• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,565 views
Gizmo, Gadget Guy

Bummed out

We just attended the funeral of my best male friend of over 30 years. We went thru so much together, he was at bedside when my first wife passed, I was with him thru his divorce, present wife and I were married in his house by the preacher that preached my first wife’s funeral, both he and his now widow asked me to counsel with them before they were married, etc, etc. he and his now widow were happily married for over 20 years. He was too young, only 62. He and I could and did talk every mont
GeorgeLesley

GeorgeLesley

1
SassyBetsy's Blog

A few bullets will tell it

And I mean the kind of things that are on PowerPoints or you know list those kind of things oh the word finding problems I have! Anyway I've missed everybody and mostly missed the days when this group was my daily meal. But maybe I can try to explain my last year.   * NOV I did the spinal trial and surgery was planned for April for perm electrode   *Then after Christmas I had Cellulitis over amd over for months *They said I have kidney disease amd heart failure disease d
SassyBetsy

SassyBetsy

3
nancyl's Blog

here I go again

Im not sure how to write this--- do I take the high road ? Or the low road... ? I guess my present situation is the "BOTH" situation. My brother has been very sick . He ultimately has been diagnosed with liver cancer with no hope of effective treatment. It is terminal. He was given approx. 4 months to live. Guess where he is at ? YUP- my house. He is a bachelor, so no wife or kids to lean on. My older sister don't want him dying at her house and the rest of the family just shrugged their shoulde
nancyl

nancyl

4
Sue's Sentiments

Where did that month go?

They do say as you get older time goes faster but October flew by. I didn't go anywhere or do anything different, I have just lived life day by day as I usually do. So why do I feel as if I just lost a month? When I blogged in September I didn't have the date for the next operation, the thyroid operation, now I know it will be in March 2020, a long wait but the side effects of the brain surgery should be just a distant memory by then. And I should be a lot better too if I embark on an exercise p
swilkinson

swilkinson

4
achandra's Blog

sun is always shining & just behind the cloud does not negate the fact that sun is still out there somewhere

Like I have mentioned before, weekend I usually spend in my spiritual learning, Saturday evening usually reserved for learning of our hindu scripture Bhagwad Geeta, whose teachings I find it very relevant for all human beings, & my Sunday mornings I love to spend in Oprah's super soul Sunday series where she brings in guest who can depart great teachings through their book  by sharing their experiences in life. It was surprising these both days teaching were about same thing like Sun is alwa
HostAsha

HostAsha

3
I'm Back

Temps are Cooler While Life Heats Up!

The temps are cooling off here - instead of triple digits, we're down in the mid-90s during the day but 70s at night.   The water in pool is staying around 75-80 degrees, so most of the time too chilly to swim unless I try mid-day when the sun is really hot.   Can't complain since my friends in ND are dealing with 2-3 ft. of snow right now and much colder weather.   🙂   Trying to find placement for Gary has not worked out well.   All of the suggestions from "A Place for Mom" were for p
SarahR

SarahR

4
achandra's Blog

I am becoming old person now

I am realizing I am becoming like my mom & old person, while watching all these new Indian movies I can't understand lyrics of songs & getting scandalized by amount of less clothes actors are wearing while dancing to these weird music whose sound is catchy, all pretty people but can't understand a thing they r singing & it is supposed to be Indian language I should understand. I need someone to tell me what did he sing lol. now I can see my  parents reaction when they used to see mov
HostAsha

HostAsha

5
achandra's Blog

do have something to whine about aww my ankle

I do have happy blissful life, though God don't want me to be cocky so have to throw in some discomforts in my life just to test out  whether I have mastered my own spiritual mambo jumbo or not lol. Anyway I have not, I am still in work in progress, & I have to whine my sorrows & joys all here, on Weekend hubby & I gone out for walking in woods near our home, unfortunately there was big party in park & hubby had to park car in field & somehow I missed hole in the ground &
HostAsha

HostAsha

2
Sue's Sentiments

Looking forward to more fun in life

I have started to get back to my old routine again, this has some good and some bad aspects. The good side is more socialising and going out when I want to go out. When I had the carers it was shopping once a week on Wednesday afternoons and coffee or lunch if someone volunteered to take me. I felt isolated and frustrated. Then after I saw the neurosurgery team and got permission to drive I regained my  freedom, now I can go where I want when I want.  The downside is that I am expected by the ch
swilkinson

swilkinson

3
achandra's Blog

trying to find limitless soul within you

I guess I attract towards spiritual teachings of all religions. recently in temple near our home they started discussion & lecture series on  hindu religion's most sacred book Bhagwad Gita which  teaches you how to live limitless in this limited world. It was quite a interesting session, where you meet very similar thinking people and trying to find contentment  and  deeper meaning in your life. Gita's teachings revolves around doing your duties according to roles you are playing in your lif
HostAsha

HostAsha

2
Ksmith's Blog

Oh my

I haven’t written for a while. But I had to write this for I am so happy?!?!?! I was sitting on my front yard (a common front yard for I live in a condo) and had my bathing suit top, shorts and on my stomach reading a good book. I was unaware of anything for I was deeply involved in the book. When I got up and re positioned my chair I head a “hello” and I couldn’t see for I as wearing my reading glasses. I took them off and he extended his hand and introduced his self. I can’t remember hi
ksmith

ksmith

8
my new reality

two years on

I just recently reached two years since my stroke. I have come quite a way in recovery, but not yet satisfied.I have explored and used many devices, programs, exercises, OT and PT, and all this has contributed to my present state of ability.I often hear"you look great" Or" you are doing well." But people don't see the daily struggle  to do simple life tasks, and  how hard it is to stay motivated to progress. I go to a gym....LA Fitness, every other day, on a regimen.When  I first went a yea
alansd

alansd

8
Sue's Sentiments

I'm a success

The title is a little ambiguous but I have just been to my 18 month check up for my lymph node dissection and my six week check up for the brain aneurysm clipping and both were determined to have been successfull. The area of the lymphoedema has not increased and is about the same as this time last year and the neurosurgery team is pleased with my mental condition. When I consider I have had three major operations in two years that is a miracle.   I have just started to drive again and
swilkinson

swilkinson

7
Gizmo, Gadget Guy

Clouds gathering

Been awhile since I blogged. Things happen. We have been busy, but more on that later. The huge issue for us now is that a very, very good friend of mine of over 30 years has lung cancer. He has finished chemotherapy and radiation. There has been some improvement but not much. I have done a fair amount of research on the subject and did not find much encouragement. I just do not have any other words to say about it at the moment.   on a brighter note, we just celebrated mum,s 97th birt
GeorgeLesley

GeorgeLesley

4
achandra's Blog

I should go & read my own blogs when I am having down days :)

I guess you can not have all good days every day sometime have to have down days, when you question every one's love for you & think you are all alone in this wide world, and should just quit trying & go & live life  without interacting with any one. ok so I was mad at hubby & brother thinking no one loves me  or appreciates me & only give me hard time even when I am working my butt off  stepping out of my comfort zone  & sill all they do is point out my shortcomings, may
HostAsha

HostAsha

1
achandra's Blog

something I learnt today on my super soul sunday series better keep in mind for my own sanity

As you guys know I am sucker for Oprah's super soul Sunday series, & learn valuable life lessons from it.  As I have mentioned before I feel loved by feeling of appreciation expressed by my family members. on yesterday's show guest said something very important, whatever we always wish for is usually never enough, so if you wish for more money, however amount of money you get its never enough, same way with all other items, if you always feel loved by words of appreciation its never going to
HostAsha

HostAsha

2
achandra's Blog

I am so relieved we did not screw it up

I am so relieved my illness did not screw it up our son's life. I stroked at age of 34 when our son was just 7, and I went through severe depression for a year, luckily hubby held our fort till I picked up pieces of my shattered dream & broken life & started building our new normal with help of my family & friends who chose to stay in & some new friends came in. our son saw up close & personal how doctors helped our family rebuild our life together. kido shadowed lot of my do
HostAsha

HostAsha

1
I'm Back

Tough Decisions

It's been a little over a week since Gary had another fall.   It's about the sixth time since we moved here two years ago.   He doesn't get injured in the falls because I'm always there to break the fall, but can't always lift his dead weight to avoid it when he starts going down.   This last time, he waited until right after his caregiver left to inform me he needed to use the toilet.  She had let him sit and watch t.v. for several hours while she did some dusting and cleaning floors and then d
SarahR

SarahR

3
Sue's Sentiments

Getting out a bit more.

I walked into church today at Bateau Bay Anglican Church and five people lined up and gave me a hug. It felt good to be welcomed back after being away for three weeks. Some of the church people I saw last week when the  care worker escorted me to the shopping centre, others I had spoken to on the phone. The lady who often sits beside me took a card out of her handbag and gave it to me apologising for forgetting to post it. It is something I have done myself so I just smiled and thanked her.
swilkinson

swilkinson

4
achandra's Blog

not feeling great about life in general right now

I am usually upbeat person, but last few days have thrown me off the track & I am not feeling so great about my life in general. ok now where do I begin, It started with my PMS, my blister which makes it harder to walk & trying something new at work & royally stuck because I don't know where to turn for help.   Now you got gist of my confused life, I still have lot to be thankful  for amazing family spouse, son, brother, sisters, mom, nieces & list is endless but I stil
HostAsha

HostAsha

7
Sue's Sentiments

Back home after the operation

I arrived back home from hospital this afternoon. The operation to clip the aneurysm has been deemed a great success. When they said a headache for two weeks  I wasn't thinking of a face ache but that is what I have. The medical team have been thrilled with the success of the operation in " an older woman". I must say I am pretty pleased myself. I will endeavour to post a longer blog at a future time. I just wanted to let you all know that our prayers were answered and that apart from heavy brui
swilkinson

swilkinson

5
nancyl's Blog

place to keep track

one of the most useful aspects of StrokeNet for me has been the blogging its therapeutic and useful to see where we have been in the journey. And in general just to keep track of the daily SH-T that happens . Perhaps someone reads about our issues and feels less alone on the wonderful stroke road. So my entry is-- Dan pulled a oldie but a goodie. He tried jumping out of the car while out youngest was taking him home. Me and a girlfriend decided to have a night out , Dan was at my work, full
nancyl

nancyl

4