• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,556 views
Jayallen's Blog amazing days

I'm so blessed with great kids and friends both old and new.

my daughter called me this morning and told me she was coming over to mow the grass " because I know you still have challenges with that".   Most Tuesdays I meet a friend for coffee, I know he had surgery a week ago or maybe 10 days.   We played phone tag. Well this morning his wife stopped by the coffee house on her way to workout at the YMCA, just to update me on things, because she knows how close I am to her husband.   Sitting outside the coffee house soaking up the early morning Sun,
Jayallen

Jayallen

2
fking's Blog

Tomorrow Is the Eye Appointment Day At The VA

I'm in hopes they can figure out why the lens in my left eye seems to be a little weak while the right eye is still OK and I can see good with it..... Maybe they will have to replace the left one I don't know until I see them tomorrow.... I guess all the cataracts are gone by now.....   Then the next day Thursday I go see my heart doctor for a check up at his office here in town....... Being a retired disable Veteran it seems like appointment are always on the schedule of your daily going and
fking

fking

2
Mitch's Blog

Life goes on....

Tomorrow we go to Melbourne for a few days. Moochie goes to kennels, and tomorrow night we attend a dinner in the Docklands to raise funds for a Cambodian organisation…The Ponheary Ly Foundation, which works towards increasing access to formal schooling, improving school retention, and strengthening the quality of educational experience for children and youth in northern Cambodia.   My brother and his partner represent the organisation in Australia.   Then on Sunday we are all having a famil
Mitch04

Mitch04

5
spacie1's Blog

It's Okay to Laugh at a Funeral

I went to a memorial service this past week for a nice lady here in our park who passed away from side affects of chemo. She had been through several major medical challenges over the past few years...the most recent was colon cancer, chemo and several serious falls. I remember her telling me about six months ago when we were discussing end of life decisions that she didn't want a funeral when she died, but rather a party with food and drink and people laughing and enjoying themselves and remem
srademacher

srademacher

3
achandra's Blog

lifes simple joys

things are so different now every one got digital phone camera video handy now. when our son was little we used to carry those big analog video recorders. I used to b always one to remember to video those ordinary moments of kido playing around with every one. hubby never liked to do it. so our official videographer will be either me or my brother. During our this india trip we converted those analog casettes into dvds, while watching it even now with kido brings back so many sweet memories
HostAsha

HostAsha

4
Jayallen's Blog amazing days

Another day of amazement

It started with the white-capped waves washing up on the beach beautiful son with a North Wind Mother Nature's natural air-conditioning in full gear dropping the temperature 10 to 15 degrees so humbled and blessed to be here to witness that. No bus service on Sunday is really struggling with Sundays we all can recall those days. I secured a ride to the hospital from a friend or family member and I'm so glad I did the smile on my friend's face when I walked into her room on a Sunday afternoon i
Jayallen

Jayallen

5
aanaruk's Blog

Eleven Years!

This week (just passed) marked my eleven year anniversary into my third life ( I was born, I was Baptized, then I survived!)   As I do every year, I send an annual note of thanks out to the four hospitals and four teams of doctors, nurses, therapists, lab workers etc that had anything to do with my recovery. Here is this year's (much shorter than normal) diatribe!   Hello all! As always it is hard to believe its been so long. Eleven years and a day since I began this tremendous post AVM ru
aanaruk

aanaruk

4
SassyBetsy's Blog

Passing By The Two Year Marker

I ran into my former physical therapist from a year or so ago.She commented on progress she saw,and I told her she was an important person in my life of recovery because she talked about things I was experiencing, believed me,assured me I was not crazy. She encouraged me to walk. I confided in her about my experiences in the nursing home. I told her I now had a patio so I could see the sun and a roommate who did not have the problems the other one did. She noticed I smiled and enjoyed the momen
SassyBetsy

SassyBetsy

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Sue's Sentiments

back home again

I have been out to the desert country again, out to Broken Hill to support Trevor through another Family Court hearing. This one was the final one as even the judge was getting anxious for Trev and his ex to reach a compromise solution. It came out as expected with half a day increase over the fortnight for Alice's access time with Trev this year and three days a week next year, conditions altering again when she goes to school late January 2017. It is all so complicated and he has been pretty f
swilkinson

swilkinson

2
Jayallen's Blog amazing days

Another Blessing filled day

while doing volunteer work at the hospital I'm currently working on a special project getting patients signed up for the patient portal. I walked into a room and I verified the patients first name and introduce myself with my first name and she said oh my God I can't believe it's we met just over a year ago when we were both in outpatient t,herapy, a fellow stroke survivor and I told her that she was my inspiration for working with stroke survivors in the hospital and she said no way and I sai
Jayallen

Jayallen

1
scottm's Blog

Made it through the first 2 evaluations for a clinical trial

After filling out a clinical trial eligibility form quite some time back, the phone rang about a month ago. Took awhile to grasp who was calling but apparently my questionnaire had made it through several selection criteria to make it to a trial team at University of California at San Francisco. Did a phone interview and they said I was a preliminary match for the trial. My medical records and imagery went off to them and today I got notified that I met the criteria to continue the evaluation. S
scottm

scottm

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Punch1021's Blog

My Brother Has CHF

My brother, who had strokes ten years ago, is in the hospital for CHF. Poor thing has fluid around his heart and lungs. He is now on a ventilator. His kidney's are also failing him. Our parents went to see him on Monday after getting a call from the hospital. My mom told me not to worry or come down because my brother has nine lives. My brother has been very close to death before but has survived. I can't help but to wonder how much his body can handle but I know we are a family full of fig
Punch1021

Punch1021

6
spacie1's Blog

We're Heating Up!

Mid May and we've already hit triple digits a few days last week. Today we will get up to mid 80s, then back into the 90s for the rest of the week. I think I've got our home ready for the summer monsoon storms...next month will be the real test. After the damage last September from the worst monsoon since we moved to AZ, I replaced the front windows and eliminated two of them, then just a few weeks ago, I replaced the old awnings with the roll-a-shield awnings that I can open and close with the
srademacher

srademacher

4
SassyBetsy's Blog

My New Eye Patch.

Some said try it. But I just closed one eye. Reading is Breathing. I worked hard to get my eyes working together but the double blur Annoys me. I Look normal in my glasses so none know the world I walk in. Moving patterns,Double then one then double,no depth, people moving too fast too close. Closed eyes makes my head spin. Lose my place in space. So do I cover the weak or strong eye? The discussions continue. When will this end? ]So I detest a pirate patch, sticky p one. So online I find a gl
SassyBetsy

SassyBetsy

3
SassyBetsy's Blog

The Cost

One day I happily shopped for Newborn layette stuff for my first grandchild. My daughter chose little clothing items with a little dog on them and a matching stuffed doggie music box that played How much is that doggie in the window. Tiny doggie booties. Small blankets and beanies to swaddle our tiny baby boy. I fell asleep that night thinking about my daughter's birth and first little days so filled with joy that any problems drifted So far away we seemed untouchable from the outside circle.
SassyBetsy

SassyBetsy

2
Mitch's Blog

A battle lost......or a battle that is just getting underway?

Men's Shed's are a peculiarly Australian thing, and were established firstly in rural areas after a spate of male suicides. They are a male only domain, and aim to help the well-being of men, male physical and mental health, and matters such as cooking and looking after one's self. They are generally large tin sheds that contain a workshop (benches, table saw, band saw, in fact all types of power saws and hand power tools, welding equipment etc) office, lunchroom/meeting room, and toilet fac
Mitch04

Mitch04

2
achandra's Blog

we are back from our india vacation

We are back from our 10 days India vacation where most of it this year we spent in our village in India. It was fun & went fast met so many extended family of our chandra family in our village where we had all gathered for religious ceremony it took me bit longer than getting used to all noncomforts of village where hubby was adjusted there in a blink. ofcourse I being people person enjoyed all hooplas with family. visited all temples near by with family played card games & other g
HostAsha

HostAsha

4
Mitch's Blog

Some days are like diamonds

Yep. Some days are diamonds, and I had one yesterday. We were down in Melbourne and leaving for Hedgerow Cottage, Kyneton, and I chose to go to Dan Murphy to buy some wine. Purchased 8 bottles of red, white and rose, all under $12 and came out with a bill for $64! Drove back to daughter Mia's house where we stayed for 3 days (Mia was in Singapore for a conference) to collect Jules and Moochie, our dog. And Jules announced she wanted to go to a bakery in North Melbourne!   So after packing
Mitch04

Mitch04

3
Jayallen's Blog amazing days

a day of funk turned into a day of fun

I start my day not depressed but not jovial really just in a funk I can't pinpoint why it was just there so I went to the hospital did my volunteer work put a smile on a couple faces and then the charge nurse stopped me in the hallway and introduce me to a new trainee and commented on how wonderful it is the work that I'm doing because it really does help those survivors now if that doesn't put a smile on your face nothing will then I finally had an opportunity to work on my email see what's goi
Jayallen

Jayallen

2
Ksmith's Blog

groundhog day......memory

I know. ..I know... Let it go... it's the past.   Well easier said than done. Everyday is a new day to me and they blend together. I understand now how hard it is to let go. Most things I have but some are buried in my soul. Yes as you might have guessed It I'm back at my ex's but only for 3 days a week and every job after that I go a day less. He is my son and I'm trying to teach him to be a 13 while his father is still wanting him to be a little kid. It's frustrating. But the real issue
ksmith

ksmith

2
fking's Blog

Eye Appointment In Two Weeks

Well it's back to the eye doctor in two week to get the lens checked that they put in my eyes for me to see much better without wearing eye glasses any more and so far it has worked.... I got my own concerns on how they take them out and put the same ones back in again??   To me it seems like I don't see as clear now as I did when they first put the lens in about two years ago.... It could be that my vision has gotten a bit harder to see in the last few years... What ever the case or cause th
fking

fking

4
Strokewife's Blog

Humor from a cup

I have always felt that in every situation of my life there are moments that when I look back on certain times I will find the humor in a particular event somewhere. I believe this to be true with the most horrific of scenarios. It always seems to be the situations that are the most burdensome that wind up being, for me, the most note worthy later on. They are the moments that I time and time again journal about and reflect on later. One such example is the night my family all gathered to be
Strokewife

Strokewife

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