT FLY THERES NO SINCE FOR THAT KINDA CRAP

I WENT THREW SOME OF THE SAME PROBLEMS MYSELF AT THE TIME WITH MY SECOND WIFE BY MYSIDE AND BELIEVE YOU ME SHE LET IT RIP

SHE LET IT BE KNOWN

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one month is way too soon to be kicked out of speech therapy.

 

i agree with all of the previous postings. if her rehab has a patient advocate, it would be in your mom's best interests to call them. ask for a second opinion, bring in your own neurologist, threaten the rehab with an attorney are also useful tactics.

 

sandy

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