• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

Blogs

Featured Entries

  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,556 views
Jayallen's Blog amazing days

My laugh for the day simultaneous double thought

Yesterday as a volunteer I was working with seven other volunteers on a special project I went into the office to log into the computer and as I went to sit down the chair slowly moved away from me and I found myself very gently heading to the floor I thought oh God I hope no one comes in and finds me at the same time I thought oh I hope someone comes in and finds me and helps me get up getting up off the floor the ground can be like climbing Mount Everest all challenges are individual will co
Jayallen

Jayallen

1
Jayallen's Blog amazing days

Thoughts and prayers requested

I went to the hospital today to meet up with my former coworker and recent stroke survivor with my iPad to get her onto the stroke Network cuz I know it would benefit her when I got there she was tied up with therapy so I decided to have my lunch first when I got back up to the rehab floor I overheard one of the nurses say she's being transferred to ICU right now together we can make a difference   Be blessed and be a blessing   Jay
Jayallen

Jayallen

5
SassyBetsy's Blog

Being On The Outside

Today I sit on the patio outside. I asked.I was told the charge nurse had to be told because who would be responsible. Then I was outside. Funny how my moody blew free in the breeze and my heart warmed in sunlight. Problem Thoughts stuck on the screen door insisting to be revived by anxiety but my feet tingled with the memory of waltzing through uncut grass. What has come over me that even the reflection in the glass seemed straighter thinner taller and smiling.no.grinning. Outside looking
SassyBetsy

SassyBetsy

6
Jayallen's Blog amazing days

An amazing fun Sunday/ Father's Day

I spent the day relaxing with family quite extended my son in laws family as always I am considered a member of the family thet ate all so loving and caring. Great food great conversations just a relaxing day. 2 of my grandchildren were part of the mix of seven children all under the age of 10   It was so lovely to not spend this Father's Day At Home Alone. ow up and my son in law's family's I had the opportunity to see two of my daughters and heard by phone for my other daughter and my so
Jayallen

Jayallen

1
kukzee's Blog

A personalized approach to rehabilitation

A suggestion to a personalized approach to rehabilitation. i had a stroke in 2008, in the beginning you didn't know when and where to start your rehabilitation. After a month in intensive rehab I was discharged and transferred to an outpatient setting. The outpatient setting unfortunately didn't maintain the pace obtained during the inpatient setting. I was still hoping that the lost movements will returned by themselves. It was a wrong hope, then I had to look for ways to compensate my deficit
kukzee

kukzee

3
Jayallen's Blog amazing days

Greeting card message by mistake

High drafted a message for my son-in-law celebrating his first Father's Day welcoming him to the club and the true measure of a father I share it with a friend of mine who said you should write greeting cards and of course my response to that is anything I write that would be appropriate for a greeting card is simply mistake right from the heart I don't write for commercial purposes sometimes by accident it does happen that it would be very appropriate for a greeting card but that's not what it'
Jayallen

Jayallen

1
Jayallen's Blog amazing days

Happy Father's Day

To all my fellow fathers out there I just want to say Happy Father's Day Tallest survivors and Father's thank God we survived or strokes and are able to celebrate yet another Father's Day. The true measure of a father is his love and Devotion to family and those of us that our fathers we are so blessed to have the children that we do   Be blessed and be a blessing, Jay
Jayallen

Jayallen

1
Strokewife's Blog

Flight of the Swallows

High under the arch of the front entry there is a bird nest mounted. It is a mass of mud, grass and sticks. That nest has existed there for 15 years. It is the home of swallows.   Our house was built fifteen years ago just off set from a golf course. There wasn’t much surrounding the area. No major thorough fair, minimal housing, and lots of vegetation. It seemed like a home in the country all while still in the city. That was the draw to the area. Still today there are a minimal amount
Strokewife

Strokewife

6
thejule1's Blog

Hot, hot, hot!

We are in a heat wave here in the St. Louis area. We have had several days of near 100 degree temps. I only go out to run errands and I keep Larry indoors.   Larry is doing well and no issues so far. He has an aide that comes a couple days a week and he goes through the exercises, including range of motion with him. The aide does light housekeeping such as vacuuming, which I hate. My son is living with us and is a big help with Larry's care. He has a part time job which hopefully will
thejule1

thejule1

5
Jayallen's Blog amazing days

the world is a better place with me in it

I'm not with my counselor yesterday I had a doctor's appointment earlier in the day. And she said I have to agree with your doctor you need to look after your health the world is a much better place with you in it   All I can say to that comment as well am I humbled or what and how blessed am I to have somebody that I respect as much as I do is my counselor to make that comment about me being alive and in this world   We all need to be thankful I'm loving life but I'm also blessed and extr
Jayallen

Jayallen

3
Stockflyer's Blog of Success

8 months in

Hi,   I've been reading others blogs and really get a lot of enjoyment from them. I figure they are really helpful so thought I would try my own. Read if you want.   I'm now about 8 months post stroke. Many things are looking up, but there are still a bunch of issues.   I am lucky compared to some in that I didnt' get any paralysis. I am very weak though and get reminded of it all the time.   In my town we have what we call the Older Person's Center (OPC). In there we have lots of a
stockflyer

stockflyer

5
Jayallen's Blog amazing days

Another blessed day

I stopped for a late-afternoon cup of coffee and a young man that I met at the coffee house a month ago came walking in saw me and said i knew you'd be here and in so glad you are. I am just looking for you to help me lift my spirits he was living in a three quarter house and moved out was moving into another one and they're just treating him very poorly he said well I just been having a really bad day and I just decided I knew you'd be here and I just needed to talk to you because you are
Jayallen

Jayallen

0
SassyBetsy's Blog

Jealousy Is A Disease

My mother always said jealousy is a disease. I always thought it an odd saying.   I moved into a lovely room with my friend from bingo In January. We were close through quarantine for a month when Norovirus hit. We stayed well too. But over time a more hideous disease struck. Roomie was jealous over every thing. Every person. When I started doing art with others because she was not interested, she was jealous. She demanded supplies she never used from activity director. Director stopped buying
SassyBetsy

SassyBetsy

2
spacie1's Blog

A Ray of Sunshine This Weekend

With the mass murders in Orlando this past weekend, and all the bat crap crazy politicians on television, and depressing local news, I got to the point where I didn't even want to turn on the television or sign on to my computer ............it was all so depressing. I did sign on to facebook several times over the weekend to stay caught up on Dice with Buddies and Words with Friends with my youngest sister, and on Saturday I ran across some GOOD news for a change. Gary's nephew who lives in Texa
srademacher

srademacher

4
Jayallen's Blog amazing days

Another lesson learned with the new normal

This past weekend was extremely hot mid nineties and h and I realized as I was walking around just as I normally do that due to the brain damage from my aneurysm and stroke my body does not regulate temperatures my body temperature the way it used to just something else I need to be aware of in the past when you said 90 degrees I would start sweating this last weekend I didn't sweat at all and I realized I had to get out of the Heat and get my body temperature back down a little bit that's just
Jayallen

Jayallen

0
AmbassadorLenny's Blog

summers here!!! time to start walkingand get recovery

well here it is again its summer time, time to gear up for another year of recovery, you don"t have to worry about slipping on the ice just put on your runners or dhoes and put on your walking shorts , and not only get some more recovery , but a chance to meet your new neighbour, well don"t do it for me though do it for you, because you matter , you have been given a second chance of recovery, so do all that you can to help it along if you can"t run that's oky just start walking and buld up your
lharrison

lharrison

5
SandyCaregiver's Blog

Jeans and Sandles

The other day, I was at Walmart and looking for a pair of jeans. I like ones with elastic waist. These were JMS (just my size) (2X - 18/20 petite) pull on stretch jeans. These have a slim ankle and stitching around the ankle. I got them home and was thrilled with how they fit and felt. I don't understand how I fit petite, because I always wore average, but they fit great. I soon began to think about how Bob wants to wear jeans so bad.... but.... they are such a pain, so hard to get on, to pu
SandyCaregiver

SandyCaregiver

7
Punch1021's Blog

My Brother is At Peace

Last Monday my brother passed away. He is no longer in any pain. I was able to see him the Friday before that. He was on a ventilator and his eyes were covered but I was able to tell him I loved him. My mom told me to call his name and I did. He responded to me. She wanted me to do it over and over again but he only responded once. I had to tell her he is not going to keep responding. I played some of his favorite music and stayed with him when they took him off of the ventilator. My parents had
Punch1021

Punch1021

5
Sue's Sentiments

holidays and special occassions

Over the past few years I have found public holidays and long weekends difficult to cope with. I was out today (Monday) with three other ladies who belong to my Lions Club, the other female member could not come as she has succumbed to a throat infection. Three of us are single and otherwise would have spent today alone. This is the Queen's Birthday Long Weekend so in the past I have found it lonely, this time I packed it full of things to do and it all went well. I am getting better at holidays
swilkinson

swilkinson

1
achandra's Blog

I guess some lessons in life you learn through repetition and I will make sure u guys learn with me lol

I know I have recited these lesons learnt many times but I guess I still need something still to learn so keep on learning. & I have done very well in my school life when I write down those lessons, I learn quickly. So here writing again so that you guys will also learn with me. We are still finding some kinks here & there in our home & getting it fixed as we go along. ofcourse it creates stress till the problem is not fixed or sorted out. I am so able to dial down my stress level by
HostAsha

HostAsha

1
ruthwilliam's Blog

Retirement

I have been retired for 9 days. I thought that it would be harder. It was for the first 4 days. But this week it is easier. I am a caregiver and therefore I do not have as much free time as the usual retired person has. I feel like I am crazy. I have always been an early person. I am still waking up at 4AM. But, I have been using my time and going to the gym. For a couple of days William actually was up andI took him and got his therapy done. But, then he started to rebel. So I jus
ruthwilliam

ruthwilliam

4
Ksmith's Blog

i am asking for advice please

I am going through a tough time right now with trying to explain to my ex husband that being divorced and me being disabled, doesn't mean I am available for watching our son all of the time. His ( ex) theory is because I am his mother, I am supposed to be with our son when there is a need. I have tried to explain to my ex husband that just because the fact we get along doesn't mean that I must be here for his need of child care. No matter how much I try to explain to him that being divorced mean
ksmith

ksmith

10