• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

Blogs

Featured Entries

  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,595 views
Ksmith's Blog

why is it so hard to eat

Eating healthy can be challenging especially when I have multiple food allergies.  Lactose, a common allergy to the enzymes often found in dairy products and Soy, which is found in EVERYTHING. So I’ve learned to make my own “Buttery Spread’ which isn’t always a butter but a combination of coconut milk and millet. I could go out to buy the butter that is Lactose and Soy free but for a little tub can cost me anywhere from $4.00 to $6.00, and being on a fixed income, is too much for my wallet. I
ksmith

ksmith

5
achandra's Blog

some days good some days not so much but oh well I m still here

I am by nature fun loving person like to be always laughing cracking jokes on myself or hubby. hubby can find good in any dire situation where as I can not, but having him by my side, I know we can get through anything in the world. any how some days I feel so grateful to be still here & love my life, some days feels like blah. I guess that is how life is for every one. In summer hubby usually play volleyball with his friends in park while I walk in their beautiful walking trail of park. ran
HostAsha

HostAsha

5
susancm's Blog

Spring, my favorite season...

I love Spring!  New life, warmer weather, no insects... then why am I so miserable?  I figured it out; when it's either hot and humid or cold and icy, I don't mind being inside; heck I prefer it!    I am physically unable to do much of anything.  Rake?  Pull dead grass?  Take a drive somewhere with the dog and hike?  Nope, nope and nope. I'm usually able to accept my new life, yet I still have days when I want to shake my fist to the sky and yell, "THIS REALLY SUCKS!"   So I
smarshall

smarshall

2
My Journey Within

Prey

This is poetry I wrote this morning. It is dark and not beautiful but this is how I express my heartache. Inspired by something happening in my life right now. Please close if you are bothered I will speak sunshine another day.   Prey   Round and round and round we go, A cursed circle with no control. Weaving a web as it moves around, Looking for trusting hearts and souls to be found. It spins with no effort and catches its' prey, Waiting and lying an
HostTracy

HostTracy

6
My son's Gift

I miss baby girl

Caretaking was too much for my two beautiful superheroes in their young 20s. I would not have done well either. But my kids did help me recover and be realistic about tough stuff. Many memories of my kids wheeling me to class. one professor told me to look at the audience and not my tablet. lol I could hardly see to read. But I got my daughter grown up a tiny bit more just enough to want to fly off on her own. I am proud of both of my kids who saved me in some way. Their love sustains me. Oh it
SassyBetsy

SassyBetsy

2
My Journey Within

Planning my Plantings

Believe it or not last I think I was more motivated to get out there and plant some things and really be a caretaker myself. This year I am still planning and I am going to do it again...just flowers and herbs. I have had to talk to myself more about it and remind myself how I loved it. I already got flat leaf parsley, rosemary and oregano and my strawberry plant from last year made it through the winter and has new growth even blooming a bit. My daughter has planned today to pick me up so we ca
HostTracy

HostTracy

2
Strokewife's Blog

Ten Thousand Angels

It was a moment in early fall when my husband, like he always did on his day off from work, went outside to cut the grass.  As he stepped out onto the back patio he heard the sound of humming. Perhaps it could be described as a gentle whispering of the wind like that through a whistle or more specifically a tone from a tuning fork. Regardless, my husband looked up into the sky thinking there might be some sort of spaceship overhead causing the hypnotic sound he was hearing.  But, instead, he wit
Strokewife

Strokewife

1
Ksmith's Blog

school all over again

I haven’t blogged in a while for it’s a struggle for me. I lose focus very easily and when I say that, I mean it may have taken me a few times to write this. I have always had an attention problem. “To much sugar” or “She is flighty” is what I always heard growing up from people but I actually had ADHD and comprehending  challenges and they weren’t talked about in the 70’s and 80’s so the older I got I struggled in school and in social situations a lot. It was hard when I could do the class work
ksmith

ksmith

2
oc1dean's Blog

Years pass

It has been years since posting here or replying to content. Too busy living life. Just got back from a two week trip to Spain. I keep busy updating my personal blog and writing chapters in a collaborative stroke book.  I barely have enough time writing 5-25 posts a day to visit stroke forums along with a full time job.  Deans' Stroke Musings for those who aren't offended by swearing. 11 years and having the time of my life.  My 10,000 step a day goal has been going strong for 13 weeks.
dreinke

dreinke

2
achandra's Blog

this cat do have 9 life

Yesterday We had major head on collision car accident. airbags from all sides popped up luckily we just got whiplash injury &back & neck pain. It was surprising we came out of unscathed from that accident, & still here to count our blessings. This was my new Subaru car with all safety feature which saved us  from getting seriously hurt. looking at my all past accidents, stroke, it feels like I am cat with nine lives & feel invincible :D. I have gotten hit by 18 wheelers & did
HostAsha

HostAsha

6
my mutterings

bored

I'm just sitting here bored out of my mind.  there is no one down in the Social Room I want to visit with. (I live in an Independent Living Senior apartment building-I'm the youngest one here by a few years).  There isn't anything on tv except for all the controversy surrounding "you know who" for a while until baseball comes on.  was supposed to have an MRI yesterday but the machine broke Monday night so now I have to wait until May1.  Have a 48 hour EEG coming up next Mon-Wed. decided to stop
ts4759

ts4759

9
thejule1's Blog

Update on Larry

I'm ashamed to say I have not been on here for a long time.  Larry has had some health issues lately.  I was in the hospital overnight for the first time in 30 years due to a blood pressure problem.  Luckily my son was able to be here to take care of Larry.  Fortunately I was only in the hospital for one night but I need to plan a "what if" should I be unable to take care of him for a longer period next time.  You never know what is around the corner.  For the second time since the end of 2
thejule1

thejule1

1
Stockflyer's Blog of Success

Neurologist - Social Security - Tomatoes

Hi, I thought I would write more often, but this seems to be the pace. I stopped going to our Older Persons Center (OPC) where I would work out on the rehab exercise machines.  I was trying to see if I could get off Ambien and get my head to quit hurting all the time.  It is so tiring.  So far no luck.  I went to a new neurologist last month who specializes in chronic head aches to see if there is another approach.  She has me on Pamelor which is supposed to make you sleepy.  Not me, j
stockflyer

stockflyer

2
Sue's Sentiments

Connections (meeting Elizabeth)

Life has many ways of connecting people. I have just been up to visit my daughter and her family for a few days. It had been three months since I had been up there, I get entangled in issues locally and it soaks up my time.  I have to reset my priorities.  The weather was what we have been having here, brilliant sunshine followed by pouring rain, the left over vestiges of a cyclone in Northern Queensland. It has been wet most of the month of March and now April is looking as if the weather will
swilkinson

swilkinson

1
My Journey Within

Changing Times

What can I say it has been a rough week. This week for some reason I fell depressed and anxious...to the point where I did nothing for 4 days or maybe 5. I did see my Psychiatrist and we discussed all of these issues. For the first time since I have seen Dr. Chalfant, I broke down in his office. I just couldn't stop it from coming and my answers seemed to all be "I don't know". Even on beautiful days getting out of bed or just not sleeping was a huge challenge. I have been doing a lot of thinkin
HostTracy

HostTracy

3
Ksmith's Blog

So sad

While I was out walking  Saturday afternoon, I received a text from a friend from high school, an in Florida, that a fellow classmate was not doing well and was in the hospital and on life support.  This guy, who was a little older than me, and I used to play tennis and racquetball after school and after I was done with cheerleading practice every day without fail. This kid was one of my father's students, he taught at the same school I went to, and continued to be even after we graduated. He li
ksmith

ksmith

6
Gizmo, Gadget Guy

Exciting news! For us anyway

Lesley is preparing to go back to New Zealand next week, April 3. She will be there three weeks. Then, surprise, surprise, she will be selling the house and bringing mum back to live with is permanently! Mum has initiated the conversation this time all by herself. She is now lonely and feels deserted. The two great grand daughters have both passed thru her house on short term stays in the past 8 months and both are busy living their lives. One is 20, the other 18. So, school, jobs, boys, etc are
GeorgeLesley

GeorgeLesley

5
SassyBetsy's Blog

Just Today

I guess I do not know much about living just today but at dinner as I sat in the dining room eating with some residents and one caregiver of one resident who has become a friend....I looked around and realized I have been here comfortable with the fact I am in the middle of a place in which so many personalities dwell in their own story lines as staff or patient and I belong....maybe not my choosing...but I felt warm fuzzy love for my companions in the room. I have been away dining in my room wi
SassyBetsy

SassyBetsy

1
Sue's Sentiments

Caring for others

Definitely not looking forward to winter. We go off daylight saving next weekend and I know suddenly it will be dark at 5.30pm again. As I am a six hour sleeper that means a lot of long dark nights alone. I just love daylight saving as it means long days when I can be busy and still have time to sit on the verandah and read until the sun goes down, have a late evening meal, and go to bed just before midnight feeling that I have done something worthwhile with my time. I have a lot of hand work to
swilkinson

swilkinson

1
achandra's Blog

another AHA moment on super soul sunday

Sunday is my favorite day. It is my own spiritual  awakening day with super soul Sunday. I love waking up late on Sunday morning & start my day with nice cup of coffee first with political shows & then enjoy my super soul sunday on oprah's OWN channel to cleanse myself of all dirtiness of politics lol. As you all know I  take whatever I like from all religions & believe all paths lead to one Supreme God.  I am not religious person though I am spiritual person.  According to our Hindu
HostAsha

HostAsha

3
SassyBetsy's Blog

Someone Like Me

I wonder if I am the only one who had to go into a nursing home and if I will ever get to live a normal life again. That is why I push and do not accept it when they say oh here is a cane now practice therapy at home. I need to get out of here and have my therapy days. This past therapy the PT said if I do these 3 exercises everyday I will improve. I was not impressed that some squats and headturns is enough. He hurried me along recommending a cane but I know I am even unsteady with my 3 wheeler
SassyBetsy

SassyBetsy

3
SassyBetsy's Blog

Someone Like Me

I wonder if I am the only one who had to go into a nursing home and if I will ever get to live a normal life again. That is why I push and do not accept it when they say oh here is a cane now practice therapy at home. I need to get out of here and have my therapy days. This past therapy the PT said if I do these 3 exercises everyday I will improve. I was not impressed that some squats and headturns is enough. He hurried me along recommending a cane but I know I am even unsteady with my 3 wheeler
SassyBetsy

SassyBetsy

0