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Betty Jean

Stroke Survivor - female
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About Betty Jean

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  • Birthday 05/28/1949

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    Medical Research, Reading, Gardening, Craft Projects

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  1. Happy Anniversary Betty Jean!

  2. Happy Anniversary Betty Jean!

  3. Happy Anniversary Betty Jean!

  4. Betty Jean

    Hi Vicky and congratulations on the pregnancy! As much as I hate to say this, I was sick 24/7 from the day I conceived until the day I delivered. The sight and smell of raw meat made me sick, the smell of fresh fruit and other produce made me sick. Eating anything at all was pretty much out of the question because that too made me sick. I only gained 12 pounds while I was pregnant and after a while I was so anemic that my iron level wouldn't even register on their machines. There was nothing they could do to help me except have Jim try to talk me into eating and hope that I could keep it down for the sake of the baby. That being said, when they put that beautiful tiny baby boy ( who was born a bit early but was sooo healthy) in my arms, I forgot all the misery and would gladly have done the whole thing over again if I could have. Your precious little miracle is going to make all this seem like nothing. And, just so you know, the doctors said a woman like me comes along once every 10 years so I'm pretty sure your sickness is just a passing phase. You are going to be a wonderful mother and if you need a baby sitter just give me a call! Betty Jean
  5. I can understand what you are going through to a degree. My husband's behavior has become very odd of late too. However, he has not been destructive like your husband. It just seems like he is having a recurring case of anosognosia but to a milder degree than right after the stroke. That means that even though he knows he can not do the things he used to do, he still thinks he can and insists that he is perfectly able to drive the car, ride the motorcycle etc. and get very angry when we tell him he can't. We need to hide things from him so that he will not hurt himself or anything else. Anyway, I agree with what everyone has been saying so far. Your husband needs to talk to someone who understands how to make him understand that what he is trying to do with good intentions is just not working and that tantrums are not appropriate behavior. Also, as they said, you need to have an outlet for yourself and that's very, very important. Care giving is such a difficult job and you really need some relief. Is there a nursing service that can sit with him so you can get out once in a while? Perhaps there is a day care center that you can take him to so that you can have a day off without worrying about your home. Perhaps someone from your church is qualified to help you or have your kids cime to your home rather than taking him to theirs. He is, after all, their dad and just a s much their responsibility as yours. Also, your health and well-being should be important to them and they should be willing to help if they are watching him in your home instead of theirs. Please keep us posted on how things come out for you. Betty Jean
  6. Betty Jean

    Computer problems

    Hi Everybody!!! It's been a while since I've written but my computer was down and I couldn't afford to get it fixed. Anyway, I;m back and have been checking things out to see how everyone is doing. September 4 was my husbands first anniversary of his stroke. It was sort of weird for me because I sort of kept waiting for the other shoe to fall and Thank God it didn't! Jim wasn't even aware that it was his anniversary but my son and I both knew and both had the same worries about it. I know it was pretty silly of us because Jim is doing just fine but we couldn;t seem to get around that feeling. Jim is now at the point where he can walk a bit using a walker if he has a little help. He still has trouble holding on with his left hand but it is such great progress as far as I'm concerned! We have been working out in the pool exerxising his legs and working on Jim's hand and arm to try to get him to be able to grip things. Slow but sure we are making progress.Jim doesn't think so because his hand and arm are not doing what he wants on demand but They are beginning to do the right things and I'm very excited even if Jim isn't. :Clap-Hands: Our son had to have hernia surgey the other day and it's truly making him miserable. I know with time he will appreciate having the surgery but, right how, he is NOT a happy camper. I have a couple of job interviews coming up next week :laughbounce: so wish me good luck! The government doesn't seem to want to help us out and It's hard to buy groceries and Jim's meds on just the little bit that we have been getting. I don't want to go back to work but if I want to feed him and pay for doctors and so on and so on then the choice is not mine to make. Well, it's geat to see everybody and be back with you all. I've needed to be here so many times for one reason or the other and and I'm so glad to be here! Good bight all, Sleep well and I will be ack soon! Love to All, Betty Jean
  7. Betty Jean


    Well, it's been a very long time since I wrote a blog. There have been a lot of things happening around here (some good, some not so good) and I've been just too tired from riding this rollercoaster to do more than just pop in and read sometimes. Today is Jim's birthday so I am baking him a birthday cake while I write this. The whole family went to the Outback for dinner last night and that was a real big thing. Jim doesn't like to go anywhere to eat because he is embarrassed that I need to cut his meat up or prepare his meal in some way for him. At any rate, we got him out for dinner and had a very nice time. It was good for me as well just for the change of scenery. Anyway, part of the family is coming over here today to have cake and ice cream and help celebrate Jim's birthday. I'm glad because it stimulates him and he joins in life for a while. Since we put up the swimming pool, Jim has been getting in it nearly every day. It's a joy to see him walking around the pool or kicking his legs to go back and forth across the pool. What good rehab for him! He was very frightened at first even though I was right beside him all the time. Jim's confidence is growing and he is getting a bit more daring when he is in the pool now. The worst thing about that is that he wants to be able to get in and out by himself and I can't let him do that. There is a ladder Jim has to go up and down in order to get in or out of the pool. He is just too shaky and could fall and hurt himself quite badly if I'm not there to help him. Jim also can't be left in the pool alone because if he slipped and fell he could easily drown and I can't take that chance. I know he doesn't like to be babysat but for now I can do nothing else. In time he will be able to be left alone more but not right now. Our son got married a week ago. I've been reflecting on that late at night after I've read something here and I'm watching him sleep. Every mother wants her child to be happy in his or her life. What I really wish for my son is the kind of love that I see here with most of the married couples. It is gentle, joyful and unconditional! I pray that Dane's new wife is his "other half". That she completes him and that their two lives will be spent bringing happiness to each other. I have become part of the lives of the people that I know here and have seen love flowing back and forth between couples like the waves in the ocean, gentle, constant and never-ending. There are celebrations of progress no matter how big or small, worries when there is a setback, laughter at some of the things the survivor or the caregiver does and tears when someone loses a family member. Underneath it all, is love and it is this kind of love that I want for my son in his marriage. Well, I've gotten a bit off track there and the cake is done so I think I'll go try to rest for a bit. Have a wonderful day and God Bless All of You, Betty Jean
  8. Betty Jean

    That was my plan for putting the pool up in the first place. I was thrilled that he came out and helped me with it but now he is just waiting for the water to warm up a bit more and then he wants to get inin the worst way! I'm not quite sure how I can safely manage that as the only way Jim can get in is by climbing a ladder. Maybe if our son is there to help him along with me we will manage. Jim's right side is strong and his left leg is strong he just can't control it very well yet so things may work out better than I think. He has also been working with his left hand and arm some. The hand is no longer curled up in a claw which is a big relief. I think maybe some therapy in the pool for his hand and arm can be worked out as well. If you have any ideas along that line I would appreciate them. I should have posted more about Jim's progress before. Maybe I will post the question about water therapy for the hand and arm on the other forum and see what everyone else says. Thanks for your comments, they sort of woke my brain up. Betty Jean
  9. Betty Jean

    Denny, Feel free to add my blog to your list. I don't know off hand what the link is, but I just blogged and it's under Betty Jean, Just Mindless Stuff. If you can't find it let me know what I can do to help. Betty Jean
  10. Betty Jean


    Well, I haven't blogged for a while so I thought I'd just drop in and say "Hi". I got laid off from my job for a bit due to health reasons so have been spending some quality time with Jim. Since I've been home we have been involved is taking care of some projects that needed doing around here and I have gotten Jim involved in all of it. He really seems to be enjoying getting involved in life again (around here at least). It angers him that he is stuck in that wheelchair which makes it hard to get around outside. We have a great big above ground pool that I had Jim help me set up and now he wants to get in it. I think it is motivating him to walk more and try to use his weak hand and arm. YIPPEE!!! When I see him fall asleep it is because he is tired and not because he is bored. Sometimes, as a caregiver, I run out of ideas to help motivate Jim and it gets very frustrating for me. I think I might be on to something here, though. By the way, the tumor that I have on my scalp is benign, I went to a dermopathologist and that's the first thing he said, then he gave it some treatment and said it was supposed to shrink and fall off. It's still there. While I was there, though, he removed a "sore" that wouldn't heal from my forehead and that did turn out to be cancer. The doc got it all, though, so that's okay by me. I did want to use this as a reminder that everyone should be using sunscreen if you are going outside for any length of time at all. I just can't stress the importance of that too much. Especially with some of the meds you are on, you must be very careful about the sunshine. Well, that's all for now, Betty Jean
  11. Betty Jean

    Ross, I just read about Diane's passing and, like the others, I want to offer my deepest sympathies to you and your family. I know that at this time there is little anyone can day to make it easier for you. Just know that she was loved here and will be remembered. God Bless you and the family! You are in my prayers, Betty Jean
  12. Betty Jean

    Ken, If it is your affected leg you should definitely tell the doctor just to be on the safe side. However, I have found that when my leg gets really cold if I put on a leg warmer it works very well for me. You can usually get them at places where they teach dance lessons or probably order them on the internet. I have several pair that are all different colors and different degrees of thickness so I put on whatever the weather and my leg tell me I need. Maybe they would be of some help to you. Betty Jean
  13. Betty Jean

    One Perfect Day

    Well, it's been a while since I wrote anything in my blog but there has been so much going on around here that it's no surprise to me. However now, I just needed to write in because I thought it might help me get my head on straight. See, I went to the doctor because I had this bump gtowing on my head. I figured it was a cyst or something like that ans he would send me to someone to have it taken off. However, the doc looked at it and said it was a tumor. GOD I hate that word. Then he said he thought it might be benign but he didn't know for sure because he isn't a dermatologist so it could possibly be malignant. The doc wanted to try a treatment on it first. till we know for sure After all that, please understand that I have decided I'm not going anywhere! Malignant or not, I want the tumor off of my head and that is that! Jim has need of me so I can't be crossing over just yet. I had this thought, though. IF I COULD HAVE ONE PERFECT DAY BEFORE I GO WHAT WOULD IT BE LIKE? Would Jim be healed? Would I want my whole family around me? Maybe I would rather spend it alone with God. Maybe I would want to spend it pretending I wasn't sick at all and just go out and do a little partying, Maybe I would want to spend it ministering to others. It's an interesting thought and one that I have been playing with since the word tumor came into my life. If you could have ONE PERFECT DAY, what would yours be like? Love to All, Betty Jean
  14. Betty Jean


    Today, April 25, is my Dad's birthday! Ordinarily a family birthday is a family birthday, right? What makes this one so special is that Dad is 102 years old today. Yup, that's right, 102. He was twenty years older than my Mother. Anyway, I spent yesterday thinking about all the things he must have done and seen in his liferime and oll the things we have done, seen and learned from him in our time together. You see, he is my stepfather technically but has been part of my life since I was a kid and he is my Dad and a blessing to the family and everyone who ever knew him. Anyway, I got to reflecting on how different things were way back when for him and how much more difficult everyday life was. To go from a horse and buggy to cars, making candles and using kerosene lamps for light to electricity, to go through all the wars, see the radio, telephone and television invented. he saw a nab walk on the moon and the Gerlin wall go up and come down. The list is endless.He bought his home for $350.00 and made payments of $25.00 a month. Dad still lives there and when he passes the house will go to one of my sisters so that it will stay in the family. Then I got to reflecting on our lives now, what we have seen and done and can pass on to our children and grandchildren. There again, the list is endless. If I had the time and told you about my life, you wouldn't believe it. I do not want to live to be 102, but whatever life I have left, I want to live with the grace a nd dignity that Dad has lived his entire life.I never saw him lose his temper even once in all these years. All I ever saw was Dad genuinely caring and loving every single person he ever met. He is one of God's teachers and we are so blessed to have him in our family! Happy Birthday Dad, I love you!!!! Betty Jean
  15. Betty Jean

    Mary Jo, It's so good to hear from you ! I was getting concerned since you hadn't written for such a long time.Congratulations on staying sober for another day even though the stress was really getting to you. I'm very proud of you for that. You shouldn't let his family get to you that way, though. They have done nothing and you have done everything for Bill and if necessary you can point that out to them. Did you ever get in touch with Bill's shrink? I hope so and I hope that something good came from that. You can pm me if you want to talk and tell me how things are going. Again, congratulatios on staying sober! Betty Jean