• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,556 views
My Journey Within

Surgery Update

I just wanted to let those who knew about my surgery That I am doing well and the surgery went really great. They were able to do laproscopic and they found no cancer! My Doctor didn't expect a good outcome so she was really pleasantly surprised. That is all for now i'm pretty loopy from the pain med. :hug:
HostTracy

HostTracy

3
My Journey Within

The nerves are beginning to fire...I can do this!

It's been a mostly uncomplicated week and it's getting cooler. I have been doing a lot of "things" keeping my mind off THE DAY. I really have done well. Today I feel it a bit. The unanswered questions about what they will find. Will I have laparascopic or will they have to do an open incision surgery. I won't know until I wake up. I've had to be off my aspirin to prepare. I just don't want to go backwards (stroke wise) and I'm afraid of having another. I don't want to have to fight even the thou
HostTracy

HostTracy

4
Sue's Sentiments

Road menders, policemen and a fisherman or two

On Tuesday it was the Big Race, the Melbourne Cup,so many people watch it that it is called the Race that Stops a Nation here. We have entries from all over the world. The Godolphin family who own Emirates Airlines fielded five horses this year, a marvel really in all kinds of ways. I didn't back a horse this year, too busy with other things but made sure I was home for the race itself. It is a Aussie thing to do. There are sweeps in the offices and my first memory of a sweep was in senior h
swilkinson

swilkinson

3
fking's Blog

This Is Going To Sound Crazy!

The more I think and feel I am normal the more I find out I am not!!!! My whole left side head to toes does not work normally..... As I have said I am paralyzed totally on left side!!! This morning my left thigh muscle will not work so walking with a cane is not happening today.... I have no more appointments to make for a week or two so that's good news.... At least the two little dogs are near me all day for company..... They know to go upstairs and use their pad to relieve themselves then com
fking

fking

6
Jayallen's Blog amazing days

Old age, cognitive impairment, or 30 years of marriage.?

Yesterday waiting for the bus at the main transfer, I was talking ,as always, with another patron, a young woman. Just small talk about riding the bus the weather etc. Then she suddenly asked do you have someone, with a pause I waited for the rest of the question. I final said,im sorry I don't understand the question. She daid do you have someone a girlfriend or wife? I said yes I have a wife She replied too bad because I would be interested. I told her it was flattering. Well it's tru
Jayallen

Jayallen

5
scottm's Blog

A good status change

I've been waiting to see if my change of physical status was a transitory thing we get from time to time or more long term. Seems at this point it may be more of a long term healing effect.   Every since this started my right side has been weak and very prone to uncoordinated movement. However, for the last couple weeks my right leg has been more coordinated and controlled in its movements which means my gait is immensely improved. I have to temper that with how quickly I degrade when fatigue
scottm

scottm

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My Journey Within

Counting Down the Days til Surgery

I haven't written in about a week...been trying to grasp all the things that have happened in the last week. The count is on...just 10 more days until surgery day. I think it's going to be a long wait but I guarantee it will be here quicker than I expect. Especially because I would like to prepare somewhat: Make ahead dinners, easy stuff for me when I'm here alone, get the washing all done and the house in good order, place things near my bedside because i think the first few days I will feel ki
HostTracy

HostTracy

6
Crusader8's Blog

Abandoned and disheartened

I had my first stroke in April 2016 in my home in Arcadia Ca. I tried to downplay what was happening as the symptoms were not sever. None the less, my wife called 911. I spent the night in the hospital and was told the following day that I indeed suffered a stroke. However minor, it was still a stroke. No permanent or temporary physical impairments. Just your run of the mill brain injury. I had a flight scheduled to return to Iowa, where I still own a home and my daughter lives, the following w
Crusader8

Crusader8

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Jayallen's Blog amazing days

40th anniversity celebration

Wow what an amazing event. It was so good to so many former co-workers, so many hugs. A special acknowledgement, from the Executive Director. One of a few that saw me in the hospital. "So Glad you could make it and we all miss you."   I had to fight back the tears, once again so blessed and humbled.
Jayallen

Jayallen

2
fking's Blog

How Many Years People Been Having Strokes????

I could probably look it up someplace but this way I will probably get more answers!!!!!!!!!   I am my parents 18th and last child and no one in the family ever suffered a stroke as they all had to work hard in the fields farming different crops each year to help our father make a living so all of us could eat and buy a few clothes to wear.... It was a bit different by the time I got to be school age so I was able to get a new bicycle and a BB gun that I had to work hard to get.....   I coul
fking

fking

2
Jayallen's Blog amazing days

Giving a friend an opportunity to smile during a dark day

A good friend of mine has been sick for a couple of weeks a couple of her children as well as well I had to top it all off on Monday afternoon her mother passed away I sent her a message today offering my condolences and I did tell her if you need anything you let me know although I don't know how much assistance I can be I have no money I travel by bus I can't see and I walk really slow She is one of the regular bus drivers I see on a daily basis I'm sure she said she sent a response back and
Jayallen

Jayallen

1
Stockflyer's Blog of Success

One Year Reunion

Hi,   The hospital where I went when I had my stroke and spent a couple weeks on the rehab floor had their annual rehab "party". I thought it may be a little lame but it was really nice. I didn't see any who was there when I was as a patient but I got to see a lot of the nurses, aids, doctors. I think they like to see how far everyone had come. It must feel pretty good to see the help you gave others.   I was able to express my gratitude to those who really helped me. My OT was really
stockflyer

stockflyer

6
Sue's Sentiments

Spring is a challenging time of the year

For those that don't know I have stepped down from hosting Caregiver Chat. I was a chat host for eleven years but four years out from Ray's passing I thought it time to step down. I do miss it and think fondly of all the many people who over the years I have chatted to. A few of them are on my Facebook page so I do see what they are doing, but on Facebook we only put the highs,not the lows, so I hope that are all well and coping with life. I know as a caregiver that life is not easy as I oft
swilkinson

swilkinson

3
achandra's Blog

ripping joy of life when I m stepping out of my comfort zone

Twelve years ago in 2004 when I suffered stroke at age of 34 after delivering premature baby & loosing her day later & then suffering stroke day later which paralyzed on my left side fully. I thought I would never find joy in living again. It felt like with such a big loss how any one can recover from that. Though being young & having great family support & very young son I found my will to fight on, it was really one day at a time. It was horrible period, It scared me when I loo
HostAsha

HostAsha

5
fking's Blog

Stroke, stroke it's been 12 years for me!!!!

Any of you ever get to that point in your life where you just get tired of being and feeling like you do since you had the stroke???? Well I have reached that point in my life after 12 years with this stroke....... Some of you may remember back in 2007 when I was a volunteer right here at Stroke Net for a year or so????? Well that seems like a long time ago now and I'm at that point in life where I just want to stay home and start reading books and see how much farther my body will heal from thi
fking

fking

2
Jayallen's Blog amazing days

Recognition

Talking with a few nurses about the most recent CVA patient. One asked if I could stop in room 777. I asked if it was a CVA. No he has cancer started chemo alone snd really struggling. You are always so positive maybe it will help him. We chatted and I told him I would be back in a few day. I'd like to check in on you if you don't mind. Hr said I'd love I look forward to seeing you.   It is such a blessing that my positive attitude is recognized and appreciated by the nurses.   I love havi
Jayallen

Jayallen

0
Jayallen's Blog amazing days

Wow humbled,blessed,and amazed

Yesterday the volunteer organization at the hospital decided to pay for my bus pass for the next 3 months wow it's not a lot of money but when you have no money it's huge. Today when I stop for my morning coffee I threw my couple dollars and exact change on the counter and the barista said wait wait wait I thought maybe the prices gone up and he said nope I've got a note here that somebody's paid for your coffee for the next 5 days I truly do get by with a Little Help from My Friends. My last
Jayallen

Jayallen

10
My Journey Within

Finally past this week and on to the next...

This week was my uncle's funeral. He passed Saturday after a year long fight with Cancer and had his service and burial on Tuesday. It was a very good service and focused on my Uncle Darrell's life instead of death. The casket was closed and a beautiful afghan rested on top with some his happiest pictures blown up and placed right into the fabric of the afghan. We actually heard many sounds of laughter as people talked about Darrell because he was always smiling and teasing about something. Many
HostTracy

HostTracy

7
CagedBird's Blog

October 18

Today is my stroke anniversary but Im glad the day is almost over. I woke up feeling so depressed. Instead of celebrating this milestone and all the great things that have happened this year (mainly just getting my wrist straight), I just kept wondering what my life would be like if I never had the stroke. I don't want to hear any encouragement. I know I've accomplished so much, life could be worse, just be thankful, etc. I have just been in a bad mood/on the verge of tears all day.   I have
CagedBird

CagedBird

5
fking's Blog

Still Alive But Not In Therapy

They dropped me from therapy so I'm home daily but making all my appointments with my heart doctor and doing the very best I can on my own accord.... I exercise at home daily and doing pretty good I think after all it has been 12 years at this point in my life so I'm OK with life as I live it.... My left side is still paralyzed my walking is not good but I'm not complaining..... It's just the way life is and I'm alright with everything.....   I'm waiting to hit the Lottery or go back to work a
fking

fking

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Jayallen's Blog amazing days

Raining Sunday Blues

I was feeling isolated on a little lonely I was feeling isolated a little lonely I realized I need to take a look its own my own writing and then I thought to myself WWRS that is: what would Rachel say rachel is the counselor I have been seeing for just over a year and I know what she would tell me about my mini pitty party. She would say pull your big boy pants up and get over it. Said with compassion and empathy, but that's what I needed today. that thought made me smile and laugh to myse
Jayallen

Jayallen

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