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my thoughts on how Trev's feeling


chrisratty

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I am going to try & write down some thoughts about his stroke that Trev has revealed over the past 7mths.

On the whole he has always remained fairly positive. He believes in looking forward, not backwards at what has past.

 

In the months before his stroke, he had, with his consultants reluctant agreement stop taking some of his colestral reducing drugs as he felt they were making him loose concentration, he felt "doped up" much of the time. He realised this could perhaps shorten his life, but as he said he's rather live a week feeling normal & enjoy life than live a year feeling drugged up & not able to concentrate. I had no problem with accepting this, it is his life & I want him to be happy.Obviously we can never say that it was this that caused his stroke, but he is an insulin dependant diabetic anyway, which means he is at risk regarding strokes etc.

 

I asked him a few months ago whether he regreted stopping the drugs, he said an emphatic "no". He has times of feeling frustrated, especially as he is still in a care home so cannot do as he pleases & has to obey rules etc (he HATES rules) & feels he is away from reality, can't even take the dog for even a "wheelchair walk"...things like that upset him. His worse time were before I heard I'd got this new bungalow, because our other house was unsuitable for him to be discharged into....he's told me he thought he'd never come home again. I was unable to visit him very often so he was often just sat on his own for hours at a time which must have been so frustrating for him.

 

He doesn't like the thought I have to do things like change his pads..his incontinence is almost cleared up...but he has an occasional accident...& he has been in tears over this at times. Trev's sense of humour has kept him going during these traumatic months & I admire the way he's coped with everything.

 

I love him so much.

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Chris, tell Trev "no big deal" about changing pads etc. A lot of us caregivers do it and it is just part of getting dressed after a while and much better than cleaning up after an "accident".

 

It is good that he doesn't regret the decisions he has made in the past as Ray does and I think that has thrown a shadow over his past. It is better to live life forward rather than backwards.

 

Although you will find constant care very draining, well I do anyway, after a while it will be just another phase of your long life together. We will be here for you to vent to, and share your ups and downs with.

 

Give him a hug from your buddies here when you go to see him. :friends:

 

Sue.

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Its great reading that you love him so much - You'll both make it as love is a driving force for both of you

June

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First, I admire you and how you have sacrificed for him. He going through alot, its normal for him to cry and get frustrated -

GOD BLESS AND GOOD LUCK

June :cheer:

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Thanks, I never realised how strong my love is for Trev until he had his stroke...we will get there....will write again very soon.

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