• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,595 views
SassyBetsy's Blog

The Baby hangs on!

My daughter was sent home from the ER told it was the beginning of a miscarriage that will complete by week's end.Well the baby has hung in there rolling around oblivious to any danger. Ironically this happened to me when pregnant with this daughter! My daughter said Now the Worry starts! I had an eye rollin belly laugh. This time is scary.We are reminded life is a gift bestowed. We all pray pleadingly. What a miracle indeed. I am blessed for having this time with daughter.
SassyBetsy

SassyBetsy

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Jayallen's Blog amazing days

Right place right time to give and get a blessing

Some older gentleman struggling to sign is great change for the bus so I offered it. I asked if you needed any money because no no no I've got it and then I said don't forget the quarter on the ground is all I thought that was a nickel and he says well if you got a nickel I'll take that as adaptable but I don't want to see anybody pay more than they have to.   We discussed how blessed we are to have the bus system that we do have because he quit driving in 97 and I told him I quit driving j
Jayallen

Jayallen

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fking's Blog

I would Love To Post A Picture Of My Tree

I got the only tree in my front yard that is brown and looks dead, no leaves at all, while other trees both sides of my street are green with leaves and it's been standing there since we bought the house back in 2000 as the builders planted a tree in each yard for the new home owners to have shade in their yards....   Spring has arrived the grass is green front back and each side of my house but that tree looks very dead now.... I even watered it and still no leaves are green yet so today I wi
fking

fking

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SandyCaregiver's Blog

Normal... Again

I've been thinking about writing about this, and it has recently come up again. So, I almost thought not to write, as it might be redundant... but no, I need to blog it for my own record.   When Bob first stroked, I called my girlfriend, since 2nd grade. I told her what had happened, relaying my horror and loss of what our lives would have been. She matter of factly said, "eh, people don't realize being handicapped is not about living with loss, it's just living differently". If anyone
SandyCaregiver

SandyCaregiver

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Jayallen's Blog amazing days

Kitchen victory

I have never made a corned beef dinner I really don't care for it but I know my wife loves it so I brought everything I needed and yesterday morning I found the Betty Crocker cookbook found the recipe to cook it and she said it was absolutely incredible what the hell did you go I was actually able to read and follow the narrative and it turned out okay I just turned out better than okay so that was a major major victory for me yes I'm celebrating it. Be well be blessed and be a blessing, Jay
Jayallen

Jayallen

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Jayallen's Blog amazing days

Not only is it officially spring it's unofficially spring

Not only do I have the opportunity to see the first Sunrise spring I've seen my first Robin. We we all look to the calendar for the changes of the seasons but in my part of Michigan in the fall when the robins leave and the Canadian geese that sells you know winter weather isn't far away in the spring when the guys come back heading north and the robins are looking for food around the yard you know the warm weather is right around the corner what a blessed day. Jay
Jayallen

Jayallen

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spacie1's Blog

Spring Has Sprung - 90 Degrees here

We had some record temperatures in February (at least 15 straight days over 80 degrees) and now we've hit the 90s in March already. I'm hoping that's not an indication that we'll have some record 110-115 temps by June, July and August, but won't hold my breath on that one. lol   We had visitors (Gary's brother and sister-in-law) from Seattle in February, the week after Mom passed away. Was a nice weekend with them arriving on a Sat., staying for a bbq and our middle son and family were
srademacher

srademacher

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Jayallen's Blog amazing days

Another new personal tradition

Years ago I decided to celebrate and Usher in the new year by getting cup of coffee and watching the sunrise well as you know yesterday I watched the last sunrise of winter this year well this morning I have the honor of watching the first Sunrise of spring I am going to do the same all four seasons just because I can it's just a reminder of what a blessing life is and how beautiful God's creations are including all of us I believe many years ago there were cultures they did the same thing celeb
Jayallen

Jayallen

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Strokewife's Blog

Trash Day

“Zooom, zoom, squeal, crash, bang, boom…woof, woof, arf, arf…vroom, vroom, squeeeeal, zoom…” The clock reads 7:39am as I once again pull the pillow over my head. I pray to God for the madness to please stop while shouting at my dog to stop the barking. Every Wednesday morning I have what I call, “The fricken trash man hatred.” It is every Wednesday morning at a, much too early for me to process, time of day that I realize there are these small things in life which are more important than I eve
Strokewife

Strokewife

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Jayallen's Blog amazing days

Goodbye good luck best wishes

So many times when I get to the hospital I find out that one of my patients has been discharged today for some reason I decided to check in before lunch I check the schedule and one of my buddies was taken off the schedule explain to them I roll and I was talking with mr. M he told me he was going home or at least someplace else and I said well it's a step in the right direction he just better not be one step forward two steps back and you said absolutely not because I'm moving forward and that'
Jayallen

Jayallen

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fking's Blog

CAN YOU BELIEVE IT?? Spring Arrives Tomorrow 20 March 2016

Well all you weather buffs, Spring arrives tomorrow, driving a convertible with the top down here in Texas and I sure will be sitting outside at some point in the day instead of staying inside like I have been trying to stay warm......   Now I can hook my TV back up in the garage raise the door and enjoy the weather instead of being stuck in the house running up the electric bill to stay warm as it was real cool here in central Texas....   There was snow in Forth Worth near Dallas and very
fking

fking

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Jayallen's Blog amazing days

Goodbye winter hello spring

Today marks the last day of winter and at 12:30 a.m. tomorrow we welcome spring. This last day of winter comes in with one of the most beautiful sunrises I've ever seen quite the fittin dewway and to say goodbye to Winter   I am still looking forward to True signs of spring I'm waiting to see my first Robin and of course living on the south end of Lake Huron another rite of passage into spring is when the u.s. Coast Guard replaces the buoys for the shipping channel that is definitely a day of
Jayallen

Jayallen

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Jayallen's Blog amazing days

A day of mulmultiple emotions

Feeling old stealing Young then embarrassed beyond belief. The bus system is in the process of hiring probably five or six new drivers and there is one young lady in particular very attractive probably in her late twenties early thirties I've seen her 3 or 4 times on different buses this week well as a got on the bus this morning should have to mean she says well good morning sir how are you I do greatly appreciate the respect given however it did make me feel a little bit older of course I lau
Jayallen

Jayallen

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Jayallen's Blog amazing days

there are times the only thing you can do is laugh

Waiting for the bus outside the grocery store a car came by with a vanity license plate I don't remember what it said but I remember thinking I've never had one what would I wear what I have on my vanity license plate and I finally realized you silly man you've given up your license you don't have a car and you won't have a car what do you need a vanity license plate for and then I started laughing at myself. What else you going to do cry? Be blessed and be a blessing, Jay
Jayallen

Jayallen

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SassyBetsy's Blog

On Being Irish

Today there was a celebration in the Dining Room. I had not set foot in it since that day I was told to give up my seat. I went to be with my friends here. I sat with friends near kitchen door   There was wine,cider,nibbles on small plates,And green shamrocks all around.A male nurse gave me a shamrock lantern that decorated the nurses station. It sits in cherished spot on nightstand. We listened to a Harp player,and watched Children doing Irish Dances. It was lovely. A party. A celebratio
SassyBetsy

SassyBetsy

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achandra's Blog

tidbits of my life

guess what power of social media I connected with my girlfriends after 30 + years. I am so excited. Its fun to catch up on each others lives. I know I will be able to meet them in person soon. school friend of mine sending message on facebook for past two years & I finally saw it after two years, I don't know how I never saw it before, but now that I saw & we connected. It feels as if we never lost touch before. So I am happy camper again. we can share our joys & sorrows with each o
HostAsha

HostAsha

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nancyl's Blog

my turn

So I am sick, I am with a UTI -- a bad one, probably more of a kidney infection actually... Its in my back..... After 4 kids I don't feel pain upon urination - or back pain as that is kinda a constant. I went to the doc with aches and pains that i thought was cold related or most likely depression related... wow for a change I actually had a physical ailment... I knew I had kinda a short temper and was easily overwhelmed ..... but both those are normal depression traits as well so i put no stock
nancyl

nancyl

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SassyBetsy's Blog

Getting Radiowaved

I had to fast no food for 6 hours,with the last 2 hours no liquids NPO. Afterwards My blood sugar was 60 after I asked them to check it. They offered me juice boxes of orange juice and graham crackers while I waited 20 minutes in recovery.   I did not even change my clothes into a gown. I had an IV with a mild sedative in my wrist so I could be on my tummy on pillows. There was one nurse watching by the IV,and another one reminding me to breathe deeply. A xray machine was on my right with a m
SassyBetsy

SassyBetsy

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Jayallen's Blog amazing days

Welcome to Parenthood

One of my daughters who will be turning 28 tomorrow has an 8 year old and A2 year old we the train to meet up for a couple days we have been trying to meet up for a couple days. I called her this morning and she said oh my life is so crazy my children are running my life. I said if you recall you and your sister did the same thing to me she Chuckles I said welcome to Parenthood. I love to point out the obvious things with my daughters make silly comments I said you're absolutely right because
Jayallen

Jayallen

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Carol's Blog

Normal - To Be or Not to Be

Normal – To Be or Not to Be   When I first entered the outpatient rehab hospital after my stroke, during the initial interview process, I was asked about what my goals were for rehab. I recall saying first that I wanted to walk again, and then adding that I’d like my left arm to work. My daughter was there with me, and she later reminded me that the first thing I said was simply “to be normal.” Nearly seven months later, this is a concept with which I still struggle. I have heard it often,
CarolR

CarolR

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Ksmith's Blog

I'm fed up

So.. i have been coming to my ex husband's house helping out with our son. I love spending time with my son BUT enough is enough.   Time is blending together. I know I have to leave because WE ARE DIVORCED. I loved helping him but I can't even tell you what year we divorced for I'm always here and it's blending together. It's like we're still married. But last night just [pushed me over the edge. I say to my ex: " your girlfriend has offered to help out in the mornings with our son' and his re
ksmith

ksmith

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SassyBetsy's Blog

Feeling lost and scared

I told my roomate. She worried I would tell the nurse here. She is on 2 percoset. She has seen me in crisis. I hope the doc here will not let me suffer. This pain Is real. I am going to PT now. I want to walk again without pain. Without Dizziness. Wishing doesnt make it so.Believing helps me work. But Pain Relief makes working possible.   Now 8 am alone. Worse. My doc is unsupportive and will influence other docs here. I question am I wrong. Am I hooked on these pills. Am I the same ?
SassyBetsy

SassyBetsy

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SassyBetsy's Blog

Fired my pain management doc

It takes trust. I questioned,I complied when I was unsure. The doc said I exasperated her,she broke my trust when sh did not respond to my calls when I tried a new medication. She said I had run out of opiates when there are others to try. She said I made her feel like she failed and she had nothing to offer. She said that pain is a matter of choice,a cognitive decision.   I said I cannot will the pain away, but 0I would try biofeedback. Since I had the procedure,she said I do not need meds.
SassyBetsy

SassyBetsy

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