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Dealing with vascular dementia


Debbyavery0

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We are in uncharted territory dealing with daddy's diagnosis of vascular dementia. At least all of his agitation and aggressiveness are gone. His memory is much better and he has cracked a few jokes. Still no tv, and he is still running lights off. Everything I've read about vascular dementia states it coincides with Alzheimer's. I am hoping the neurologist can shed some light on how severe he is. I am also hoping the psychiatrist can give mama a definitive diagnosis. I feel better knowing what I am dealing with. It is good to have daddy back at the apartment. His sisters have finally settled down and realized sending him to Geri pshyc was our only choice. I stayed home today with a bad headache. Brittany brought he baby over and I watched her while brett took Brittany out to eat. I am about to go to bed. Mope everyone has a great night.

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Mama gave me a grocery list over the phone. Moshe already had over half the stuff I picked up. I had to pour out a full jug of milk and theire was a half jug too. She asked for apples and I had trouble fitting them in the crisper because they had so many. Ni fixed them chef salads and fresh fruit. I tried to pick up. Walmart bags were thrown in the pantry. Stuff is just everywhere. I picked up and cleaned up the kitchen. Daddy still seems to be doing good. He is sad that his cousin's husband died. He was only 4 months older than daddy. Sometimes I think it would be good for them to nab a small dog but then again I am not sure.

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Daddy got limited driving privileges back today. He can drive short distances during low traffic times. Tomorrow he mama and Robbie are going to SAMs. I am really nervous. I am glad Robbie is going because I am afraid mama will fall. I think daddy is pretty excited. In some ways I am but in some ways I am afraid he is going to get back in the condition he was in before. I will update tomorrow how the first driving session goes. Mama is continuing to struggle for words. She keeps calling Robbie Bobbie. I am trying so hard to be patient. I am so hyper and like to get things done in a hurry. I have to really work on slowing down.

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Daddy took mama and Robbie to SAMs today. Everyone seemed happy with their shopping trip. Daddy made some brown rice for the stir fry I cooked. Brett went to the farm to mow but can't find the lawnmower keys. He said daddy had them last and daddy said brett had them last. I called the place where daddy bought it and they have extra keys. Unfortunately, that is another 60 mile round trip after he already drove 90 miles to mow. He was going ahead and weed eating and getting a few more things done. Daddy is taking more responsibility for mama and helping me keep her from falling. She hasn't gone to exercise class one time this week. This is a very sad disease.

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Ugh, I have the crud. I apparently caught it from the 5 month old grandbaby. I can't breathe and I have coughed up a lung. It is so weird because now that daddy can drive, he doesn't seem to really want to. I need to do housework but I think I am just going to bed early. Mama called at 7 last night to say she overslept. I explained it was still night time. This was much better than when she calls me at 2 in the morning confused. I can't turn the phone off because they might really need me.

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Still have the crud. I haven't done a lot today. I did run over to mama and daddy's and fill up their medicine planners for the week. They were sitting in the dark with no tv on. Daddy was super quiet. Mama had been doing laundry. Daddy did ask me if I was picking them up for church tomorrow and I said yes.

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Finally went to the doctor, sinus and ear infection. Hopefully, I will mend now. I got a great steroid shot. Daddy is continuing to do well. They have their second outing planned for tomorrow. They are going to Walmart. They are so excited. I added a couple of things to their grocery list. I took them Burger King for supper tonight. They are so appreciative of every little thing I do. Mamas nose was really running. Apparently, this is one of the symptoms of Lewy body dementia. She was having a pretty good day today. We had a small disaster, hunter the male Weimaraner broke into Sadie the female Weimars cage and bred. She is getting fixed after this litter. We don't need this right now. I love having them but it is tons of work. The baby is feeling better. I am staying away from her because I don't want to expose her to more germs.

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I am finally feeling better. I never get colds and this is the third one I've had since January, go figure. Mama and daddy have been going on weekly short trips with daddy driving. Robbie always goes which makes me feel better. I thought daddy would be driving a lot once he was given the go ahead to drive again. Today they went to his sisters house to visit. They had a great time. She lives about a mile from the apartment. Daddy seems much happier since he can drive again. They are feeling more independent since they are buying their own groceries now. I am trying to help with the grocery list because mama will buy stuff they already have and that apartment is not big. Daddy made the statement that he thought they were getting new neighbors at the apartment. I think he is starting to think about it being home but I could be wrong.

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I took the baby to the doctor as soon as I got off yesterday. Brittany works in er so they let her off long enough to pick her up at mama and daddy's and bring her to my work. She got an antibiotic and he told me to give her Benadryl. The receptionist asked me if I was the mom and I about choked myself coughing. I guess it's possible but I would have had her at 56. She spent the night with poppy and me. We didn't get the most sleep but she was so adorable. I got her up this morning and headed over to the apartment. I fixed mama and daddy supper and took it over to the apartment with us. Payton and I ate lunch with mama and daddy. Daddy and mama like all the attention they get when daddy is holding the baby. Daddy held her while I got their pills teady for the week in the planner. She and I came back to the house and she laid down for a nap. Her mama and daddy picked her up at 3:30. I went ahead and fixed waffles and bacon for the hubs. I think we are going to have a nice quiet evening.

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Yesterday and today were good days. The baby kept me up some Friday night but we wound up sleeping in together. The hubs had to work so she and I headed to the apartment for lunch. She did awesome. She sat in my lap and looked at everyone. Of course, everyone was coming up to mama and daddy and telling theremin how cute she is. I did mama and daddy's pill planners while daddy fed her a bottle. Daddy seems to be using his iPad more. Payton and I headed for home. Brittany and billy picked her up around 3:30. The hubs was late getting off work so I fixed him bacon and waffles for supper. He went to bed and got up with a super bad migraine. We both get them, I just get them a lot more often. He took excepting migraine this morning and headed for work. I ran by the grocery store, stopped by Robbie's to give her a check and picked mama and daddy up for church. I asked daddy if he wanted to drive and he said no. We really enjoyed the service. It was my preacher from when I was little, then he was my preacher again when the kids were little. It was just an awesome service. I went back to the apartment and ate with mama and daddy. It was quite good. I had picked up chef salads for their supper tonight. I fixed brett 7 bean soup. I am going to take it over to mama and daddy for supper tomorrow night. I have to be at the apartment at 6 in the morning to get the baby. Unfortunately, when you work in the er you work holidays. The little one and I will bond tomorrow. My son and his family are in Florida right now. Our big getaway is going to be the middle of June. We have rented a house on the lake. We are taking mama and daddy and all the kids are coming. We are taking our boat so it will be a fun weekend. I try to do all the cooking so the kids can relax. I am going to come up with some easy food fixes song don't have to cook all the time. I am sure brett will want to grill some which is fine by me. I am about to go to bed, 4:30 will come awfully early in the morning.

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Thank goodness no tornado sirens or terrified dogs tonight. I thought we were never going to get to sleep last night. We had a busy day at work. Found out we are working Saturday, joy. We are planning to drive to the farm for homecoming. I will just have to pick mama and daddy up later than we originally planned. Brett is going up earlier to mow and do stuff around the farm. We are going to run the weimies behind the 4 wheelers to give them exercise. Not sure what my problem is but I have been a bit down today. I may just be tired. I have a whole new appreciation for anyone who caregivers. I decided to make it my mission to be as nice and helpful to the people at the apartment. You never know when a little something touches someone else's life.

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Mama called today and is worried daddy is depressed. I talked to Robbie and she said he spent most of the day with his head in his hands sitting outside by himself. Brittany and I took the baby outside and put her in his lap. He seemed fine. Mi finally asked him if he is still okay staying at the apartment until August. He said yes. I asked him if he wNted to move back to the farm then and he said yes. I told him he would be fine but I wasn't so sure about mama. I am going to have to give this to the lord because this really stresses me out. I feel so much more comfortable being a few miles from them. This weekend will be our first overnight trip to the farm in 9 months. I know my cousin cleans houses so I could possibly hire her to clean weekly and help mama. Their neighbor is a pharmacist and told me she would do their weekly planners if I ever needed her to. Somehow this will work out.

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Took daddy to the doctor today, he got a good checkup. I had an opportunity to talk to him quite a bit. He wants to go to the farm but knows mama is not doing well. We talked about the pros and cons of the apartment vs the farm. I just flat out told him I wanted them to stay at the apartment but would respect their wishes. He said he knew mama couldn't cook or clean anymore. It seems like she gets a little worse every day. She almost fell twice today and could not turn the tv on. We are all going to spend the night Saturday night at the farm and go to their church Sunday. I asked daddy if he would be willing to just stay at the farm on weekends for a time. He seemed to like that idea.

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Daddy's blood work came back good except he is deficient in vitamin d. I am going to give him otc until I hear back from the doctor. They are packed and ready to go to the farm tomorrow. I hope they have a good time. I am trying to get them out as much as possible. I am going to ask daddy if he wants to drive. So far he has turned me down.

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I got up at 4 Saturday morning and headed to work. After work I ran home, took care of the little dogs and picked mama and daddy up at the apartment. We headed for mccrory church of the Nazarene. This was mama and daddy's first time back at the church since daddy got sick. They both seemed to enjoy it but daddy more so than mama. Mamas back was bothering her. Brett had been mowing at the farm and he met us at the church for supper. Daddy stayed with brett and I took mama to the farm. I got her and the stuff situated. Daddy and brett got there after a bit. Daddy helped me pull up weeds which is a first since he got sick. Normally, he just watches us do everything. Somtime around 2 this morning the weimies started really barking. Some type of animal was really bothering them. Unfortunately, they barked the rest of the night. Glad the farm is way out in the country. Got up this morning. Hoped daddy would fix breakfast but he didn't seem interested. He has always cooked breakfast. I went ahead and cooked. I asked daddy would make me oatmeal and he did. I asked him if he wanted to drive to church and he did. He seemed to enjoy seeing everyone. There were more people there today than last night. Of corse, each one of his sisters made a point to tell nevhowcquiet he was. I just said he has a lot on his mind and we have been talking. I'm to the point that I don't know if they if they mean well or are just nosey. I wish they would leave him alone.

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Today didn't start out the best. My backup called in and I had to cancel mamas neurology appt which I have had for months. Then at 7 Robbie sent me a text that daddy's sugar was high, bp was low and pulse was 39. She rechecked it 30 minutes later and it was still low. She had him walk and it came up some. Thirty minutes later it had dropped again. Brittany said to bring him to er so I did. They checked his defibrillator and it was fine. Not sure what is going on with him. His pulse varied from 39 to 161. A bit concerning to me. I got him back to the apartment and he staggered and almost fell.

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Mama and daddy had a good day. Mama is using her cane, yay! Daddy took both her and Robbie over to aunt Mary's then Walmart. After lunch she had her hair done. I picked up their favorite tropical smoothie sandwiches for supper. I had to tell them I have to work Saturday so I won't be able to take them to daddy's reunion. Daddy said they would make it fine. I am worried because it is 100 miles one way. I'm am very concerned and will pray about this.

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Daddy's pulse dropped again this afternoon. It was 39. The hospital said that was impossible with his pacemaker. They told me to check his pulse manually for 10 secs and multiply it by 6. I checked it twice and it was 36. I am really concerned but the hospital sent him home Monday when I took him to the er. Mama is still using her cane, thank goodness. I am concerned about daddy driving Saturday if his pulse is so low. I take that back, I am just concerned about him driving period.

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I have fought a migraine all weekend. This one was the kind they made it hard to think and function. Worked all day yesterday. Mama and daddy had not made it back from the reunion so I didn't go over there. I came home and did a few things around the house. It needs a serious cleaning. Mama and daddy made it back to the apartment okay. My head hurt so bad this morning that I would have skipped church but mama and daddy really like to go. Mama was not having a good day. She introduced me as her sister to the security guard. She headed back to the apartment when it was time to go and waved me off when I called her name. She had an extremely hard time getting out of the car. It was all I could do to get her out. She wanted daddy to help her walk so I could park the car even though she was with me when I parked the car. What an awful disease. After I ate lunch with them I headed to the grocery store. I cooked for the hubs. He got home from work around 1:30. I wanted to visit with him but fell asleep and slept all afternoon. I feel much better now. Next weekend is the lake so hopefully it will be fun for everyone. We rented a house since it wil. Be mama and daddy, U.S., the kids and all their kids.

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We are back from the lake. Overall, it was a good trip. The house we rented was very nice. I think mama and daddy had a good time. They were just very quiet. We put them in the ground floor bedroom since mama can't maneuver around very well. I did the breakfast and vegetable cooking. Brett did all the grilling. I had to watch mama like a hawk. I caught her about to go down the back deck stairs to throw out some water. She is a major fall risk. She took her cane but barely used it. Daddy and I walked some but he got really winded. He is starting to shuffle his feet again. I don't know if that is because we are weaning him off the olanzapine or not. We see the psychiatrist June 30th. Mama and daddy seemed to really enjoy the kids. We watched the baby while everyone else went out in the boat. Daddy, brett, Brittany, Kayla and Myles all had birthdays this weekend so of course we had cake and ice cream. Our biggest uh oh came from getting in seed ticks. We are a bit uncomfortable.

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We were very busy at work today. I left work, picked up everyone's meds and picked mama and daddy up a chicken Apple club sandwich and fruit from tropical cafe. They seemed to be doing good and in good spirits. Daddy's sugar was 186?which was a bit elevated. Robbie will be back tomorrow. I think they are missing her. I ran home and started taking care of the dogs. The big dogs are still running in the backyard. I was going to pay mama and daddy's bills today but I am super unmotivated. I will make that be a tomorrow chore. The hubs has gone to mow a little old lady's yard.

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mama and daddy went to the farm to sell the wheat today. Brett got to the farm yesterday to mow. He followed them into town and said daddy was driving 60 in a 90 degree turn. Really concerns me but he did well in the driving evaluation. He messed on himself yesterday and the day before. That is the first time this has happened in a really long time. We cut his anti psychotic drug in half about 3 weeks ago to see if we could wean him off of it, it is hard on his heart. Mama got into her pills tonight and took two days worth. I am going to come up with a different plan by the time I get over there tomorrow.

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I worked yesterday then I went over to mama and daddy's to visit and cook supper. I left there, grocery shopped and then did very overdue house cleaning. Today I woke up with a migraine and stayed in bed until the hubs got home from work. I fried squas, deer tenders and cooked corn on the cob. I feel like I am neglecting the hubs but don't really know what to do about it. I also wish I could help my daughter more. The baby is not sleeping well and she is exhausted. I think she is depressed and I am keeping the baby overnight as much as I can. I guess I am a bit depressed too.

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I kept the baby last night. I was really tired but really enjoyed having her. I will be really glad when she sleeps through the night. Brett worked today so the princess and I shopped at target this morning. We next went over to mama and daddy's. Daddy held her while I did their pill planners for the week. They have both gotten very attached to the baby. Mama has been super confused this week because the baby is coming over different days than normal due to a temporary schedule change at the hospital for Brittany. We are leaving for the farm after church and lunch tomorrow. She keeps getting confused about when we are leaving. She has also been concerned about what we are going to eat at the farm. I told her what I was going to cook but she thought I was cooking it tonight. Daddy has been messing on himself some lately. This has been since we started weaning him off the olanzapine. So far, that is the only side affect I have seen. I am hoping mama and daddy take the car and go visit friends after we get to the farm tomorrow. We will see., I am packed and ready to go. Brett is going to work until noon, come home and change clothes then load the Weimaraners. I really appreciate how much work he does at the farm. I try to tell him often. We are driving separate because mama is very uncomfortable in the truck. Plus, the dogs take up a lot of room. I have somewhat isolated myself since mama and daddy got sick. I don't participate in many church functions anymore. I just don't seem to have the spare energy.

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We are back from the farm. It was a tiring trip but we got a lot done. Brett mowed and weed eated. I pulled up weeds in the gravel drive. Noting says vacant house like a bunch of weeds in the drive. I vacuumed and mopped, cooked for everyone and cleaned the kitchen. Mama washed and dried linens which is about all she can do anymore. We have an appointment with her geriatric doctor Monday. I hope there is something they can do for her mobility. Brett and I rode on the 4 wheeler. It was great except for the Mosquitos. Daddy drove by himself down to his cousins house to visit for the first time. He also went into town to get keys made for the farm. He lost his. He drove halfway back and did well. We ate at Ryan's and I drove the rest of the way. I always ask him if he wants to drive. Bless her heart, mama is the sweetest person with dementia. Daddy is doing good after taking him off the olanzapine. Née is just not quite the same person he use to be. He sat outside a lot at the farm. The hubs and I are pooped. We didn't sleep well last night because the Weimaraners let us know they were not happy with sleeping outside. I am going to try to catch up with my sleep because I will have the baby Thursday night and I have to work Friday. Brittany is working two back to back 16 hour shifts and billy is out of town

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Some weird things I notice about daddy now: he seems to want to sit in the dark whereas he used to prefer a lot of light, he doesn't read anymore he used to read all the time, he keeps the tv off now whereas he previously left it on FOX all the time, he is much quieter, he doesn't seem interested in cooking, or doing yard work. I find myself watching him to see if he is becoming delerious again. Mama continues to spiral downhill. I caught her with a steak knife yesterday trying to open a key ring. So far, my aunts have been leaving me alone lately. I hate they have caused so many issues, the hubs can't stand them now.

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