• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
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    • 2,555 views

Reality check

At the hospital last week as I got up to leave so I turned around and I said to him you may have noticed and he said but you're recovered I had to explain to him that I am recovering for the rest of my life I hope it wasn't too much of a reality check for him. Jay

Jayallen

Jayallen

Silver Lining found in an ozone action day

National Weather Service has issued a ozone action Day warning 4 Southeast Michigan due to high humidity and high temperatures expected today And operating gas powered equipment such as lawnmowers etc. The Silver Lining that I found today is I'm unable to drive so I don't have to worry about limiting my driving and with my multiple impairments it's safer if I don't use the lawn mower anyways so everyday is an ozone action day for me. I am always able to find a silver lining the matter how g

Jayallen

Jayallen

Coffee With the Cops

It's early Monday morning and I can't sleep - I mean really early ...like 2 a.m. early. The dogs woke me up when they both needed to go out to potty, so here I am with brain spinning and sleep eluding me again. I had planned to go to the coffee with the cops meeting this morning at the clubhouse, but will definitely need a few more hours sleep before I go. We have the coffee on the 2nd Monday of every month, and continue the meetings through the summer months, even though many residents have gon

srademacher

srademacher

My Favorite Theme

I just changed my theme to Summer. I love this cheery background that makes me feell all summery. I had another theme up and then I didn't even have one just used the plain. But the background inspires and encourages me. I am so glad we have these to choose from. Ilike this on so much. Do you have a favorite?

SassyBetsy

SassyBetsy

Blessings beget blessings

Yesterday while waiting for the bus by young lady was struggling to find enough change for bus fare so I gave her the $0.06 that she needed and you would have thought I gave her a $20 bill I only regret that I can't give you any. I was sitting outside and he took out a bottle of water from his bag and he looked at me and he says I have an extra one you wanted I said absolutely I thanked him and told him to have a blessed day what a blessing you know from giving young lady just a couple pennies

Jayallen

Jayallen

Locked Out

I am locked out of my brand new cell phone. I used my fingerprint to unlock it but it says Not A Match. So I called to fix it. I needed to open old accounts I cannot recall because it was all automatic remembered by computer. So it took some doing to prove it was me simply because the fingerprint thing said it was not me. So the security is great. But when I need to prove it is me now then it is hard. Besides those passwords were created by another version of me in my old life. my real life.

SassyBetsy

SassyBetsy

"You seem happy today"

I just wrote the Blog report for the week ending 3rd June. In writing the report I reread each blog written in the period, look at the comments and register the points made in the blog. I want to just give the readers of the report an idea of what the blogs are each about so they can read them if they have not already done so. I have been the Blog Moderator for some years and have read some remarkable blogs in that time. Some were superbly written, expressive in character and wonderful to re

swilkinson

swilkinson

4th of July

Today is the 4th of July. I was going to take William to the pool. But, I am having second thoughts about that. It is very early in the morning 5AM. Yes, I am still waking up early. William has been acting up at the pool. I don't think that I want to put up with that today. I have explained to him that I do water therapy for him for his benefit and not mine. Yesterday, He did nothing. I had him stay home all day and he was fine. I went to the dog park and exercised the dogs and then w

ruthwilliam

ruthwilliam

Contemplative life

As I have my coffee and enjoy the warmth of the sun on my face I can't help but be overjoyed with the blessing of my survival. When I consider my blessings I almost begin to cry. There are times I hit a barrier and frustration seeps into my head. I took my own advice sat back took a deep breath and thanked God once again for giving me a second chance. I know how blessed I am another beautiful day. To any Canadian friends out there happy 149th Canada day. To my fellow citizens of the united

Jayallen

Jayallen

In Memory of Dan (Our son)

Thank you all for your kind words and expressions of sympathy during this past week. We have made final arrangements to return Dan's cremated remains to Colorado for burial. We will have a Celebration of Life Service in Longmont, Colorado on July 30th and I have asked that in lieu of flowers, anyone wishing to do so may contribute to the Stroke Network in his memory. I've already received some checks made out to me that I will cash and send one check for the total donations to Steve Mallory

srademacher

srademacher

Well I'm Still Just Getting Along Slowly

My condition hasn't changed very much from 12 years ago as I am still doing for myself and got a lady coming in 5 days a week for one hour to help me with my socks and shoes and caring for my feet which is very hard for me to reach and do myself.... that's a big help every morning.... My wife helps me with bathing or showering at night so the VA cut me down to one hour for help coming in home....   She helps me with the exercise bike too that helps with my paralyzed side which I can't use very

fking

fking

Pizza day.....

It's the second to last day of my pain course.....and the class is making and cooking pizzas. What this has to do with my pain confounds me. But I am making one, anyway. Instead of a tomato base, as everyone else is making, I have decided on olive oil and garlic...just to be different.   As the pizzas bake in the ovens, the OT is questioning us in our pain.... I tend to be the odd person out, as I am the only stroke survivor doing this "Guinea pig" course. "Guinea pig" course because this

Mitch04

Mitch04

So This Is Summer

My medication was switched with my neighbor friend But i caught it. Dint take her meds. She took mine. But the nurse said it was tylenol she took She vomited all night and says she cannot keep her eyes open. It was lyrica 300 and long acting opana 10 mg. Opana is not to be given unless prior opiates used.   The nurse said he had tylenol in the med cup and that my cup was still on the cart. I told the next nurse that came on and asked her to check on her as the nurse said she did not know anyt

SassyBetsy

SassyBetsy

Again change in horizon & wondering what to do

Now that finally we are settled in this new home & everything is falling back into place again. I can find bathroom in night with my eyes closed again & not bumping into window Now I can see another change in my horizon. & I don't know what to do. I know the change which is planning to show up in my life is good one but it is putting me out of my comfort zone & routine & I am not so sure what to do. will need to learn new things & not sure whether I want to go throu

HostAsha

HostAsha

PT Break

My therapist is ending our sessions now and says lets reevaluate at the end of the year. She gave me homework. But my going to PT is more than the session. I do more walking than I used to do. It is my outing day I ride in van and sit in cafe and the lobby. I love my time alone still in safe environment. I am done. For now.

SassyBetsy

SassyBetsy

Almost finished......

I am about to start week 5 of my intensive exercise and talks about chronic pain, and after four weeks of three days a week for 6 hours each day I am still not sure it is helping greatly. But I must remain positive, and I DO admit the course has increased my motivation to stretch and exercise on a daily basis.   I will report more fully next week once I have completed the course, although I will still have to return for assessments on a monthly basis.

Mitch04

Mitch04

winter here, and it's cold and windy

I haven't written a blog for a while as really my life just goes on from day to day. I have settled into a routine three years and nine months out from becoming a widow and my life more or less follows a pattern. The days can be soothing or dull depending on how I feel on the day.The winter days of course compound that as they are shorter and the evenings longer so in the evening it is watching TV, doing some hand work, knitting, crocheting, beading, whatever I can lay my hands on that makes me

swilkinson

swilkinson

What's Next

The month of June has been a blur for me. Tomorrow will make two weeks since my brother's funeral. I am still in disbelief he is gone. Today I could have used some of his humor. Better yet to be with me and give me some comfort. When my brother was alive I would often think about how life would be if he could have texted me, called or better yet if he still wrote me a letter. But today I had to go to court and go by myself. I had to take my ex to small claims court. I didn't want it to go t

Punch1021

Punch1021

Broken Hearts

A parents worst nightmare is hearing your doorbell in the middle of the night, and having an officer inform you that your child is deceased. I'm still reeling from that nightmare - we lost our youngest son, Dan - the one who moved to AZ with us and lived with us for three years before buying his own home - I wrote the following poem to post on his fb page:   With broken hearts and teary eyes, Those left behind are wondering why. Though we can't understand your horrible pain, We know in our

srademacher

srademacher

Living In The Moment

Stop telling me to live in the moment. Some moments are painfully unbearable and only tolerable because I can remember a past memory that brings a smile as I relive it. Or project me into the future away from now. That vacation spot that is put off but would be as perfect if real.   I need to look ahead to a nice luncheon out in the real world. I want to sit on the fringe looking at my old familiar and visiting for a while. Shopping walking in a mall talking in restaurant sightseeing. I am mor

SassyBetsy

SassyBetsy

had my surgery

well i had my surgery back in May. Now I am in OT. I cant squeeze my fingers anymore since the doctor released the tendons. I had to wear my arm bandaged up for 2 weeks and now Im in a cast for 6 more weeks. I cant wait to get it off and see my wrist straight! My fingers have been curling back up but hopefully wearing the splint and doing OT will get them straight. Thank you all for your support

CagedBird

CagedBird

Humbled yet honored

I was nominated for recognition as volunteer of the month and this afternoon there was a a gathering of volunteers and employees to announce the employee of the month and volunteer of the month I was recognized as volunteer of the month for all of my hard work and I said this is too much I'm having way too much fun I love what I'm doing Jay

Jayallen

Jayallen