• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,565 views
Gizmo, Gadget Guy

Life update

Been awhile since I blogged so here goes. I did my trip in August to see my longtime friend in Texas. He is doing well, still has some reading deficit but getting better. No other issues at this time. We had a great visit, he took me to the Ft Worth stockyards and I rode a long horn bull! From there I went to see some other friends in Louisiana for a few days and saw the WWII museum in New Orleans. I drove the trip alone, just me and my Mazda Miata with the top down most of the time and my favor
GeorgeLesley

GeorgeLesley

2
My Journey Within

Spring is Sprung... When Life Gives You Lemons Pick a Pretty Bouquet

I can't believe April is here already. 🌷 Spring Fever has spun its' spell. Flowers are popping up to smile at the sun and trees are budding and flowering preparing to burst into life. I really like this time of year... It's a time of new and fresh... New beginnings and new adventures. The drab of winter is replaced over a few weeks with color, warmth, joyful beginnings, everyone is looking up to the sunshine even the flowers, inner hopes start to infuse many... A virtual treat for the senses. Mo
HostTracy

HostTracy

17
achandra's Blog

we all have our everest to climb in life

Recently I watched very inspiring talk given by girl who lost her leg in senseless robbery & train accident. It was quite amazing to hear her talk about ordeal she went through. after she was thrown off  moving train for  resisting her gold chain robbery  & she fell on track & losing her leg in process.  Anyhow after she got treated with prosthetic leg, being national volleyball athlete she decided she would climb mount Everest with her prosthetic leg. Think about courage she had. on
HostAsha

HostAsha

3
Ksmith's Blog

******sigh******

It’s been a while since I have made a block here. I am been in a funk. A funk that I don’t often talk about and I try not to talk about on the website. I try to always be happy and cheerful and I love to encourage other people. But as of late, I am been in a deep funk. Akin to a depression. In bed , can’t quite get out, however I  do you go to work on the four days that I do strictly because you have to make ends meet.  I guess it’s just the 810 year itch you could say. Coming to terms that I ha
ksmith

ksmith

4
Sue's Sentiments

Always waiting

I went to the throat specialist, he said the thyroid operation was the way to go but probably the right side of the thyroid removed would be sufficient. I don't know how I feel about that. Anyway I agreed and now await an operation date, probably in May. He also asked me if I wanted to have the brain aneurysm surgery first but as the thyroid is the lesser recovery time I said let's do it first. This may be the wrong decision but I hope not. I really miss having someone else who can help me make
swilkinson

swilkinson

4
Strokewife's Blog

Lilacs

The Syringa Vulgaris plant interestingly is a flowering shrub of the olive family. It is native to the Balkan Peninsula. This decadent ornamental bush is widely grown in many European regions as well as North America. In ancient Greek mythology the story is told that Pan, the god of forests and fields was hopelessly in love with a nymph named Syringa.  Legend is she being afraid of his advances disguised herself by turning into the aromatic shrub.  He never found her yet he found the bush. Notin
Strokewife

Strokewife

2
Strokewife's Blog

Time To Make The Donuts

An alarm clock rings in the wee hours of the morning before sunrise has made an appearance.  Fred the Baker rolls over and sluggishly stops the loud continual sound.  With his eyes forcedly wide open he swings his legs out from under the covers and sluggishly shuffles to the bathroom where he changes into his work attire. Still moving in slow motion out the door he goes only to reappear at a bakery.  All during this maneuvering to work Fred repeatedly says, “Time to make the donuts,” up until cu
Strokewife

Strokewife

3
My Journey Within

February 2019

It's been a while since I have written. Things are changing...some good some not so good but I'm rolling with it. I am happy to say I have started to volunteer here on Strokenet as a Chat Host since the passing of our friend Denny. This is for you Denny and all the other great members here at Strokenet. I hope I do it justice. So far it's been a joy and I have caught back up with some chat friends I haven't seen in a while. I welcome any of you to join us in Survivor Chat Room #2...my schedule i
HostTracy

HostTracy

4
I'm Back

We're Still Hanging On

Still here, still surviving, sometimes by only a thread, but we're doing okay.   We finally sold the Scottsdale mobile home the end of December, and were able to get Gary's bathroom redone for a roll-in shower.   I put that job off way too long and was worried my back would not hold out much longer trying to get him in and out over that tub to shower him.   A $3200 job ended up costing nearly six grand by the time I fired first contractor and had to replace him with a handyman to finish the job.
SarahR

SarahR

2
Sue's Sentiments

Hard decision time

I was diagnosed with thyroid cancer this morning, my melanoma specialist Prof Saw will find me a throat specialist who can see me locally but who operates in one of the Sydney hospitals.  Then the throat specialist will liaise with the neurosurgeon who wants to operate now on my brain aneurysm to see who gets to operate first. Not a good day.   I wrote that to a few friends yesterday. I was in shock, I had gone to the doctor to discuss some options and he read out the biopsy report and
swilkinson

swilkinson

9
achandra's Blog

another AHA for my sunday

I so look forward to my Sundays with my AHAs with super soul sunday & being married to my very spiritual, practical soulmate, my life is very rich with all ths AHAs. Today oprah while interviewing bradley cooper for his role in star is born as actor, director said "Art is kinda form of prayer", my husband quickly added Any work you do is a form of prayer, & AHA light bulb went in my head, its so true any work we do, if we do we should be doing as form of prayer, such that even if its vol
HostAsha

HostAsha

2
nancyl's Blog

wow time has passed

I guess I haven't anything fantastic to say-- I just realized it had been so long since I checked in . Its been a cold LOOOng winter in North Dakota-- although sounds like it has been for all in the USA.... Dan is doing alright--- the fiascos of the nursing home continue... He taught the aids and admin a lesson . He is very OCD - he asks the staff to take garbage out with them when they leave the room. They did not, kinda a  passive aggressive thing with the staff . apparently it got left overni
nancyl

nancyl

4
Sue's Sentiments

Thankfully very few changes

I have a lot to be thankful for. My daughter Shirley took me to see the specialist in Sydney today. Luckily the heat of yesterday was replaced by  drizzly rain but as  usual that just made the traffic worse and so our two  hour journey took half an hour longer. I know why I love my part of the coast so much, it is because  I would  much rather listen to the sound of waves rolling in to shore than the sound of squealing  brakes and the horns of  impatient drivers. Or park by the lake instead of t
swilkinson

swilkinson

2
achandra's Blog

I am such an idiot, simple problem trying to solve & go in circles

it has to be stroke deficit, but sometimes when trying to think through simple technical problem, one minute I have things  crystal clear in my mind & then after 5 mins it just disappears& I keep on trying to get to the solution & just chase my own tail in developing simple software code, which should be so easy. It is so frustrating the way I am doing my volunteer work, I am glad its volunteering or else I would have been fired so long ago. though people working in my team must be t
HostAsha

HostAsha

3
achandra's Blog

Its going to be my 15 year stroke anniversary-valentine day combo

This Feb 8 it will be my 15th stroke anniversary valentine day. I can't believe it has been 15 years since I have been to valley of my life's journey, though old wisdom is right you find out who is truly yours when you are at your rock bottom, who is willing to lend you hand & get you out of mud. I found out who truly loves me & willing to stand by me when I was in my worst shape of my life. my siblings, mom, spouse, our son were biggest motivator in me pushing hard to fight for life whi
HostAsha

HostAsha

2
Sue's Sentiments

Looking ahead but not too far

Every now and again something jolts me back to reality, today it was the post on Facebook by Steve Mallory announcing that our friend Denny (Dennis Jeffries) had died. Denny and I talked frequently during my years when he was a chat host on Survivor Chat and I was chat host for Caregiver Chat. He was also my friend on Facebook. Like so many of my friends on Facebook and Strokenet we never got to meet in person but nonetheless we were friends. In this modern age this will be so for many of our fr
swilkinson

swilkinson

4
SassyBetsy's Blog

I am sitting in a diaper.

I have a sinus infection,yeast infection,fungalinfection,and need to use a bipap machine but cannot breathe with my nose right now....   Nutshell of misery is enduring the virus that I am hosting in my body   My body that feels constant pain in my right leg for no reason except just because ...and it is not a belly ache as some mock.  NO it is burning at the stake pain, a live amputation. I Do So have a good pain tolerance!!!  I have been through labor and childbirth and a C
SassyBetsy

SassyBetsy

3
achandra's Blog

post traumetic growth or stress can occur after post traumetic event

As all of you aware by now I love watching Oprah's super soul sunday series on her OWN channel. I love listening spiritual awakening books or discussion, since I always learn something new from them even if its repeat. This Sunday was no different, when facebook COO sheryl Sandburg talking about her book lean in. Book she wrote after sudden death of her young husband while  exercising  on readmill  while family was vacationing in costa rica.  She talked about how post traumatic growth can also o
HostAsha

HostAsha

2
SassyBetsy's Blog

My Christmas miracle

After hearing the radiologist insist I return immediately for a biopsy my gut reaction was of course THIS is not happening. I asked for a 2nd opinion. She returned and said the head of the dept. Of this prestigious teaching medical university hospital in So Cal_ said two areas of interest and one should be done immediately and the other area could be checked at next available appt. Wow. It sounded serious. They even scheduled and all before insurance pre auth!   I cried. In front of th
SassyBetsy

SassyBetsy

3
achandra's Blog

what will be my one word for year 2019

Happy New year everyone. time is flying by so fast. 2018 got over so quickly, My 2018 was year to be grateful for, lot of new & challenging things happening in my life, though with those challenges also came  feeling confident in myself was biggest reward Though lot of times during year felt like giving up, but with not giving up, I see growth in myself. I grew more confident in my ability than inability. Now 2019 is here, year brings in lot of anticipation. I am scared & praying hard fo
HostAsha

HostAsha

11
My Journey Within

New Beginnings and Old History

I think 2019 could hold so many happy beginnings. I'm excited, a little scared, feel blessed and look forward...something I haven't done in a long time. I have never lived alone! Believe it or not I'm 47 and have always lived with someone else. For the first time ever I am really looking forward to living with just me. 🙂 (and Kitty) I'm trying to take in all the new things happening since I was approved for disability. SSI, Medicaid, SSDI, Medicare, retroactive benefits...it's all a lot. So I'm
HostTracy

HostTracy

6
Sue's Sentiments

Never a cool Yule

Tracy wrote in a reply to Janelle that it is hard to get her head around the fact that we in the southern hemisphere are in summer and a hot one at that. It makes the Christmas we have very different from what most of our readers are experiencing. And it is hard to imagine unless you can think of the Fourth of July and Christmas coming together. Then add mosquitoes, bush fires, heatstroke and crowds of people flocking to your town from the nearest big city and you are starting to get a picture o
swilkinson

swilkinson

9