• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,556 views
Jayallen's Blog amazing days

Unsuccessful attempt to play chess

I decided today with nothing on my agenda to try to swing by the hospital to play chess with my new found friend I saw his schedule on the board in the hallway he had 3 hours of therapy this morning an hour break for lunch and then another two and a half hours this afternoon let him be at lunch cuz I know he would say well can you come back this afternoon and play little does he realize after five and a half hours of therapy always going to want to do is climb in bed and sleep he may think he w
Jayallen

Jayallen

3
fking's Blog

The Warriors Won Last Night

Well it's still a long way to go to see who will be national champions this year in Basketball but the Warriors was convincing to me it will be them instead of the Cavs and LaBron James.... The Warriors are on record setting play this year and I'm told they won it all last year so they could win it all again this year as well.....   We will just have to wait and see so thought I would write this blog to see if any other basketball fans agree......
fking

fking

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Jayallen's Blog amazing days

Birthday party for 2 year old

Sunday we celebrated my grandson's 2nd birthday. We had 10 children under the age of 8 running around the house and yard. Thank God for my second chance of being able to witness all those children having so much fun. Water balloon fight between the children they had enough with children going throwing water balloons at their parents Grandpa was off-limits thank goodness. Of course most of the 10 kids were related cousins to my grandson and then all of them look so familiar so similar I'm lik
Jayallen

Jayallen

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Jayallen's Blog amazing days

Walking multiple miracle

I saw a friend Saturday evening. She told me when she saw me when I was in ICU 2.5 years ago. I was in such bad condition. She told the friend thaT was with her " we need to brace yourselves, he likely will not make it.He doesn't need a miracle he needs multiple miracles." Well here I am I guess I have a little better idea why those that saw me then and now are so amazed at the fact I can walk and talk, omah maybe not at the same time. wow a comment like that will make you stop and once again r
Jayallen

Jayallen

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Jayallen's Blog amazing days

Wow what a day ( Saturday)

I met another new Survivor at the hospital on Saturday, it could've been me laying in that hospital bed. Just the way he joked around with the nurses I had the opportunity to meet his wife and two of his daughters I was there for lunch as his wife was feeding him and he looked at me with a big grin on his face and said I kind of like being pampered. One of his daughters asked me if I played chess. I said yes. It in not real good. I told my new friend next time we would play a game of chess and
Jayallen

Jayallen

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Sue's Sentiments

Relating to Mama Mia

I just watched Mama Mia, watched the joy of youth, the fun of middle age and the insanity that sometimes comes over us. It was a wreck of a day today, high winds, heaps of rain, dull, miserable and awful weather for my 69th birthday but I enjoyed every minute of it. I had Shirley my daughter and her husband and kids here over night so we had breakfast, what my grandson calls "BIG Breakfast", bacon, eggs, mushrooms, tomato, potatoes and baked beans, Christopher loves it and the others say "you
swilkinson

swilkinson

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Jayallen's Blog amazing days

incredible blessing

While volunteering yesterday, I talked to an elderly woman about the patient portal.   We chatted about a number of things, I gave her the cliff note version of my health scare 2.5 years ago, and my lastest blessing of having my poetry published in the newsletter. she asked if I had any with me, I said no, but I offered to recite "Darkness to Light", in June's newsletter. Her comments were humbling. She Said," oh that was so beautiful, thank you for sharing, that has inspired me. I replied
Jayallen

Jayallen

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Ksmith's Blog

i knew I wasn't crazy

So I have to share my news.. ( maybe for the first or second time lol)   While I was writing my blog about memory issues since my stroke and I wanted to write the proper name of my stroke. It was twofold; not only the risk of clot traveling to my brain from vertebral artery but the actual stroke which occurred from a clot that went in my posterior circular system that includes Basilar artery and carotid arteries. I was always focused on my vertebral stroke and not so much of posterior effec
ksmith

ksmith

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Ksmith's Blog

alright kids I did it

I 've finally signed up for a dating website and what scares me the most is having to tell my story and be turned down. Im not doing to think if that, we shall cross that bridge when and if it should arise. The one thing that throws me for loop is I'm looking at men in at 50. That seemed so old for so long and i'm 42 but mentally feel I'm in my 30's. Fingers crossed
ksmith

ksmith

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Jayallen's Blog amazing days

Sun Tanning the hard way

Everyday I get complimented on my way tan. I tell people they can have the same thing it's called waiting at the bus stop to him. Too bad it's just my face. But it is 10 minutes at a time so they have to worry about burning my face or head just the rest of my body when I do get to the beach. I'm not complaining I love the public transportation that we have give me my freedom and I've got really good color on my face be blessed and be a blessing. Jay
Jayallen

Jayallen

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heather's Blog - Heather was here

So the leg cast is off

Hi folks, Surgery was done on May 5th, and they took the lower leg cast off this morning, How I'll get through this again but longer if they do the tendon transfer I don't know. 4 weeks nearly sent me demented.   The surgery was planned to be calf lengethen, rec-fem lengthen and tib ant split tendon transfer. But once they started they found that the calf was too tight and while they lengthened as much as they could in the calf, if they do the tendon tranafer on a too tight calf it either
heathber

heathber

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Jayallen's Blog amazing days

Be sure to check out the newsletter

Heads up today's edition of The Stroke Network newsletter I am officially on staff healing with poetry I've always believed poetry was written to be shared and this is such a beautiful opportunity for me. The blessings continue to come your way I know they're coming my way we will everyone be well. Jay
Jayallen

Jayallen

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Jayallen's Blog amazing days

Blindness made worse temporarily

I have my annual exam yesterday of course they had to dilate my pupils why was it they do that on the sunniest brightest day of the year. And that doesn't want to see me again for another year I love it when the doctor say see you in a year. Be blessed and be a blessing. Jay
Jayallen

Jayallen

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Jayallen's Blog amazing days

One Step Closer

I stopped by my lawyers office and my disability case has been assigned to judge no date yet but that's a big step forward anyways keep me in your prayers you guys are all in mind blessed and be a blessing. Jay
Jayallen

Jayallen

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Punch1021's Blog

Update on My Brother

This past Friday my brother was breathing on his own and off the ventilator. They kept a tube in his throat in case he would need it again . When it seemed he was doing better he started having high temperatures. He has an infection.I talked to my mom about hospice/pallative care for him after I talked to his nurse. I felt so bad suggesting it but it helped when the doctor and case manager spoke to my mom. I didn't want them to talk to her first. My brother is back on the ventilator and I will b
Punch1021

Punch1021

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Jayallen's Blog amazing days

Follow-up appointment with my opthamologist tomorrow

I find it hard to believe that my opthamologist determine that I was legally blind and even if it's the Social Security Disability Administration definition of legally blind and yet they still denied me again I think it is a war of attrition if I can withstand the gauntlet of all the doctor's appointments etc. They finally give up and grant disability. I'm looking forward to the appointment because I really do like the doctor keeping a positive attitude I do know that my vision has diminished
Jayallen

Jayallen

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spacie1's Blog

Twelve Year Stroke Anniversary This Week

Gary's is approaching his twelve year stroke anniversary this week - On June 1, 2004 he suffered a massive brainstem stroke in the hospital while awaiting tests to find out why he had passed out earlier at home and again upon arrival at the hospital. No Dr. ever came back in the room to look at him that afternoon or evening, after we reported to the nurses that he was having a stroke. It was early the next morning when we had a meeting with the doctors and head of patient services that they info
srademacher

srademacher

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fking's Blog

Memorial Day For The Troops

Well, I said I wasn't going to try and write a Blog but I couldn't resist writing about Memorial Day as a disabled Veteran myself and can hardly walk even with my quad cane.... Today it was so many veterans out and about doing things with their families and kids.... My two kids are all full grown and got grown kids of their own and grand kids as well....   Being here at Fort Hood, Texas, a military post with thousands of active duty troops, two hospitals, and many, many retired veterans with s
fking

fking

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Gizmo, Gadget Guy

Just the two of us....

Lesley and I are realizing it is just the two of us in the end. I have no family to speak of. She is learning that her family is changing and our lives are changing so there is a divergence of wishes, thoughts, and goals. Her mum is soon 94 and her life revolves around the day she finds her self in. Her health is deteriorating some but she is still amazing. Living on her own but no longer driving. A great spirit still wells up and out of her. Our son just finished 6 months here in the States tra
GeorgeLesley

GeorgeLesley

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fking's Blog

Nothing Much To Discuss So Just Blogging About Life!!

I did my eye appointment at the VA and the doctor said to insure I use the drops mornings and at night to fight the glaucoma condition in my eyes or I could go blind..... So I know that has to be done this stroke is enough to deal with and I don't need nothing else to worry about..... I realize age brings about changes in every ones life so i have to think about that too and deal with it as best I know how....   I do feel I have come a long way as a survivor of a major stroke 12 years ago so I
fking

fking

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Sue's Sentiments

what did you do this week?

My children ring me up and say: "What did you do this week?" I go through the week in my mind. Monday I did, Tuesday I did, Wednesday I did etc. Of course it differs from week to week but certain elements happen through the month, Sunday Church and on the second Sunday of the month Messy Church in the afternoon. Monday mostly home as I do need a full day of housework, some time gardening etc. Monday night I do the Blog Report, I know it only takes a few minutes to read it but it takes well over
swilkinson

swilkinson

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lenny's Blog

aloha everybodys

Well i just got back from my vacation i went on a cruise the princess cruise ship , the star princess. We went to hawaii, we went with my wife and my daughter and my grandson. I posted pictures of our trip on facebook , i had a great time i have never been to hawaii and none of us have so it was alot of fun. I took my scooter with me and i notice that alot of people did i was able to walk. I had to get into the tender it was very scary as the boat was rocking. We rented a car and we went to
lharrison

lharrison

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Jayallen's Blog amazing days

Witness the Beautiful teaching moment between a mother and her small child

while waiting for the bus outside the grocery store a young mother with a small child, I guess 4 years old they walked to the dollar store nearbt then came bck to the grocery storethe mother said to the little girl you know how that lady help you in that store now you have to pay it forward you need to help someone else I didn't get the opportunity to talk to her but I wanted to tell her what a beautiful lesson that was to teach her little girl that is how the world can be changed if we start
Jayallen

Jayallen

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