Blogs

Cancer. Really?

I sat on the table with a pair of leggings on and a thin robe undone clutched around me like a shield warding off the words no woman or man wants to hear. And No person with CPS can tolerate. The radiologist wants me to schedule a biopsy ASAP for 2 suspicious spots in my L breast. I said BUT I am going to have an electrode implanted. Then the following words floated in the air hovering over me making sense no xsense then just being: "Oh you pe

December 8, 2018

Sue's Sentiments

Noises outside

On the whole I think I cope with being a widow pretty well. But as soon as the warmer nights start we have noises outside. As a widow and even before when Ray was living here still but was unable to get quickly out of bed I am the one who goes off to investigate. It may be possums on the roof, dogs overturning the bins out on the road or a group of noisy teens coming home from a party, rarely is it something life threatening. Sometimes I just don't see the cause and I might go back to bed and wo

swilkinson

December 8, 2018

Thinking Out Loud

*First let me put a disclaimer here. I am going to talk about faith (religion if I may) as it applies to me. I never want to make another feel that I am weighing their faith or lack of in any way than my own. I believe in acceptance and only strength in whatever faith you may practice. I love you just the same. If this will cause a negative feeling in someone please feel free to click out now. I would never want that. I made a blog post yesterday that stated God had given me a gift. Just so

December 4, 2018

God has granted a gift.

It's been close to 3 long years since I began my application for disability. I never wanted to apply. I never wanted to be in a situation where I was in need of such a thing. It's taken a long time to accept. So I have lived with my dad, depended on my mom, got transportation from my sister. I have been on the roller coaster of after stroke effects, dealing with my family's judgements about these and after seeing my Psychiatrist for over 3 years every other month hearing him say you won't be abl

December 3, 2018

achandra's Blog

We are back from our worldwind vacation

Since hubby's most of the family still back in India, we do go & visit India every two years. traveling with me is bit scary sometimes, we both have to be extra careful of me not stumble anywhere & fall on uneven terrain, which in India there are plenty when we go visit our home cities & our village where construction is always going on on roads. & not railings to hold anywhere except hand of my family member.hubby always had me in his death grip lol. This year I made plan in s

HostAsha

December 2, 2018

Socializing and Lack There Of

Since my stroke I have changed tremendously. I was always the extrovert social butterfly. Easily talking to anyone, making friends easily, sometimes dramatic lol...I enjoyed expressing myself. Today I am not that person anymore. I'm skiddish, awkward, easily startled, get stuck in silent mode when spoken to or stutter, a loner, don't like noise or movement or lights or the dark or people. 😧 I do love when my kitty is around me. I enjoy talking on the phone sometimes. I manage to enjoy my local s

Jayallen's Blog amazing days

November 28, 2018

Sue's Sentiments

Another milestone in WAGS

Last weekend was the Women's weekend of the Stroke Support group WAGS, I think my 10th full weekend although I have sometimes just gone to the Friday or Saturday night, depending on the circumstances. I remember one year I got my older son to look after Ray so just went from lunchtime Saturday until after the dinner. Of course the past six years I have gone as a widow. I shared with another younger widow this year as I did last year. She is only mid-fifties and still has children in her car

swilkinson

November 14, 2018

FIVE YEARS AND LOOKING FORWARD TO MANY MORE

5 years ago, today. My life. my world changed in the blink of an eye. With an aneurism (intra cranial hemorrhagic stroke, a brain bleed) and mild stroke. It took awhile but I joined the network. The connection made have helped me so much, offering hope, inspiration and comfort during challenging times. It is wonderful to share hopes dreams and concerns with others who truly “get it”. Thank you, we need to look after each other as we continue our individual journeys.

Jayallen

November 12, 2018

I did it!

8XyM.*I now am battery operated! I got a chance to speak to the rep from the company ,. He was there helping the doc. It was not that bad. The doc said he thot they would have to stop. My bp went to 200. Ya. Hurt a bit. But I did it! So I had to reposition 3 times. I did push ups! Not easy on a op bed thing. But they finally got the right angle. The curve in my back was in his way. Then too flat. Ok. Took experimenting. One more

November 11, 2018

Spinal Electrode in the Morning

I go in the morning to try the thing. I am scared. I must shower tonite. Now this is a problem as usual. I have new roommate. I have not seen her yet. My admirer brought me a veggie drink that is horrid. Thought counts. He said old witch former roomie told him I had surgery tomorrow. I said No I did not. It is a procedure I will be awake. I will endure pain. I will feel the nerve bundle awake as tūhey thread wire leads into my spine with a

November 9, 2018

Miraculous Mary

A supervisor that used to care for me still does and I gave him a run for the money headache when I first arrived here in agony. He went to Paris and brought back Miraculous Mary medallions in a laminated wallet card with a prayer on it. He saw my rosary and we chatted about Catholicism and he promised me one. Last week he appeared with it. I am so grateful for this gesture and I believe in the strength he has loaned to me. I also appreciate that some know me here understand me

November 5, 2018

Ksmith's Blog

It's a boy

Well, I did a fast trip to Florida to attend my first grandchild gender. Apparently, I was the ONLY one who didn't know. But it was wonderful. I cried for I was looking at my baby and knowing he was a man and a daddy. They had a die dust bag they put under a truck tire to do a burn out, spinning a tire on concrete, which made a TON of smoke and burning rubber smell/ YUCK . The travel down was interesting, to say the least. I flew from Philadelphia to Dallas/Ft Worth.. first. ( all i

ksmith

November 5, 2018

Making Plans Can Be Intimidating

It's ironic...I write in my blog here but my hopes of beginning my own website and blog scare me to death. I've not studied anything about doing this before. I have made a Pinterest account where I am saving every idea and bit of information I can...to a locked board. I am averaging 1-2 new subscribers a day. I try to engage people when they are interested, follow back, pin back, and I try to pin with purpose. Honestly, I don't know what the heck I'm doing. It's still a personal account but I ha

November 5, 2018

Sue's Sentiments

From cool days to heatwaves.

We have just had one of the hottest November days for decades. What a difference a couple of weeks can make. The weather was still fairly wintery when I went out by train to Armidale one of our little inland cities to stay with family friends. The days were warm but the nights were cold and I was glad of the couple of blankets and heavier cover. Then one morning what looked like heavy snow clouds blocked out the sun and it really was cold so on went the winter weight jeans and jacket. I was glad

swilkinson

November 3, 2018

Spinal Trial.

On Nov 9th I will go in for the Electrode trial. I am tired of pain. Risky but I will bet all on table now. I live in agony in a world that sees only weakness in it not the strength it has taken to live since 2014 in pain. And I need pain pills on time. So the home has policy that pills given in room omly. I got stuck inthe showers and no pain pill given. Policy first. I need freedom.

Jayallen's Blog amazing days

November 2, 2018

Anothre milestone

November 1, only a few days until I mark my 5th anniversary of my stroke. Hard to believe it's been five years. I am staying vigilant to recognize and fight off the triggers that surface this time of year my stroke date is 11-12-13. With all the memories issues I have why can't I forget that date? lol be well god bless Jay Allen

Jayallen

November 1, 2018

Ksmith's Blog

I still got it

So, this is a sad story but the way I acted throughout it renewed my faith in myself. So Saturday past, it began as every Saturday at my work. Made breakfast, assisted the woman I aide with her bath, took her and another client to the closet bus stop. Basically a normal-ish day. UNTIL... After dropping off the individual to the bus stop, we, my client or individual, as we should refer, returned back to the program. That is what we call the place where individuals reside.

ksmith

October 30, 2018

achandra's Blog

celebrated another birthday with my loved ones feel so blessed

I still have jet-lag of happiness. on Friday celebrated another birthday with my loved ones, I feel so blessed to be surrounded by so much love. I got jackpot in set of family & friends who decided to stick by us & come in our life. feel so fortunate to have all of them in our life. like every year hubby took day off my birthday & we visited my favorite temples with our friends & dinner at one of my favorite restaurant. every one who mattered called or left messages for my birt

HostAsha

October 30, 2018

I Think I Won!!!

I just wanted to share my long awaited happy news. I had my disability hearing Thursday and my lawyer says he is 99% positive that I won my case. He is only not saying yes you won because the judge did not directly say that in those words. The testimony questions and answers back and forth between the vocational expert and the judge ended with "There are no employable positions in the general area for Ms Miller". The judge ended the hearing at that statement. My lawyer who has 35 years experienc

October 27, 2018

ruthwilliam's Blog

It has been over a month.

This transition to widowhood has been easier than expected. That is because the good bye was a long one. 3 months before William died, my son, had come down to visit. He told me that William was declining and suggested that I look into hospice. I wasn't ready for that. But it got me into really thinking about life without William. So my good bye was a long one. Then the month that I put him into hospice was the real start of the end. Everyday was like the last time that I might see

ruthwilliam

October 25, 2018

Finding the Strength to Let Go an Realize That I have No Control Over Anyone or Anything Except Myself

I'm embarrassed to say that you know I'm going to vent when I visit my blog. 😁 I do figure things out though, get a better understanding for my own sanity and well I am much better when I let it out. So, again, here's a warning beforehand that there may be some venting. That way if you are not wanting to hear it then please click out. I say that in a nice way. I never thought I had an issue with control...but I do. Maybe it comes with good intentions but really does no good for me or anyon

October 24, 2018

I Am Struggling With Something I Don't Like About Myself

So many things have happened in the past 6 months. Difficult things and good things. Where do I begin. It's weird I can't remember a clear time line but just facts. Let's just see how much I recall. I was diagnosed with Diabetes the first of January...not 6 months ago but it is never ending. Good news is that I first was testing 6.9 on my A1C and I think in August at my 2nd class we checked again and it was 6.3! This was a really positive direction for my health. I cheat though...a lot. Will it