• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,595 views
fking's Blog

We Just Don't Know What Tomorrow Will Bring

We all live day by day and we never know if a stroke will come along or not or perhaps we have already survived a stroke or two.... We never know one day to the next if we will even be here the following day because life is fragile as we all exist as best we can with what we are having to deal with..... I have always said a stroke is no joke and can take you out in a few seconds while it takes a lifetime to get better.....   I sure didn't think my stroke would have kept me down this long littl
fking

fking

8
Jayallen's Blog amazing days

yesterdays blessing and life lesson came from a 4 year old.

My grandson was visiting yesterday when I walked in the house he screamed hi papa!   Grandma showed him how to make a balloon sing, you now put air in balloon and pinch between fingers as the balloon sing, followed by a lid squeal and uncontrolled laughter, all I could do was smile and laugh. We all need to take time and appreciate the little things in life and just enjoy things. Amazing that this 4. Year old teaching this old dog new tricks.   Okay maybe just a reminder.   Still a lovel
Jayallen

Jayallen

3
fking's Blog

Time to Watch Baseball Again As Basketball Draws To A Close

Well as the seasons change so does the sports games but we all make the changes and still watch TV schedules to keep up with sports..... I have never been one to watch soap opera on TV, too boring for my attention but my first wife loved them anytime as she was a beauty shop operator working at home...
fking

fking

2
spacie1's Blog

48 Years Ago Today

At two o'clock in the afternoon on April 20, 1968 Gary and I were married in the Catholic Cathedral in Rapid City, S. Dakota..........who would have thought we'd both still be here?!? lol   We are getting a newer golf cart today, so we can get around the park easier now that the post office has moved our mailboxes to group clusters and ours is nearly 2.5 blocks away. There's no way I'm walking that in 95-115 degree heat in the summers. It will also be easier to park when we go to the so
srademacher

srademacher

5
achandra's Blog

surviving stroke is lot better than not here to witness all life has to offer

life feels so fragile sometimes & you never know when your number is up. recently in our neighborhood very young guy age 45 died of sudden cardiac arrest, he leaves behind two young kids & wife. we never knew the family but went to their home to give our condolences. It feels so sad to meet such a young family to go through this big loss in their life. while walking back hubby & I were talking & were saying how given opportunity she would have rather have stroke survivor then no
HostAsha

HostAsha

5
SassyBetsy's Blog

One Death One Birthday

My Neighbor passed away. She was next door and my othher friend who collages with me was her roomate. I was cutting out magazines with one friend while the other struggled for each breath and endured the comfort care of hospice which looked dangnabbed horrific. I never saw anyone on their death watch. Her daughter was there as much as she can.we talked.I felt like I should pray but she was not religious. I did it silently. Cancer caused unrelenting pain.They kept her snowed under. Yet she still
SassyBetsy

SassyBetsy

2
SweetMom's Blog

Our Vegetable Garden

This year we are growing a garden in straw bales. The weeds have literally taken over so it was either raised beds or straw bales. First we treated the straw bales with high nitrogen fertilizer and steer manure and water to break down the straw bales. We used black plastic to speed up the process. Next we will plant tomatoes, peppers, herbs, lettuce, veggies, veggies, veggies, etc...... in the rotted bales. The veggies like that. Using the straw bales will help with the weed problem and I cannot
SweetMom

SweetMom

7
Jayallen's Blog amazing days

Spring has sprung

Drinking coffee watching the sunrise or Southern Lake Huron I hear the drone of freighters moving grain and other Goods to Parts Unknown. Otherwise is quite silent alone single steps to say good morning. The silence is broken pushing a 1932 wooden Hull Chris-Craft up the shoreline a true sign of spring. What an absolute blessing to be able to witness these sites. Be blessed and be a blessing. Jay
Jayallen

Jayallen

0
Jayallen's Blog amazing days

Boasting turns to Blessings

Tuesday April 12th Mark 29 29 months Post-stroke while at the hospital doing my volunteer work I encountered the charge nurse on the floor and she said how are you and I said I'd excellent and she said really and I said yeah it today marks 29 months post stroke she says well you look like you're doing great I said thank you I was so humbled by that one. To do more boasting of course and I encountered my OT and told her it was 29 months and she was just a big big smile on her face she said yo
Jayallen

Jayallen

2
Sue's Sentiments

Freedom or loneliness?

I find it hard to be home alone when I have been with family for a few days. I went up to visit with my daughter and her family on Monday and came home on Thursday, it is school break so I had the two grandchildren to talk to as well as my daughter and my son-in-law. The weather was drizzle in the main and so we didn't do anything special but it was good to be with them, to have some company, some talk and laughter and I do find it very quiet when I come home. They have two dogs which kept us a
swilkinson

swilkinson

7
Jayallen's Blog amazing days

Another Blessing just begging to be shared

While having coffee with a friend of mine wbo sees me counting out change to get my coffee he said are you okay financially and I kind of pausd and I said well you know he pulled out his wallet took out a $50 bill and slid across the table to me and he said I hope this helps I wish I could be more and this will never be spoken of again I wanted to cry I thank ed I'm as much as I could but how do you think somebody that does something like that out of the generosity of their heart. What an abs
Jayallen

Jayallen

1
fking's Blog

My Body Is Tired

Well to all my members I just want to tell you first that my body is very tired, my walking is next to very slow, my left side is still very paralyzed and unusable so for the most part I'm one handed making life for me very confusing not being able to do many things for myself.......   I'm not giving up I'm giving out strength wise with a treadmill test in the morning by my heart doctor to see if he can make a determination of just where I am in life..... You know being like this is very hard
fking

fking

7
CagedBird's Blog

if anyone still reads this

I finally had my appointment with the orthopedic surgeon today. I am going to do the surgery. She is going to put a rod or something in my wrist to keep it straight then she may release the tendons in my fingers depending on how it goes after that. I feel indifferent about it. Part of me is happy my wrist will finally be straight and in a more comfortable position but part of me feels sad that I will officially never be able to do things like clap my hands.   I got a new position at work. Inst
CagedBird

CagedBird

8
spacie1's Blog

Isolation

Had a whole weekend without home phone and internet - tried copying and pasting blog again without success.   Will try to recap what I originally typed: Had new cell phone delivered on Fri. but without home phone and internet, I could not set up voicemail, so for 4.5 days I had only cell which I had to answer or text available to use. Frustrating!!!   Finally got it all back by late Tues. around 4 p.m. - seriously doubt they will give us a credit on next months phone bill.....Ha!!   Sar
srademacher

srademacher

2
williamharris' Blog

How do you enter Chat?

I cannot believe it. I was going to enter chat. But it has been so long that I do not know how to enter chat. But I will take this free time to update William and My life. Wm had his stroke December 2008. I cannot believe that we have come thru almost 8 years. But, time flies no matter what you are doing. We have gotten used to our new life.   I am still working. But, we got notice at my work that they lost the contract with Aetna insurance. I do medicare part D prior authorization a
williamharris

williamharris

4
Carol's Blog

The Day I Didn't Die

In Recognition of National Poetry Month, this entry is in the form of a poem. csr 4-11-15       The Day I Didn’t Die   On the day I didn’t die the clouds slipped surely down her side. Sheltered from our humble sight were ice-caped shoulders, snowy bright.   I’d need to go on bended knee were I to praise her majesty to that she earned. Enough to know that she was there on the day I broke.   We had honored her before, another year, near the ground around her skirts, wh
CarolR

CarolR

4
Stu's Blog

Coming up on my 10 Anniversary

Now I know I haven't been active here lately, sorry about that. We're getting ready to move in with the kids for awhile, we're both downsizing then it's off to our new life in Pentiction BC, a trek of only 1300 miles with bag & baggage. The kids wanted us to move with them, not sure how living together 24/7 is going to work ( after all I'm pretty set in my ways).... lol Just thought I'd bring you all up to speed.   Now the reason for this post... My 10 Anniversary is coming up June 22 nd
myhome

myhome

3
achandra's Blog

you don't need to see your end destination to reach there

As we are going through yet another change in our life we moved to our new home & started preparing our old home ready to put on market for rent. I used to get overwhelmed with amount of work it is involved in moving into new home & preparing things for all that is involved. I was admiring hubby's ability to keep calm in chaotic situation, when so many balls up in the air how does he stays calm & not buckle under pressure. he shared with me good technique on how not to get overwhel
HostAsha

HostAsha

2
Sue's Sentiments

Squeezing time - a between seasons update

It is a busy Sunday and I am using the time between church and Messy Church to update my blog. I try to fit everything into small compartments of time. There are a lot of small jobs I can manage and the big ones send a shadow over me as I look at when I can fit them in. I thought when I gave up the caregiving life that I would have heaps of time but have come to the conclusion that it is just what I do with life, decide what my limit is and then pile in a few more things to fill in the gaps that
swilkinson

swilkinson

1
Jayallen's Blog amazing days

A brief flash of the past

Last week the volunteer coordinator send an invitation to the annual volunteer recognition dinner, with a deadline to RSvp.   Yesterday she sent out a follow-up email to all the volunteers yesterday she sent out a follow up email to all the volunteers as reminder to RSVP for the dinner. With the new security measures put in place by the new company that bought the hospital when you send a group email it hides all the other email addresses except for the person that's receiving it. some of t
Jayallen

Jayallen

1
Caring for Sandy Caregiver

Bob's Aphasia on Bobbin Lace

One of the things to learn on my bucket list is bobbin lace. I just began to practice the stitches for the first time today - baby steps and a long way to go! Now here's the good part. After I'd been practicing awhile, Bob asked how was my Bo-diddly coming along? Me: huh? wha... oooh, you mean bobbin lace?
SandyCaregiver

SandyCaregiver

1
Jayallen's Blog amazing days

Double connection

At the hospital today I met a new stroke survivor when I introduced myself as the stroke Ambassador because I am a stroke survivor her face just lit up I could tell she appreciated having somebody who could understand what she's going through and we chatted about that quite a while she mentioned something about her work and I said well where are you working or where were you working and she need to place that I worked worked for quite a few years ago but I spent 10 years working for the organiza
Jayallen

Jayallen

2