Caregiver "Patient"
A week ago today Bill came down with a cold. It has been a blinger. A real old-fashioned head cold. No temp, blood sugars stable - just a head full of gunk. He loves to "share" my pillow - which most of the time I find endearing. However, when the cold arrived and the germs started their march toward me during one of his "cuddling" episodes I just about lost it. I knew, however, that the dirty deed had been done just by being in the bed next to him. Of course, he was quick to remind me of the same.
Sure enough, I got through Thanksgiving AND Black Friday. Saturday I felt like a Mac truck had taken aim and hit its target - that would be me. I know pretty much immediately whether I've caught a cold or this minor inconvenience is in for the long haul. It's something about my ears. Not a real earache, but I can feel something happening there that isn't normal. Maybe it's because when I was 7 and was supposed to have my tonsils out I never had a "clear throat" long enough to have it done.
This is the first time since Bill has had his strokes that I have been this ill. I don't even realize all that I do for him - until I need to do it and I can hardly hold my head up. It really is like having a small child in an adult's body. Even though he has a desire, he just doesn't have the cognitive ability to make a pot of coffee, or even heat a pan of soup or make a sandwich.
Anyway, Monday I called the doctory. I called Bill's doctor since I THOUGHT he knew me. My doctor left the practice last spring and I've only seen his replacement once - to see about having the "bumps" removed from my scalp. Since that trip ended with a visit to a plastic surgeon, I didn't think a phone call for a Z-pack to be called in would be successful. Well, the "triage" nurse called me back. Seems I hadn't been "seen" by the doctor there. Was I Ann or Anna? Nope, sorry Dr. S........ wouldn't be able to help me. He didn't know me.
Next stop, I called Leslie - my former Dr's nurse, who now assists the new doctor. I described my symptoms - low grade feaver, gunky nose, gunky cough....typical for URI/bronchitis. Call came back - she was so sorry, but I would have to come in. My response - I spend all my time caring for my husband, I am too sick to get myself ready to come in, let alone get him ready and the doctor won't prescribe a z-pack because she needs to take my temp, tap on my face and listen to my lungs in order to announce I have an URI and bronchitic???? Leslie - who knows me and knows Bill's condition probably better than anyone there was truly mortified. She said, Ann, I'll call you back. Somehow she had convinced the doctor to call in the script. Of course, with it came the admonition that she would do it only this one time...Seems like she could look back on my history and see that I'm NOT at their doorstep every month or so requesting drugs...
I have to admit. This is the first time in ages that I have really been the guest of honor at a pity party. I do find it interesting. How quickly I became resentful of the medical community who knows me so well as the voice of my husband because I am just that. I am his caregiver. I am not a person or a patient, I am his caregiver. I will be talking with his doctor next week about this situation - along with the eob stating that his entire hospital stay last time has been denied to the tune of about $18,000 because the charting was apparently not done correctly. There comes a time in all this that reality sinks in. Maybe it's burn out. Maybe it's not feeling well. Whatever it its, I am one person who has reached the end of the invisible caregiver road.
Now - future contingency plan? I've thought about it. I got through this. I'll get through it again. Something worse? 911 for me and him. His family is great about visiting him when he's in the hospital. His mother always says "I'll do anything I CAN do" - which means she will call to see how he is because at 81 she isn't physically able to do much except offer him sweets and soda pop. His brother is a teacher with his own set of issues...and our friends all have jobs! I'm going to talk with the doctor next week and make a follow-up visit with "my" doctor to have her look at me to see that I'm ok and I'm going to lay it on the line - I need some support from the medical team I've used for over two years. Yes, I can place myself in their position - but I need some reciprocation. I don't know of any caregiver who is a hypochondriac. We don't have time to be!!! When we are sick - we are sick....and to call a doctor for ourselves means we are REALLY sick I believe. When will those telephones with the camera be widely used???
OK - so we are better, and I've ranted...now I REALLY feel good!
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