• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,555 views
spacie1's Blog

Hypnotherapy Seems to Be Helping

While I still have a lot of work to do on the relaxation efforts and practicing my self-hypnosis to go to my happy place when I need to de-stress, at least the weight loss part of the sessions have helped. I'm on my own until I need a booster session, but so far - one month into this and I'm down 16 lb. I was hoping for 20 but I'll work harder this next month. December won't be quite as challenging since we won't do a huge gathering with tons of food like our son did for Thanksgiving. I
srademacher

srademacher

5
Sue's Sentiments

Angels without wings

We all have angels in our lives, not the heavenly kind but the earthly kind, the people who bring us hope. I went to my second most favorite day of the year, the day of the WAGS (Working Age group for Stroke) Christmas party. This is my second favorite day because it is a festive and fabulous day of friendship, food and dancing! Today we had a large gathering, survivors, caregivers and some supportive friends or family members and yes, there was good food, yes, there was a lot of chat and laught
swilkinson

swilkinson

2
SassyBetsy's Blog

Fearless

In the morning I will get 2nd Radiofrequency Ablation. I am exhausted since my poor roomie with dementia loves to be craziest at night. I have a lovely patio room I decorated with my art and collages so I choose not to switch rooms as this SNF offers as a solution regardless of the fact she verbally torments me. In fact when I holla back to stfu then I abuse her because I can walk. So on that day the director informed me all that I fearlessly threw her out and refused to sign a paper that inform
SassyBetsy

SassyBetsy

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SassyBetsy's Blog

Getting Things

I need things. I talked my way into having my doc prescribe it, the insurance to pay for it yet now just getting it is making me walk on nails. and why do they backorder something across country. But I have a case manager that I beg to handle things because people hear my slower speech and they think i am brain damaged. well I am. but I cry easily. I forget midsentence. I cannot calm down when they treat me disrespectfully. I hang up. I say next time I will be ok.   I am fortunate to get a new
SassyBetsy

SassyBetsy

2
Jayallen's Blog amazing days

Annual CT done

Hesitate in both beyond surgeon and neurologist have copies. As I was reviewing at library a friend who is a RN.   She said the most important thing is the findings. Comparison to past few years of CT.   "Stable and unchanged examination.   Yes I'm doing the happy dance but well aware docsnay see something in the report that I don't understand.   Peace out and have a great day. Jay
Jayallen

Jayallen

4
My Journey Within

To be really Jolly or not as Jolly that is the Question...

Its been about 3 weeks since my hysterectomy and I am feeling better and better. This time of year is hard for me though both before and after the stroke. 1st it's never been the same since my divorce and 2nd I had my first super set back just a couple of weeks before Christmas when I had a mega panic attack and had psychogenic stuttering constant for 1 and half months last year. This year it's all about the finances...barely making ends meet is hard during a holiday. Well I have decided I have
HostTracy

HostTracy

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Ksmith's Blog

life change

So by now, everybody knows that when you have a stroke, or any medical condition, that doesn't allow you to move that well that weight becomes an issue. Well I'm about 110lbs over weight. I've tried so many diets as well as seeking the advice of multiple nutritionists and the verdict is I eat very healthy overall but I'm not eating enough so my body is going into starvation mode,my body feels i'm not getting enough calories so it stores all the calories I do eat and turns that into fat...like it
ksmith

ksmith

3
achandra's Blog

keep on adjusting your sail to wind of change in your life

In my last blog I was talking about adjusting to all new changes in our life, agreed they were just inconveniences and not disaster. Sue's comment on my last blog is about adjusting our sail to wind of change in our life was so perfect thanks. also read another beautiful quote on change "The art of life lies in a constant readjustment to our surroundings" by kakuza okakura. All these beautiful quotes gives me strength to adjust with new change. As I am growing older & gaining lot of life ex
HostAsha

HostAsha

5
fking's Blog

Christmas Is Just Around The Corner And Over The Hill

It's almost that time of the year again while many folks are still shopping for bargains where ever they can find them...... Yes Christmas is coming pretty fast and the weather hasn't changed very much in my neck of the woods..... Football games are being played while many folks have done their shopping for gifts and decorations for their homes, roof tops and yards..... It's an annual thing many folks look forward to doing each Christmas...... Of course the children like to help get the house r
fking

fking

5
nancyl's Blog

Continuing with ECT

Still doing ECT, It has helped me a great deal. I travel 100 miles 2x a week for this treatment. So it is time consuming and money consuming. But I sure do feel better. Not cured, but improved. We had Dan overnight at Aprils for 2 nights over thanksgiving. He so enjoyed himself. If he could have just been like this at home. woulda, shoulda, coulda..... not meant to be. He is well taken care of between the the nursing home staff and myself. He is a few of the staffs "favorite". He is also a few o
nancyl

nancyl

5
fking's Blog

Well I survived Thanksgiving Day

Life goes on and I got plenty rest the last few days now I'm ready to watch all the football games they can show on TV for the next few days..... I'm not going out shopping can't fight the big crowds and bargain hunters that will bust in the doors early as possible..... I guess that gets folks out the house but I stay home anyway so I am OK with that..... I just enjoy being home with the two little dogs as they keep me company all the time.....   Then the lady comes in at 9am to to fix me foo
fking

fking

7
Sue's Sentiments

Don't play B17

One of the painful aspects of being a widow is flashbacks. Flashbacks make you cry, they destroy the happiness of the moment and leave you feeling drained. I was at a Christmas party and suddenly in the background there is one of the songs Ray and I used to dance to when we were young, a "golden oldie", the room goes blank around me and there I am just missing him so much, that feeling of being loved and protected and safe in his arms. No-one puts their arms around me like that any more. I am lu
swilkinson

swilkinson

3
spacie1's Blog

Moving Forward

With Thanksgiving coming up this week, I have had to reflect on all the things I have to be thankful for. Despite the fact that this has not been a good year for us with the loss of my Mom in February and our youngest son in June, we still are blessed to be here and doing okay......not great, but okay works for me!   While suffering from the depression that goes along with grieving, I did an awful lot of stress eating, wasn't sleeping well, and experiencing some very intense knee pain. I had t
srademacher

srademacher

8
ruthwilliam's Blog

Retirement

I have been retired for 5 months. It is funny but I do not have time to miss work. People ask me occasionally if zi miss work. I tell them that I am too busy taking care of me husband to miss work. I find that I am, able to keep myself, William and our three dogs in better health. I make it to the gym daily for myself. Usually 3 hours per day on me. Them an hour walk in the park for the dogs. Then 1 hour if water therapy for William I am tired by afternoon. I get the house and laund
ruthwilliam

ruthwilliam

4
My Journey Within

I Am Feeling Really Blessed...

I went to my oncologist today and she said everything looks awesome and is healing up very well. She took a look at all my incisions from surgery and said they look great. I asked her about the one in my belly button and she sorta hesitated and said I don't think I made an incision in your belly button but lets take a look. I explained to her that had a tiny wee bit of bleeding from there on the first day home and then she oh yes I remember you had an umbilical hernia. I fixed that so it shouldn
HostTracy

HostTracy

3
My Journey Within

Success and Improving!!!

It's been about 9 days since I had my complete hysterectomy via Laprascope. So I have 5 incisions in my tummy...3 down low, one up high and to the right if you are looking at me and one hidden in my belly button. The recovery hasn't been very bad at all. I do feel like some alien being with 5 arms was messing with my insides. It still hurts a little when I move just right or sit up real straight or turn over in bed but it's tolerable. I have thought many times about my insides over the past week
HostTracy

HostTracy

2
achandra's Blog

we are back from our short vacation & trying to deal with all changes

we just returned from our week long vacation to India. lot of things are changing so mood at home was somber. government cancelled 500-1000 rupees bill to curb black market. Every one was worried on how to get their money deposited in bank without getting into trouble or paying high taxes on it. In India most of transaction happens using cash only. so mood was somber. once we returned home we changed our cable service provider went from cable service to fios so that added more change on how I ac
HostAsha

HostAsha

2
SweetMom's Blog

Do You Believe in Angels?

Do You Believe in Angels? I do, and this is why: When I was 12 years old, we had just moved half way across the country from California to Texas. It was my 3 biological siblings and my stepbrother, my mom and my stepfather. My stepsister still lived in California. We were a Military family. Disciplined. My little brother and I had just began to walk back and forth to school. (Remember, its the 1960's) One day while I was walking home for lunch, I accidentally went out the wrong gate. I couldn't
SweetMom

SweetMom

15
Jayallen's Blog amazing days

No More Counting the months

this past Saturday November 12th I celebrated my 3rd anniversary as a member of the exclusive Club of stroke survivors I have decided that there's no sense counting months anymore I'm just going to tell me yours must be I'm moving further along on my road of renewal God bless and be well my friends
Jayallen

Jayallen

1
Strokewife's Blog

Sunset

The evening started off just like any other evening. But on this particular night the sky painted itself with an array of pink, salmon, lilac, gold, orange, and vanilla. We sat and ate peanut butter and jelly sandwiches, chips, and a fruit cup all while we admired the continual changing colors of the sky. While we sat next to one another both of us were speechless. We just looked and awed at the masterpiece that was laid before us. Simply it took our breath away.   It has been a while since I
Strokewife

Strokewife

1
Sue's Sentiments

A word to the caregivers

You know those days when you sit and wonder what life is all about, why this is happening to you and yours and why not to someone else who of course is nasty, horrible and deserves the suffering? If you answer "no" then I know I have met a saint!!! because I think we all feel like this at some time. Well I am here to tell you that whatever you are experiencing is building you into a better, more compassionate and loving person. It is opening your eyes to the suffering in the world around you
swilkinson

swilkinson

1