• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

Blogs

Featured Entries

  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
    • 12 comments
    • 2,542 views
Jayallen's Blog amazing days

happy Dance

Every year I have a CT with contrast, It was scheduled the day after 2019, on 01-02-20, I received a call from my neurosurgeon's office, I got a clean bill of health, the only recommendation is a follow up CT in one year      
Jayallen

Jayallen

3
Ksmith's Blog

1 year old soon

Thanks Sue for the push to write.   Blogging has always been hard for me. The words don't always make it from my brain to my fingers. HAHA. Some would argue that the word don't go from my brain to mouth.  I would have to agree with that one.  I never seem to have something to write about for the thought doesn't stay in my head long enough. But I'll try:    In March, my mom and I are driving to Florida, via North Carolina to stay with my sister and family. I was going to fly 
ksmith

ksmith

3
Kevin Rider

FLU

The best laid plans of mice and men! Well my new year intent was sabotages by a bout of nasty flu. It attacked my muscles and they ached terribly. It even affected my walking and it felt like I was going backward. On3e night of heavy blankets and sweating and the fever broke an by Thursday I felt better but was washed out energy wise so I decided the better path was to rest and recuperate so cancelled Yoga and Gym. I also had a presentation scheduled for Sunday and wanted to conserve energy for
KevRider

KevRider

2
Gizmo, Gadget Guy

Another RV trip complete

The rv trip I had mentioned to Texas is now complete. All in all a good trip. Mum handled it well but it is likely her last trip in the motorhome. She had an increasingly  Hard time moving about and her interest level seemed less than before. So Lesley and I have decided that we will just take shorter trips from now on and leave mum with a local caregiver she has become good friends with.   The trip was about 2500 miles altogether and we got to see some friends in Louisiana for a few d
GeorgeLesley

GeorgeLesley

6
SueC

A New Year. A New Word

Well, it's new year, and I am feeling pretty positive about life.   I started following an art challenge, and am happy with the progress I am making. I started off the year by going to an art retreat with a good friend who is very talented. My word for the year is LEARN.  As in learn new things.  Learn Acrylic painting - I am signed up for a class that starts next week. I have a bit of aphasia when I get overstimulated, and I am now at the point where that won't stop me.  If
HostSueC

HostSueC

3
Kevin Rider

Presentation

A goodly amount of travelling reduced mu exercise program but still:- Wed: Yoga joined by my wife. Thu: Gym Fri: drove tp Phoenix ate out. Sat: event & drove home. Sun. Day off. Mon: Drove to Sedona and made presentation. Ate out. Tues drove home got sick - feels like a flu.   The big challenge for the week was returning to public speaking. Especially as I still have trouble controlling speech. I was sufficiently concerned that I had a dream 2 day
KevRider

KevRider

4
Strokewife's Blog

By George, I Think He's Got It

All I want is a room somewhere, Far away from the cold night air… Lots of chocolate for me to eat, Lots of coal makin' lots of heat… Warm face, warm hands, warm feet…Oh, wouldn't it be loverly? Loverly, loverly, loverly, loverly…   Her day had been quiet allowing her much time to do a bit of baking and wrap a few gifts during the week of Christmas.  She really hadn’t got him anything aside from a lamp that projected the solar system on the ceiling to add to his light collection,
Strokewife

Strokewife

4
Sue's Sentiments

The word for this year

My word for this year is "SING". This came about in a strange way. I was in a lift and when I got off the man who had been in the lift stopped me.He said: "When you hum are you singing the words in your head?". I had to think about that but the answer was "yes". I was a bit embarrassed really as humming in company is not exactly good manners. Then the man smiled at me and said: "Oh you are a mind singer like my wife and daughters!". I had never heard of mind singing but was relieved that humming
swilkinson

swilkinson

4
achandra's Blog

Happy New year

Happy New year everyone.hope you all had wonderful year. For our family 2019 year was filled with lot of joy.  most importantly our son got into one of the top medical college in the USA making all of us so happy & proud of him. & he already finished his first semester there & enjoying himself, he has great set of friends & amazing professors who all are all great doctors who want to make a difference in people's life, & according to him none of his professors have any big ai
HostAsha

HostAsha

1
Kevin Rider

A New Year

So it's 2020! I'm not usually into blogging or journals etc. But some times I loose track of my recovery and dip into depression. Every day seems such and effort and I try and keep an attitude of gratitude, for still being here if nothing else. Daily improvement is so slow that I loose sight of my baseline, which is I can out after the stoke paralyzed in both limbs on the left side and unable to speak. Yesterday was New Years Eve and my last physio therapy session in which I ran. My recovery has
KevRider

KevRider

7
SassyBetsy's Blog

Heart Attack Christmas Eve

I was sitting in a movie theater watching a movie enjoying some popcorn with my son and all of a sudden I started feeling like I really needed to get my bra off eyebrow is way too tight then that pain radiates down my left shoulder and arm and even my hand and I thought something's not right here I just couldn't get a full breath even with that darn tight bra off and I did something which I never thought I do in my lifetime I leaned over and I asked my son if he could please unhook my bra becaus
SassyBetsy

SassyBetsy

7
Sue's Sentiments

Kick back, relax, Christmas is over.

After Christmas is over there is a short period where I can relax and recover from that chaotic run-up to Christmas that happens every year. There is always far too much to do in December and I wore myself once more. As usual I accepted too many party invitations but probably enjoyed them less than usual. This year being invited to a so called party meant paying your own way at the designated venue, usually a restaurant or Club, then in my case trying to find things I could eat with no dairy or
swilkinson

swilkinson

3
nancyl's Blog

My brother passed away

My brother the one who was staying with me since Sept - passed on Dec 10, 2019. Bittersweet. We are all doing ok. It was hard on Dan - hard on me. But my brothers passing was not a overly long agonizing death , for that I am thankful.. Nancy
nancyl

nancyl

6
achandra's Blog

my inner growth is continueing though I am still work in progress

like I have been telling you guys & writing in my this online journal so that I go back & take a look at it again & find  those wise words again when I am wavering when encountering some negative events in life,  I have been attending this discussion format classes in our temple nearby where they are discussing bhagwad Gita sacred& ancient book of Hindu religion. It is teachings of God to prince on the battlefield where he is all torn apart & questioning these basic question
HostAsha

HostAsha

1
Gizmo, Gadget Guy

New hobby continues

Well my new hobby of playing a mountain dulcimer is moving along very well at the moment. I have been practicing for three weeks now and can play 4-5 songs poorly. Mainly I am having fun and it has rubbed off on Lesley. She has got her dulcimer out and is practicing with me. Playing together has really helped me as she has played off and on now for many years so I am learning from her. Last week She and I went to a day long workshop in the store where I bought mine. Much of it was over my head,
GeorgeLesley

GeorgeLesley

5
My Journey Within

It's Almost Christmas

It's hard to believe I've been absent from the forums for the past few months. I'm still hosting M & W chat in the afternoons. I enjoy giving time here at Strokenetwork. I have just needed a break. It's been a little long longer than I expected and may not be finished yet. SAD (Seasonal Affective Disorder) has been really tough this year, unfortunately. A few med changes and hopefully soon starting light therapy. I've been keeping to myself but also keeping busy with crafts and DIY stuf
HostTracy

HostTracy

4
SassyBetsy's Blog

Almost hurts too much to share

I just feel like I have to get this off my chest or I'm going to burst. Right now I really need to get my spinal RFA and I'm having to ask the doctor to up my medication because it has been 4 months. I needed it scheduled at the 3-month Mark I can't go beyond that I've told them before. But they were trying to get me in again for the surgery which I have not been well I've had multiple sinus issues in fact I'm going to see a specialist for a second time and get a CT scan this week. That's someth
SassyBetsy

SassyBetsy

5
Sue's Sentiments

Time flies...

Well I complained last month about how fast October went and so indeed did November and we are a week into December already. My life is back to being routine again. It took a lot longer than I expected to get over the brain op to clip the aneurysm and it was difficult for me to go through that but I feel I am back to normal now. Thank goodness. I can deal with a whole day now without a nap, do three things in a day instead of two and don't have to run home for a nap between 2pm and 3pm. I found
swilkinson

swilkinson

2
Ksmith's Blog

colonoscopy...

well today was my colonoscopy. My 5th. The reason was for I have pre cancerous polyps. Great news, I have no new polyps.   BUT I have 2 internal hemorrhoids that are the largest he has seen in his 25 years of practice. OH BOY. SO ... I go see a specialist Friday, 13 for a consult . ARGGGGG.. my poor buttocks but two things to take away...1. I had the BEST nap ( thanks to anesthesia) 2for the next 5 years, no colonoscopy.
ksmith

ksmith

9
achandra's Blog

I am so rattled & feeling loss of great spiritual teacher

when we went on our vacation to India got great news of one of the family member which filled our heart with so much joy that I still smile thinking about that great news, & while coming home from India we got worst news on our whatsapp message which rattled both hubby & me no end & it tears me up every time i think about it I still can't believe death of our spiritual teacher with whom our paths crossed right when I felt like I was drowning  in grief of my stroke  & disability &
HostAsha

HostAsha

3
Gizmo, Gadget Guy

One more item off bucket list

I am still recovering from the loss of my best male friend last month, but slowly getting some better. His widow has called for help a few times, but not much. That makes me feel like she is finding her own way thru the grief and that is a good thing. I am quite willing to help, but will only do so when asked.   On another note (pun intended), long time readers may remember a blog I wrote in 2014 about wishing I could play a musical instrument. The Essence of the blog was that I have a
GeorgeLesley

GeorgeLesley

6
achandra's Blog

We are back

We just returned  home from our month long vacation to India, Singapore & Malaysia. It was fun filled trip. We had planned to do sight seeing with hubby's side of family in small AC Mini bus, trip was planned by hubby's older brother & we had lot of fun together. I get along well with every one so traveling together is always fun, though because of my unsteadiness on getting up & down tall steps & places if there is no railing,  hubby was always by my side & my sister in laws
HostAsha

HostAsha

6
New Things

Heart Felt Thanks, I am lucky

How can a month be full of some of the saddest moment and the highest highs and show me where the gratefulness grows.   Today I'm morning a very good friend of mine here in the nursing home that I met shortly after I arrived years ago. There were times when I thought that she was going to outlive me even though she was in her late 90s. It's a mystery that she did not reach a hundred I'm told but I'm not sure which number after 5 she reached but anyway there she was sitting at the table
SassyBetsy

SassyBetsy

4