Zain's Blog

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About this blog

My 8 year old son's stroke

Entries in this blog

14 Months and going

Hi   Been a few months - tried logging in but had some errors- guess i got in now   Mohamed Farhaan - has regained 80% speech - more strength in upper body EATS him self ( a lot might i add) - gaining weight now - need to implement a diet and some exercise - still a bit emtional still has spasms in both legs - contemplating going on this drug for spasms - spoke to neurologist - he said that spasms caused by inflamation of nerve - will take years for this to subside if it ever does  

Zain

Zain

Farhaan Progress: 6th Month

Hi   Too busy with Farhaan, work and settling into the new place. Farhaan has so far made remarkable recovery. Head control is perfect, swallowing action is almost perfect. He started using his right hand to write stuff (color, drawings, and small sentences). Although his dominant side is the right, he tends to use his left for all attempts at activities.   As for speech, he tries to talk. He can call Ma, say "No", Say "Yes" and a few other words. I encourage him to try to use his speech

Zain

Zain

Farhaan at home

Hi   Farhaan had the peg removed last week Tuesday, under anesthetic. The part of the peg in the stomach broke off. Came home on Wednesday. Passed out the peg on Friday around 11 am.   Difficult at home, carry to bath, get into tub with him but much fun. The tub is a huge one in this new house.   Farhaan enjoys playing TV games (basic ones) on one of the satellite channels. Just today he changed the channel to a music one and asked me to take him to the window to look out. Stood by hims

Zain

Zain

Farhaan - to be discharged

Hi   Farhaan will have his stomach peg removed next week and then he will be discharged from hospital. I was very scared when i was told this. I had this idea that Farhaan will only be discharged when he is almost well. I guess his healing will have to continue at home.   He will be reviewed for two weeks by this school "Open Air" to see if they will register him for next year as a student. Things just happen in a flash - leaving you feeling like things are happening beyond your control. A

Zain

Zain

Improvement stopped

very very very concerned   Had a meeting with the neurologist and therapists yesterday. They are extremely happy with Farhaan's improvement.   I am worried. He can move his hands (left) much better, swallow much better and balance himself when sitting but thats all. Will he improve? Will he Talk again? Will he walk again? is it too early (almost 3 months since stroke)   I am not getting any more reassurance - i am confused   Is this how my son gonna be.........................

Zain

Zain

Farhaan: walk like movements

more positive news   Yesterday, a new PT got Farhaan to walk, with lotsa aid tho. He made the movements slowly but intentions were there. Still a bit flacid around the stomach.

Zain

Zain

Wow - 2nd massage

Hi guys Farhaan had his second massage yesterday   :) :) :) :) :) :) :) yes yes i cant stop smiling..........   After the Olive Oil massage (more like bath), he settled and prepared for his daily dose of Star Trek (yes i converted my son into a Trekkie), while watching from the corner of me eye i could see Farhaan got his left hand index finger in his nose picking away - have a jolly good time. I did not want to startle him; i just acted like i did not see. A few minutes la

Zain

Zain

Massage from Kuwaitie

Yesterday, Farhaan had his first massage from this guy from Kuwait - he apparently came to South Africa a year ago. His name is Mohamed Deedat. He spent about 45 minutes in massage with olive oil - head to toe. I noticed that Fahaan's little hand movement became faster. He also lifted both his legs (bending knees like frogger).   Looks promising - the massager says he will do about 6 more massages and we will see great results.   I have nothing to lose - Farhaan was happy with the massage

Zain

Zain

Stroke - what the heck

Hi   I realized i need to track the progress my 8 year son has made since his stroke on 1 August 2006. What better place than this Blog facility. It will help me to track progress and others to benchmark stroke in kid

Zain

Zain