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Decisions, Decisions


arogers

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It's been a couple of days since I last blogged. I'm getting a little more comfortable with it now - journalling has always been difficult for me.

 

Friday the doctor hit me with the big one. What to do from here? Bill is still incredibly weak - not safe at home right now since I can't stay up all night and if he gets up without me the likelihood of a fall is so great. What shall we do? Two options - first she will look into whether he qualifies for the sub-acute unit. He will be discharged from the hospital and move to the sub-acute unit where he will get physical rehab to help him regain some strength for a couple of weeks. The other, of course is skilled nursing. That's more difficult since I remember the last time he was there and it was incredibly difficult.

 

I told her I don't want to make the decision. It's too hard. The guilt is horrible. I feel like such a failure, when I read of others who have been able to take care of their husband for multiple, multiple years. Every case is different, I know.

 

Friday his red blood count was back down to 8.8 - Sunday (after two transfusions) it was at 9.8, Monday at 9.6 and now 8.8 - they don't want to call in a hematologist yet. Nothing has shown in his GI track, except the H-pilori bacteria and I guess they think that may be the cause of the anemia....I'll check today.

 

Yesterday I spent in bed. I'd stopped and gotten a chicken sandwich on my way home from the hospital Friday night - woke up about 1 a.m. so sick......I was awake every hour. Then at about 6 the vomiting began. Again, every hour.....finally about noon I was able to "clear" my stomach I think....then the temp started to go up. I don't know what it was - food poisoning? a bug? I called Bill's mom and she said - "oh, that's been going around our church." No comment.......

 

I wonder what I'd do if I got sick like that with Bill here? Does my body naturally ward off illness when he's here? Is it exhaustion that sets in when I don't have to be "on call"? The same thing happened when he went into Blumenthal's in February. One day in bed, then I was ok and ready to go again. The mind and body are funny things.

 

Anyway, it's back up to the hospital today. I just called and he is sleeping. I think he is settling in because for a few days he was up all day and now he seems to be slipping back into his normal pattern at home. We shall see - this is no fun for me - I can only imagine the nightmare it is for him.

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Ann, I doubt that Bill is finding life a nightmare. He has nursing, food when he needs it and knows you are there as his support.

 

You need some time out so get whatever help you can for Bill and then take every second day off. Listen. This is so important, you CAN leave Bill to the care of others and relax yourself.

 

Yes, we all cope with illness when our suvivor is home and fall apart when we have time. I had a bad day a few weeks ago and threw myself on the bed ten minutes at a time, jumping up in between bouts of nausea to perform the usual tasks. There wasn't any other choice.

 

(((hugs))) Sue.

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I am reminded of what people have told me...the universe does not give us more than we can handle. Do what you can...take care of yourself...don't feel guilty... :hug:

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Ann,

 

If you didn't care so much, it wouldn't be so hard to make dicisions. So stop feeling guilty all the time! Guilt will eat you a live. You will end up doing what is best for BOTH of you, as a unit because that's what you are.

 

It's pretty common for a caregiver to wait until someone else is around to help with the caregiving before they give themselves permission to get sick. I've seen it so many times---the care recipent goes off to the hospital and the caregiver's system gives into to one of the various viruses around or, as you say, exhuastion finally catches up with you.

 

Bill is where he belongs at the moment, to get care and treatment you can't give him at home. As Sue says, I doubt it is a nightmare for him. So take that particular 'guilt' you're trying to accept and burying in the back yard.

 

You WILL get through this. You are a strong person. :friends:

 

Jean

 

 

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I am a survivor not a caregiver, but I do agree with all the others, and having been a caregiver in the past I do understand the anxiety level.

 

Bill is getting care, food, etc, all his needs are beieng taken care of..you visit him, so it is not as if you have abandoned him.

 

Sometimes there comes a time when you can not do it alone, or at home. Don't feel guilty if that comes to be.. You give all you can give....

 

Your love and devoition shine thru... Hang in there , take care of yourself ... with others watching over Bill take a little time for you....

Is there someone you can sit down with and talk, maybe even the hospital social workere or patient advocate, a minister, chaplain at the hospital...

 

(((((((((((((((HUGS)))))))))))))))) Bonnie

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