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    A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

     

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  • HostSue

    Living on angel time.

    By HostSue

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I was a little bit shocked by the news but taking into consideration I have had the melanoma op, the lymph node dissection etc I am not really a good candidate for another operation, especially brain surgery.   The specialist was fairly brutal because I think  he wanted me to know if I wanted an operation it had to be after I got a clearance from the melanoma specialist and that would take time. He said he knew I had a long wait ahead of me but not to worry.  Not to worry!!! So back to basics, no stress, no strenuous exercise, no * blush, sounds like no fun at all. So what can I do? As usual make some decisions, live a quiet life, let the future take care of itself, one day at a time. Hell's bells, what else is new?   So I have a plan. I have to just go on the way I always have, going about my usual routine one day at a time. Whenever I start to worry I will visualise that little bubble about the same size as the tiny diamond on my engagement ring. I will visualise a tiny angel sitting alongside the aneurysm, with her thumb firmly on top of it holding it in place. I know one day it may be that she will take her thumb off and the pressure will build up and life as I know is it will be no more. But It will happen to us all one day, in one form or another.   I went to Dissection Clinic down in Sydney today and there have been no changes in the past three months to the Lymphoedema, which is good news. In the interview I told her I had regained my confidence in walking down stairs which had taken a year to do and had recently started yoga again. She seemed pleased with the progress. No more interviews in any of the Sydney specialists rooms until next February. Hurray! I have survived twelve months since the melanoma was removed and six months since the operation to remove the lymph nodes. I have a lot to be thankful for.   My daughter took me to both appointments, I was so glad she had the time. We stopped for lunch today before we left Sydney and although it was expensive it was a happy time and one we rarely enjoy together. She also got the news today that the position she holds as Captain of the Cardiff Corps has been extended for another twelve months which is good news for me. If she had been moved it might have been a lot further away. Her husband's appointment has also been extended. Though he will now have a wider area to cover, which means a lot more time on the road. But she said he can cope with that.   On a less happy note my special friend who has the leukemia has now been in hospital for eight weeks and he now seems to be getting much weaker. I have been a regular visitor and it is painful to see the deterioration. With all the people  I  have ministered to in hospital you would think I would get used to seeing that happen but I never do. I am always an optimist, thinking with the right treatment, an adjustment to their medication etc they will be fine. But that is not always the case. So maybe there is more bad news to come.   There are signs of Spring now, birds building nests, green grass after a little rain, even some blossoms on the prunus trees in the parks we passed today. Hopefully the nights will warm up and we can start packing away the winter clothes. I have no plans, the future is a blank canvas. Don't think there is much fun and excitement ahead but who can tell? If I wake up breathing and moderately energetic I will endeavour to have a good day.    
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My sinus Infection.

I am ill. recovering. I will get the antibiotics tomorrow. I saw my own doc at urgent care, I was not taken seriously by this home, not ill according to them....but news flash...my pain meds fight fever just like acetaminophen.   And my sinuses are clogged, sometimes nose is clear Hot cocoa,hot tea, apple juice. Hot helps, and sleep. Will I feel good for memorial day? Please.  

SassyBetsy

SassyBetsy

 

The Princess and The Pea

Today I went for a shoe fitting, and I needed the insole adjustments made too because they were not done properly.  I walked in telling  the guy that I felt like I walking on a pebble in my shoe but it was only the insert and maybe I was like the princess and the pea. So he took out in insole and he found a tiny thing in the seam.  I said Seriously?? And he said well you called it!  Oh we laughed, but then he took the insert back to make it thinner so my shoe will be more comfortable.   I love my shoes now and they fit with plenty of room now that the insert has been made thinner.  And the best part is that I get the shoes and inserts free.  And I found out that if you are VA then you get two per year. wowee. But  I am happy with my new shoes now and no one will be saying these are not the right size to me or else this princess is going to thow a pea.   And then when I got back, there was my admirer waiting for me by my room. He was  He is blind and so the housekeepers take him to my room.  There he was asking the activities woman if he could have two mini candybars, one for himself and one for me.  And suprisingly she gave them to him, and I hesitated before I chose on from his open hand. It was time for me to get ready to eat lunch.  Well Iam ready for a nap and a movie.   I am going to hold onto my nice day. 

SassyBetsy

SassyBetsy

 

Sharing my story, self advocating

Recently I had to speak up about how my diabetes is treated, I told the nurse I had dr. permission to administer my insulin and I knew how to take care of myself  and then she said AND YET YOU ARE HERE IN A NURSING HOME....and I suggested since she is new does not know me can she go get the supervisor who could advise her, she insisted we do it her way which was with holding insulin and that was wrong. And in the end The next day, my endocrinologist called them with specific instuctions which I had been self advocating all along. No one said that nurse got it wrong....   I cried because I have reasons for being here, and that sounds benign but it was insulting.   And all my doctors, therapists say self advocate, educate about stroke,about pain syndrome, about  what I need,who I am.   So today that lovely woman brought me communion. I cherish her. I talked about my appt yesterday with pain clinic. I shared about my possible upcoming electrode surgery. She helped by saying she knew knew 3 that worked well,1 that did not. But I shared my story about stroke and getting pain, and how I came to be here, my disability denied then established, my inability to live  alone. Well she asked me what to pray for and I told it all. I noticed she looked at her watch. I apologized for burdening her with all that including talking about my lost career being early retirement, but I missed my work dearly. She said if we help 1 person we are successful. I wonder if anyone listens. A new worker here replied this is a nursing job,pays the bills. I doubt either one of those statements about being a CNA is entirely true. And I am more horrified at her statement to a patient. I worked in schools, I would never told that well it was a job.......well perhaps for that unfortunate soul, maybe this is first job she gets or keeps...but we here in a nursing home are not afforded any dignity.   I feel sorry for the employees here because I had successful job and life and I knew how to behave professionally, even when I had challenges, but I am regarded now as a vegetable, but even though, I have broken body and mind, my soul my soul is here requiring nuturing and dignity.   So that visitor brought me a reading along with communion. It said to be humble...lots of stuff about humility and blessings. I feel bad for my pride, yet rebellious because hey I earned that...but in the end are we not all damaged, are we not all the same in that we got where we got with help, and that we pray for those who do not understand. I realize I am one who does not understand maybe.    I just feel violated, treated disrespectfully, but I must trust them because of the surgery I need. All this self advocating is exhausting. Thinking is exhausting too.   I have unseen disabilities that is difficult to deal with. I have pain which is crazy to talk about.   But can my future change with an electrode?

SassyBetsy

SassyBetsy

 

I am so confused, don't know what to do

as most of you know I am blessed with amazing family, who has great dad who provides his unconditional love to all of us & we also have very bright son who on most days is nicest, wise young man who does right things, but I find it sometime we have to push him hard or ask ton of questions before he will do things which is utmost important at this point in his life, so it just escapes me what is he really scared of, why is he not doing what is required of him to do, to be successful in life. I get so annoyed when after telling him something to do million time & he will say yes & when time comes he will not keep his words, such a childish behavior escapes me. I blame me since its not hubby's quality, that lazy quality is of mine lol. but I have learnt my lessons through some of those mistakes of mine, & I don't want him to go through hardship because of it, why not learn from mommy's mistakes than learning from his own.  Anyway I had to vent. I just pray he never pay costly price for his laziness. I tell him he is lucky we are his parents so we won't give up on him & keep on trying our best but be worried when other people start giving up on you, and you loose best opportunities in life.   Asha  

achandra

achandra

 

I Am Long winded Lately LOL

Boy, I have read back through some of my replies lately and wow I have had a lot to say. I am going to call it passionate response. I am so happy that I have an outlet with Strokenet and now another with my local stroke group. I have a lot to say and have a lot of thoughts that I can be really passionate about. I sometimes want to do more...educate others...help improve medical therapies...bring light to subjects about stroke that seem to be put on the back burner. I know I am extra passionate about the type of stroke I had. Also that I am 45 (42 when I stroked) and looked over because of my age which played a part in not being diagnosed until 2 months later. Statistics say that in a research group of 2000 consecutive cerebellar stroke patients (1987) had a mortality rate (23%) almost twice that of cerebral strokes (12.5%) and brainstem strokes (17%). These of course may be different now 20 years later. But it shows you that cerebellar stroke is no joke. Part of the problem is the difference in cerebellar stroke symptoms and the problem with missed diagnosis. I think about this when I think back to my missed diagnosis. I was sent home in less than 48 hours of having a massive stroke. In cerebellar stroke the days after the stroke (1st week) are the most dangerous. The swelling in this area due to tissue death and damage can lead to serious and deadly impacts. Swelling and edema in this area can lead to herniation of the cerebellar brain tissue up or down, can obstruct the 4th ventricle causing direct brainstem compression. This can lead to deadly herniation of the cerebellar tonsils into the foramen Magnus. All in all this can lead to death. Phew...I need to shop. 😡

tmciriani

tmciriani

 

having fun

Those of you who have enjoyed my poems in the monthly newsletter Stroke net. Will be happy to know I have compiled a book of several poems. You know me as Jay Allen, a pen name I created while at University.  I was under the impression, I had to use my legal name for publication purposes.   My legally given name is John A. Yurgens.  Please take the opportunity to check it out.  The book is called "Survival:  Life after a stroke.  Poems of my journey."   I am almost done with another book "The journey continues"  I hope to have a late June or early July release date, I will keep everyone informed.   Be well stay strong. Peace,Jay    

Jayallen

Jayallen

 

A tangerine.

I spotted an orange thing on a little bush out here in the secret garden that my room has a patio on. I thought oh wow, and asked the housekeeper to go out there and pick it for me, recalling how I would go fruit picking in the past. It was a tangerine. It was delicious, forbidden fruit..Small unusual amazing things happen to me once in a while.

SassyBetsy

SassyBetsy

 

New Shoes and Swelling

I am so happy with new pretty shoes, athletic,supportive custom made orthotic,all paid for from diabetic medicare program   but I need to break them in,and my feet swell off and on   I wanted some pretty ones, I looked through catalogs, got what I liked, bought matching socks and tank tops   So I asked for help putting them on and the cna says why do you keep buying these shoes? ok,these were fitted,measured, but i swell, but i cannot wear slippers always   I go now to cardiologist again to address swelling next week i go back to have fitting with shoes prob is i get blisters sometimes when shoes loose my feet are numb so i need to be careful all this post stroke meds made swelling, numbness but I need for pain   I miss my Sandals   Bye guys Pray for my happy feet because I love these new shoes I want a normal shoe they said this is size,but maybe i need a wider one,seems like my size is right but foot is balloon   I expected her to like my new shoes, not complain about type of shoe   they said tie was ok just as flexible as velcro ones i had before

SassyBetsy

SassyBetsy

 

On the road again

Well after my pacemaker implant healed up and now works fine, I also had a heart ablation. The pacemaker keeps the low resting pulse good and the ablation keeps the high pulse steady without meds. So, we are now on the road again heading ultimately for Alaska. We left Tennessee the 4th of May and are now in central Montana for a few days. Lesley’s mum is handling the trip very well, the motorhome is performing great and all is good here now. A few days here in a town called White Sulphur Springs, MT at the base of the Little Belt mountains and we will be moving on to Shelby, MT and then on to Banff, Alberta, Canada for a week.   after that on to Jasper, Alberta for a few days, and then a few weeks of roaming around British Columbia. After that, on to the Yukon and finally Alaska for a month or so. Then a slow return South on a path yet to be determined but will likely include a trip across southern Canada thru Winnepeg and maybe a stop where we used to live in Northern Minnesota. Should be back in Tennessee sometime in August.     we had talked about this trip for many years but never seemed to get it done. Then when Lesley’s mum came to live with us it was decided. She and her late husband had always wanted to ride the rails across British Columbia thru the mountains, but never were able to do it. Lesley and I had planned to see the Canadian Maritimes, Nova Scotia and some other provinces this spring and go to Alaska and British Columbia next year, but now that mum is living with us we just flipped the trips and will do the Maritimes next year so we can fulfill mum’s dream with our motorhome this year.   so we are blessed with good health, a wonderful 95 year old mother to travel with, and the opportunity to do so. I have nothing to complain about, life is very, very good to me at the moment. Yes I had a stroke, yes I still have some deficits and still take a few meds, but all in all life is being good to us.   time for a tea.

GeorgeLesley

GeorgeLesley

 

Gift of colored pencils

Today the activities director gave me a set from costco and she ordered 2 book from an author I adore. This is special since there are other pencils there to share. This is all mine. I feel grateful, happy, and loved. It is a miracle gift. I cannot wait for t*he books, especially since onc e it was promised before, but budget excuse ruined it. Getting new pencils is a miracle to me, with a sharpener and canvas pouch.   Kindness rocks. I have to pay it forward too. I regift books I do not want that are sent to me.

SassyBetsy

SassyBetsy

 

Dan is having more trouble

Since the AFO got put on wrong by the nursing home Dan can hardly walk. We make it a few steps and his affected leg just buckles. We have told the nursing home we want him PT assessed and maybe take a look at his AFO... Dan weighs about 70 LBS less than when the brace was fitted so maybe he just needs a new one. Pity cause the old one is a very good one. I was told they don't make them like that anymore. always something... right... lol

nancyl

nancyl

 

Happy Mothers day

Happy Mothers day Everyone. hope every one celebrated  mothers day in their own special way. I did too, I feel so grateful & blessed to have wonderful son & hubby who made sure that they follow my orders on what I want to do on mothers day :). and we all had great time together.  We went to see great Indian movie & I  also feel same way how lead role character tells  his son to do when he dies, whistle instead of crying when  he is  gone, that's what I am telling my family too, I m telling my family to do the same, whistle with joy that I lived my life with full of joy.   I am thankful for this stroke also which gave me second chance to enjoy my family  and this world with complete different perspective. I am grateful for all new opportunities, friends, books I have encountered post stroke which has made the person I am today.  life is great  once again with full of meaning & joy, nothing I do any more today without appreciating the fact that I feel so lucky to be able to do simple things in life. who would have thought doing home chores & going to bathroom without audience can bring so much joy in one's life, I agree so much with Diana Nyad who says when things gets tough in life you have to find a way. I do feel with supportive family & my own initiative I have found a way to appreciate all days. Since I have seen in my own life after dreadful day sun eventually comes out, it  is just behind those clouds, all I have to do till then, is  just keep my head above water & not drown myself in self pity.   Asha  

achandra

achandra

 

Amazing Mother's Day Gift

I was just thinking earlier in the week how quiet it would be again this Mother's Day.  Our youngest son is gone, he passed away nearly two years ago.....he was the one who always made sure he did something for Mom on Mother's Day and his Dad on Father's Day.   The other two sons are married and have wives who are Mother's so the day is usually spent with their own families.   Then Saturday came, and I made my usual short ride to the mailbox, taking Misha (our 1 yr. old schnoodle) along for the ride - it's his big thrill for the day!   lol   I grabbed the hand full of mail out of the locked mailbox and headed back home.      As I sifted through the mail, I saw an envelope from the Donor Organization of AZ and didn't think too much of it, aside from the fact it was in a thicker 5x7 envelope.  I assumed they were doing an annual campaign to get people to sign up for organ donations.  Upon opening the envelope, I found a letter, a brochure and another smaller sealed envelope inside.  There was a note that said "please read letter before opening smaller envelope."   I began reading the letter and it explained the process of putting organ and tissue recipients together with their donor families.  The letter also explained that if I was not yet ready to read correspondence from the recipient, that I could hold onto the letter and wait till I was ready. or send it back.  The brochure had suggestions as to how to correspond with the recipient if we wished to do so, taking into account privacy issues.   I proceeded to open the smaller envelope and inside was a thank you card from the recipient of some of Dan's tissue.  The person explained that they had surgery and had to rely on tissue donation to complete the process in order to be able to get back to being physically active.  They thanked us for the gift of tissue donation and said they would keep our loved one in their thoughts.  Wow, I couldn't hold back the tears.......Dan is still doing for others and helping others, even though he is no longer here with us......I couldn't have asked for a better Mother's Day gift.     Sarah  

SarahR

SarahR

 

The Art of Walking

Many, outside of our world, will not understand. That’s why I write this for you.  Or US. How many 56-year old people need to think about walking? Just another “Step” on the journey of my the new normal. I can’t do all the thing now that I did before the stroke. Before, I walked without thinking about the mechanics involved And I always had a long stride. Recently, I’ve realized with my old long stride I tend to limp Causing more pain in my other hip. I need to discuss with my physical therapist. No need to create more issues, doing something wrong. I have an idea, but won’t try until I get the okay from my therapist Always leave the bigger decisions to the professionals. Simply looking for that inner balance Of eliminating pain, avoiding other problems. And maybe Look a bit more Normal, as I was around town. Thanks for allowing me to spew. I can’t think of anyone my age spending 30 minutes thinking about walking. Lol I know you get it.  Be well, God Bless. Jay  

Jayallen

Jayallen

 

How long is forever?

This afternoon I went to the Lymphoedema Clinic for the first time, I was anticipating getting some of my most pressing questions answered. I had done what everyone does, gone to Dr  Google for my answers about the relationship between lymph node dissection and lymphoedema. Most of what I found related to breast cancer but that is understandable as the breast cancer girls pioneered the use of lymph node surgery. I am very grateful for that and the surgeons who pioneered the treatment.   The girl who I saw put me through the usual paperwork, I am getting used to it now, taking them step by step through the discovery, diagnosis, surgery, recovery etc. Then there was examining the wound site, taking the measurements of both legs etc. Then she asked me could she call a colleague in and the colleague explained that I would have a new pressure stocking, measurements would be taken six monthly and on and on. I was a bit puzzled as the surgeon had said I would have the stocking at least until the end of October, so I mentioned this. The colleague laughed and said : " I don't think so, this is forever." And I burst into tears.    The girl who had asked me the questions was dismayed and tried to calm me down. I'm sure they thought I knew this was a possibility. But I didn't. I assumed the condition would settle down and I would only be wearing the stocking for long distance traveling once October ended. I guess it is like any diagnosis, I found it af bit hard to swallow. Initially it was devastating. I thought it was a case of accepting the changes, having some physio and then a new life with a new normal. Silly me.   When the colleague has gone back to her room the original nurse Connie explained that certain factors like getting overheated, stressed, tiredness and overuse of the affected leg can cause the lymphoedema to spread. So it was safer to continue to wear a pressure stocking.  Dr Google didn't tell me that. So I now have to get used to the idea of having this condition forever. I can still take the stocking off for short periods of time, wear gym pants which will apply some pressure for swimming, walking on the beach with my grandchildren etc but a lot of normal summer pursuits will have to be carefully monitored because of the  possibility of overheating.   I know a lot of my friends will pat me and say "never mind" but I do mind. It is another body blow, another little death, the death of summer dreams. Just the thought of finding some place to change in and out of a pressure stocking near a beach kind of denies being able to do anything without prior planning. "I'll just be five minutes, well closer to an hour I'm afraid." Nothing spontaneous about that is there? Okay, I know that is the case for a lot of stroke survivors so I am lucky, but I need time to get used to the idea.   And that kind of sums up the last couple of decades, changes that I have had to get used to. And eventually I do. But not without a fight usually. Sorry as I am about my inability to adapt to every new situation. Maybe body image is still one of the issues, I want to look and feel as good as I can for my age and circumstances. I guess we all do. I know some people are able to relate to this and others will find it difficult. After all I still have the use of both my legs.   How long is forever? Nurse Connie said it is like today, tomorrow, the next day and the day after that, if I can  think of it that way it won't be so hard. Perhaps the survivors will understand that. I can in a way. I did a lot of that when I  was a full time caregiver for Ray just looking a few days ahead, not too long ahead or I couldn't adapt to the sudden changes. And we all know how suddenly life can change. Hopefully this won't be the case for me. Until the next set of tests I can pretend nothing else is going to happen can't I?

HostSue

HostSue

 

Sometimes I Am Overwhelmed by the Smallest Things

The last 2-2.5 months I've been dealing with a throat issue. Chronic hoarseness, ear pain, and my throat stinging. A couple of weeks ago I went to an ENT who looked in my throat and at my vocal cords. He seems to think my vocal cords have thrush from my asthma inhaler so he had me take a 2 week course of Diflucan. A month ago I filled out paperwork for financial assistance at Vanderbilt for this procedure and any ongoing appointments or therapy I may have. I got the letter today telling me I have been denied. I had a pretty quick response and welled up with tears. This just reminds me that I have no insurance because I can't work and am still going through the disability process. I've been dealing with some depression over the past 4 months and I am trying to get on top of it. Today just hit the wrong way and makes me feel more depressed and upset. I feel like I am feeling sorry for myself or whining. It's just been such a long disability process and I have been through some pretty rough things the past year. It adds up....especially since the stroke. I just feel so tired. I'm sleeping more and more I think. Just want to be asleep. So that's where I am today and I'm hoping I can turn these feelings around soon. 

tmciriani

tmciriani

 

My spinal stimulator trial was denied

So maybe I will or maybe I won't, but the flippin insurance world is deciding my medical treatment.   The denial letter said we were told you have tummy pain. Ok so after my eyes bugged out of my spinning head, I was laughing like a leprechaun with a new pot o gold.  Guuuuuulllllllllllleeeee Sarge, but why caneyt aye ave a spinal stimulator for my tummy?   After a quick call, I had insurance insisting tummy was listed in the diagnosis, and then the girl answering the phones at the pain management clinic at the world renowned Strokeplace was searching to find any mention of tummy in the doctor notes.   Wow I thought maybe I was Alice dreaming, or that maybe THC got in my food off the cook's apron, because in what universe is a doctor using a oversophistocated,ultratechnical medical jargon terminology such as TUMMY.   Sheesh I disconnect at the moment the insurance agent...they still call them agents now or are they guidance guides...telling me that if I want to appeal then it will require them to send me papers to sign so I should ask the doctor to send more information. Do I sound like an alligator lunched on my arms at the 

SassyBetsy

SassyBetsy

 

Whew

So these past few weeks have been an adventure as well as Insightful.  My life 24 yr. old son broke his hip. How he broke it was just a simple as the perfect fall and perfect angle but luckily due to his age, his is going to heal very well. If he was older the surgeon said he would have had to have a total hip replacement. But all that aside, this trip taught me that no matter when push comes to shove I can make it. Now, it has taken me a few days of recovering, still am, but it was heartbreaking at the same time.  I have problems with feeling a connection with   people, especially my children. My son is 24 going on 16, but aren’t most kids at that age, mainly boys. Lol.  I was hoping, in my mind that when I showed up, my son would have been so happy to see me. He was but understandingly he was in pain (saw in hospital) even still it was cold at best.  I think the hardest thing for him and me to understand is he wasn’t there for my recovery and as with most people that don’t know the struggles we had to go through to get to the way we are now is frustrating. He was frustrated with me for I couldn’t remember little things. It was a mess all the way around. Mind you, the last time I “knew” him he was 13. I guess I wanted that boy again.   But all is good with his hip. I flew round-trip, had rental car (loved that car) had a good time. Now time to regroup ( picture of my rental car... I want this for my next car)      

ksmith

ksmith

 

Pay 8700 month for staff to be ignorant

So Dan is private pay at a nursing home. I do about 80% of daily cares. The ONE time in the past 3 months I ask for nursing home to get him up and ready so he can be brought over to daughters they injure him. They put his AFO brace on wrong. It couldn't be seen how wrong because his sock covered it. He was telling me how bad his leg hurt, but ( pain in leg) thats common so I made him walk and the darn thing was pinching him the whole time. He finally wouldn't move so we sat him down and my daughter was like maybe something got inside the brace . unfolded his sock and seen the brace and his "pinch" mark. Now once the sock was not covering the brace one can clearly see it was on wrong. Im just having such a hard time fathoming anyone with any intelligence at all not seeing it was wrong. And if you can't figure it out ASK . Clearly the person who got him ready had not any experience with Dan. He wasn't wearing briefs, which I discovered upon the return to the nursing home, and his urinal was in the bathroom _ DIRTY-........ Now Im feeling guilty - like now he is actually getting hurt at the place that is paid a lot of money to care for him.....UURRGGHH frustrations . Yes I WILL BE TALKING TO THE ADMIN OF THE HOME.

nancyl

nancyl

 

Admin-- Any way to combine my blogs?

Ive managed to confuse myself - I have like 6 different blogs all with entries in them... no rhyme or reason except my own randomness- it there any way Admin could combine them into one that is just NancyL blog?  Dan has been doing well ( as he can) he loves coming to my work and putting stamps on envelopes. It is a very precise process for him. It seems to give him a avenue for his OCD -- puzzles could do that for him, but , puzzles aren't "productive" - stamping is. lol I am very fortunate to have a boss who allows this, and its a balancing act to keep Dan at bay so he doesn't manipulate his way into it becoming daily... 

nancyl

nancyl

 

found reason for good leg knee pain

ok  found reason for my good leg knee pain, I have torn miniscus in my knee. if it hurts a lot then surgery needed to remove it, but in future it can cause arthritis & knee replacement surgery  or deal with pain meds since knee is not yet so bad that it gives out or locks. you know how the world  feels when you are in pain, sunshine, flowers, warm temp, ocean water, beauty, money all feels worthless when you are in pain lol. how our view on life & world can change in an instant when you are in pain. of course I have very loving family who gets stronger & closer when one of us in trouble, & usually its me cause hubby is stronger tan me in dealing with these kind of things. they both call me high maintenance person since I feel & see their love when they both are by my side & keeps on checking on me by phone calls or texts. Anyway I am old enough to know I still got of positives in my life to focus on in life  than just focus on this little pain   Asha  

achandra

achandra

 

Humor helps

there is nothing funny about having a stroke, survival nor recovery.But there are humorous situations that come about and laughter helps get me through.   At a Support group meeting this week, we discussed how we tried to "cheat" during therapy, and always got caught by our therapist or doctor. For example; Fine motor  nuts and bolts, Holding the bolt with affected hand and using good hand to quickly turn the nut, of course faster than we could the other way, and the OT calls you out. At my doctor's appointment last year, my doc asked my to walk across the room and back. My wife said, oh he's just showing off for you, he's always dragging that left foot. I said mostly at the end of the day.   I was seated and doc said show me the soles of your shoes. She said oh the soles don't lie, you have been dragging that foot along time.   Busted, I know they have seen and  heard every story before, they can't be fooled.        

Jayallen

Jayallen

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