• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,556 views
achandra's Blog

AHA moment about my feeling towards Change in life

Other day I was just thinking about all changes they have come in my life. Some did feel like wildfires in forest though it felt pointless at the time when I was going through it, but now looking back at it, It feels like it was perfect timing. Sometimes you need that kind of change which feels like wildfires in your life to burn dead & dry trees & weed so that something fresh can be reborn at its place. yes in wildfire along with dead weeds some of green grass can be burned too but th
HostAsha

HostAsha

5
Sue's Sentiments

Families, funerals and future life plans

The south wind has blown snow onto our Snowy Mountains and so taking a trip to the ski fields is now possible or so one of Ray's sister-in-laws told me, a reason we cannot meet up for coffee for a while. I still hear from another SIL and two of his cousins. I have tried to keep in touch with Ray's family, I was always the one keeping them updated with what was happening to him anyway, even if the Christmas cards were signed “Love from Ray and Sue” it was always me that wrote them and posted them
swilkinson

swilkinson

2
Ksmith's Blog

losing children ....

This is probably one of the most difficult things I’ve blogged about. As I blogged the other day, my family got together for a family reunion as well as a memorial service for my grandparents whom passed away, each separately but joined together once again. I flew my oldest son up from Florida for a fast weekend visit for he was extremely close with my grandparents as well. Seeing him again was great and trying to remember he was twenty-two was a challenge especially when he would have a beer
ksmith

ksmith

5
achandra's Blog

I am going to pull my hair out & someone's else if I don't find solution

Windows is frustrating me for past few days. I m saving my file on desktop & when trying to find it back to send in email I can't seem to find file from my windows folder, I know I should be able to resolve the problem since I myself am nerd & it frustrates me no end that I m not able to crack this mystery & solve my problem. So Some days I feel like smart Alec when I figure something out & some day feel like stupid Alec. So for past two days feeling like Stupid Alec & I hat
HostAsha

HostAsha

5
Ksmith's Blog

Losing beautiful souls

I was very fortunate to have my grandparents in my life for 42 years, yet sadly I’m not aware of most of those years. This weekend, my family gathered at the family plot which my grandparents had their headstone and plot already there for many years, for a service to lay them to rest together. My grandmother was in one of her Beatrix Potter figurines while my grandfather was in a lovely urn. From what my family shares, it was lovely. I wasn’t there until they were leaving for I was to pick up my
ksmith

ksmith

8
Jayallen's Blog amazing days

Reality check and unconditional love

My five-year-old grandson was over the other day I've been out swimming as I started to enter the house he said Grandpa I want you to be careful when you walk in here because I'm playing with these little toys and grandma told me you can't see real good and I just don't want you to get hurt. I don't know when I expected to break the news to my grandson about my visual impairment what a blessing to hear those words come out of a 5 year old mouth it was a a gut check the absolute blessing along w
Jayallen

Jayallen

3
Jayallen's Blog amazing days

I can't remember

I keep forgetting that I have really bad memory in other words I don't remember that I don't remember. I try that utilizes list a lot unfortunately I was at the library today and I had failed to record a list of things I wanted to get done so I did not accomplish what I set out to do. I had to return to the library to print off a two documents that needed when I was done I've managed to leave my flash drive in the pubic computer at the library   thankfully I call the library in a nice yo
Jayallen

Jayallen

6
Ksmith's Blog

2nd hand memories

I’m getting better at living my life in the now and not be so distracted by the limitations of my stroke. Living on my own and not sharing my life with anyone is also opening my inner self and not be so afraid of life outside of marriage. And to be honest….it’s pretty awesome. Yeah the money is tight and learning to live without having a job that gives me a paycheck is pretty difficult to swallow sometimes but I begin to think of the other survivors and I’m thankful. Thankful to have my own plac
ksmith

ksmith

7
Sue's Sentiments

Glad to be alive

Some days I am glad to be alive, to see the sun, feel the breeze, talk, laugh, sing, other days I take it all for granted. I am aware that I am slowing down. I turned the alarm clock off at 7.15am this morning and turned back to look at the clock and it was 8am, I had just daydreamed 45 minutes away! Of course it is winter and much harder to get out from under the covers but back in the last decade I was always up at 6am, summer, winter, autumn and spring. With someone to look after there w
swilkinson

swilkinson

4
Jayallen's Blog amazing days

There but by the grace of God

As I ride the bus daily I am struck by those using wheelchair or scooters I pause a thank God for the recovery upto now and continued recovery moving forward. I say to myself there but by the grace of God go I.   My life, as frustratrating as it can be at times, is such a blessing.   Be blessed and be a blessing, Jay
Jayallen

Jayallen

1
Jayallen's Blog amazing days

Sushi anyone

A lovely silent sunrise disturbed by the neighborhood bully scavengers three black crows Huey Dewey and Louie minus the rice and the wrap. What a blessing to be able to be here to witness this Be blessed and be a blessing. Jay
Jayallen

Jayallen

1
Gizmo, Gadget Guy

One more battle....

As I mentioned before I now have Colitis. The good news is that it is gone thru a diet our son found for me. As all things in life can be, it was a struggle, but Lesley and I have overcome it. My gut is now better than it has been in my adult life. I used to always have a Tums or Rolaid in my pocket, now we don't even have them in the house. We have both dropped 15 lb or so without even trying. The thought of selling the motorhome because I would no longer be able to use it has passed, and as I
GeorgeLesley

GeorgeLesley

4
Jayallen's Blog amazing days

A speed bump on my recovery road.

I've always expected continuous Improvement. I am still seeing them 2.5 years later. My speed bump happened yesterday. I discovered my depth perception is much more severe than I knew. I missed a step at the library and fell I hurt my knee and broke my glasses and of course my pride. My visual impairment has moved from frustrating to emfarassing now to pain. I just need to slow down even more and be aware of my environment. I expect to continue to recover until the day I die. But I never
Jayallen

Jayallen

4
achandra's Blog

celebrating our silver jubilee together with prayer service & get together

Today is very special day when we both are celebrating our silver jubilee anniversary. We decided to do our housewarming party & our silver jubliee anniversary both on last weekend. It was so much fun I am blessed to have great family & friends so get together was lot of fun. I feel longer u stay together your day start to hold more meaning. we both have gone through some really great time together & some not so great & I feel it requires courage & determination to stay p
HostAsha

HostAsha

4
CagedBird's Blog

My new wrist

Today I got my cast off and I put my hands together for the first time in 15 years. The first thing I did was wash my hands. It felt soo good. Ever since my stroke I was only washing my good hand by itself but today I actually rubbed my hands together. My OT said I can get a manicure soon. It does not feel real. It feels like Im dreaming. I dreamed about this day forever. You guys know I have gone through so much emotionally I just wanted to die because I could not feel my fingers. I would stay
CagedBird

CagedBird

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fking's Blog

I think I'll go to the casino What The Heck?

I'm slow not to steady on my feet so I'm thinking if I get on my scooter and ride around the casino floors play a few of the machines I might get real lucky and hit one of them for a few quarters and take my mind off not being able to walk very good.....   My wife wants to go play some so I may as well follow her since she is off work this coming week while our daughter and grand daughter care for the two dogs... Before I know it school will have started back pretty soon so it is time to do so
fking

fking

6
Sue's Sentiments

Moving forward

It's taken me years to get comfortable being on my own. A caregiver of a person who has many deficits and many needs becomes joined at the hip to the one he or she cares for. I think that is what makes it so difficult to recover from that separation and death, not only the sense of loss and the love you bore them but also the joined at the hip factor. I loved Ray and we were together for 44 years, allowing for the year he spent in the nursing home and the last decade of our marriage we spent so
swilkinson

swilkinson

4
Jayallen's Blog amazing days

Another silver lining

A bopm i am reading is by an individualv injured in vehicle accident but she suffered a traumatic brain injury then again what is a stroke but a closed head injury is not caused by blunt-force trauma the similarities are uncanny. At the head of every chapter she has a quote some specifically cited by the author others are anonymous. Another Silver Lining or advantage of having a brain injury he's you can hide your own Easter eggs. Lol It's so sad I think I'll try it next Easter as I always sa
Jayallen

Jayallen

2
Jayallen's Blog amazing days

Your attitude is showing ,again

After my adventure at the hospital yesterday I got on the bus and I encountered two men that I always see on the bus one said hey old man how you doing I said I'm doing great then he asked if I was staying out of trouble. How are youthe other gentleman said anything you do is anything but trouble what you do is Honorable and you are an honorable man and I have to tell you I look forward to seeing you on the bus. I love your positive attitude toward life. Your positivity is making me a more posi
Jayallen

Jayallen

1
CagedBird's Blog

1 more week

I get my cast off next week. Im so excited. My OT is going to do some e-stim with me to get my fingers moving again. She makes it sound like I can do whatever I want like all we have to do is some e-stim so I can remember how to open my hand again and I'll be good as new. It is pretty exciting but at the same time Im kinda trying not to get my hopes up too high. Its kinda surreal like what's the first thing Im going to do with my new hand? Probably wash my hands! lol I have not been able to put
CagedBird

CagedBird

5
Jayallen's Blog amazing days

solo support group

We have a regular schedule support with the second Tuesday of the month from 2 to 3 p.m. at the same hospital where I do my volunteer work so I was sitting in the designated room waiting and waiting finally after 15 minutes and nobody else showing up including the speech pathologist runs the support group I walked out into the hallway I ran into her and I said she said what are you talking about and I said our support group second Tuesday and she looked at the calendar and said you're right it i
Jayallen

Jayallen

0
Carol's Blog

I Can Read!

I Can Read!   Reading has always been a huge part of my life. I read for relaxation, entertainment, knowledge or escape. Books have taken me to faraway places or distant times or just explored ideas I would not have otherwise considered. I was the kid under the covers with a book and a flashlight. School reading lists weren’t used just to choose a book from, but were to be completed. I read product labels, medication inserts, and the fine print on travel documents. A life without reading m
CarolR

CarolR

7