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A blog is a personal journal of your daily life as a stroke survivor or stroke caregiver. Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations. You can make it private, just for your eyes or public and share your personal thoughts with your friends. Why not try it, create your blog and start writing and see if it helps you.

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Living on angel time.

By swilkinson September 6, 2018

I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
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Life on Train Tracks

Since are be is stroke, I am feel have be live on train track. Every one day am just for wait is for train is hit again is me. My worst ones be is speak, forgets, tire, leg be dead is. I have make are many of fire from is forget. Have burn pot, frypan, kettle, floor, wall, mat, self. Am fall 2-3 time of each week be is. Am tire of be every day is afear. Am make is decide. ...stop is Aspirin.... stop is Diovan. ...stop is wear for seatbelt. ...want for walk is alone self...I am go. ...w

Guest

February 21, 2005

2

Nate Gone

Today is Nate go for out move. Gone to be is live is Missy house. Am relieve. Am sad. Am worry. Am heart is break. Am to love are this one boy my son one be is. Not to like. He is to call to me is f8cking idiot for how I am to speak. My marry one man is to say...last of the straw...no more to take of this from him one. We are all for go to be is talk of how be is sad for him go is. We are talk for how be is relief. How can is child to love hurt me is so bad? Barbara

Guest

February 21, 2005

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Doctor Wednesday

Am go for be is doctor of be is this one be is Wednesday go is. Am for be is some of worry for this one go is. Are he is be for anger is me? Is nice one this one be is doctor...Want for is for keep him. Am scare. Nervous much is. Barbara

Guest

February 21, 2005

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I "love" snow

Well, it snowed today. I guess that is not unexpected considering it is winter and I do live in Michigan. Today wasn't too bad from a snow perspective (only about 6 inches of snow). I pulled out the snowthrower and cleared the snow. That wasn't too bad. I came inside and warmed up. I started watching the race on TV and next thing I know it is 5:00pm. I have no idea where that two hours went. I didn't think I was tired but I guess I was. I have been tired a lot lately. I gue

Guest

February 21, 2005

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What is it about Saturday

Today seemed like any other Saturday. I woke up this morning full of energy. My wife and I went out and ran some errands. But at about 1:30pm, I felt like all of the energy I had had left my body. It was all I could do to even move. At first, I thought I needed something to eat and that would make things better again. Liz and I went and ate. It didn't work. I still had no energy. We made it back home and I had to sleep for awhile. I felt better after that. I don't know wh

Guest

February 20, 2005

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Doctor Visits Part 2

There was one Doctor Visit I forgot to mention that occurred Thursday. I went to visit our Dentist to drop off a payment we owed. I found him looking through the 2005 Sports Illustrated Swimsuit Issue. He took it upon himself to review this issue to see if it was something that would be displayed in his waiting room. Somehow, I don't think this magazine will be displayed in his waiting room. Charles Ramsey

Guest

February 20, 2005

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old friend?

Today I ran into an old friend? at the grocery store. I am not a touchy feely person (in other words - do not invade my personal space!) but this woman - who I haven't seen in two years - had to give me a hug. I was polite and didn't flinch but, the hug knocked me off balance. I explained "I had a stroke in August and I have some balance issues" Well, this lunatic starts wailing "YOU'RE Too young to have a stroke - Oh God Why you!!" and a whole bunch of other such nonsense in a voice loud

Guest

February 19, 2005

1

kimberly9's Blog

MY HUSBAND'S "BEAUTY REGIMEN"!!!!!

i am a WOMAN for god's sakes and i can get a shower, shave legs, moistureize and be FULLY dressed and OUT of the bathroom in under 15 minutes, 10 minutes if i am in a hurry!!!!! NOT my husband. i don't know exactly WHY this bothers me, but it does. except maybe because we have one bathroom. ( WHY did i buy this house 10 years ago with ONE bath!!!!!!????) when HE gets in the bathroom you can COUNT on waiting a MINIMUM OF 45 MINUTES. "beauty reigimen schedule" first he puts in ey

Guest

February 19, 2005

2

Faith

Mom went back into the hospital last night. I prayed to God not to take her yesterday. My hero died 4 years ago yesterday. Funny, mom went to the hospital at the same time he died. She doesn't look good. She is in ICU, so we get 20 minutes every two hours. Just long enough to say hello and goodbye. Dad doesn't want to be there very often. He only wants to go 3 times a day. Well, in my opinion that is wrong. I really feel this time she is going to die. She is so swollen that I don't th

Guest

February 19, 2005

2

Deadlines and work

I'm under all sorts of deadlines in the next week. I look at Monday on my calendar and start getting nervous! I'm in meetings all day with two proposals due for Tuesday. I have two donor walls to complete and one more that has to be designed by next week. And I'm SO disorganized, I can't even find my desk. My short term memory is worthless, so I have no idea HOW to do what I've always done. Jerry bought a new coffee maker - a perkolater. And I can't remember how the freaking thing works and h

Guest

February 18, 2005

1

Laziness

Why do I have such a difficult time getting my a** in gear to get going for the day? I think it may have to do with motivation...what reason do I have to get around? Does it make any difference? I don't make any diffference in life anymore. Who cares whether I stay in my nightgown all day or not? It's not like I have anywhere important to go or to do!!!!!

Guest

February 18, 2005

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A brand new day

Well today, the sun is shining and things aren't as bleek as yesterday. Isn't it always the way? I've made some decisions, realized there are unexplored possibilities. Seems according to my brother in law the surveyor, the property has never been surveyed and on the off chance our neighbors across the street didn't take half the road as theirs, we can and we may be able to squeak out enough square footage. I love when numbers can be manipulated. I learned that years ago when I worked in an accou

Guest

February 18, 2005

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Doctor Visits

Yesterday, I went to get my Eyes checked. It had been two years since they had been last checked and the doctor who did that exam deciced he needed to "change careers" quite suddenly. I mentioned this to the new Optical Doc who told me, "Oh yes. He and I trained together. Great guy!!!!" I was really feeling good about things at this point. After all, It's ONLY my eyesight!!!!!!!! So we get through the exam and they give me my prescription for my new glasses with bifocals.

Guest

February 17, 2005

2

Getting prepared for Neuro appointment tomorrow

You may have seen earlier entries about the doctor I saw at the Cleveland Clinic I lovingly refer to as Dr. FeelGood. I spent some time really looking over his report today in preparation for the follow up appointment I have with my neuro tomorrow. What I found was quite sobering. While I admit I was a bit miffed that he said I didn't have a stroke as a diagnosis, he mentioned some things (unlikely but theoretically possible) I am pretty concerned about. Among the " 'exotic' diag

Guest

February 17, 2005

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compromise ones self definition and zoning

I am in a somewhat bummed out mood today. The stroke cheerleader went on vacation, which is a positive thing since I was getting sick of her shaking her pom poms in my face all the time. By asking myself "who am I"? all the time, I've pretty much filled in the blanks and regarded it as truth. But is it truth? Is it ego? Is it nothing more then values and morals? Are we nothing more then our ghosts of the past experiences that we take away the lessens learned? I feel strongly about cert

Guest

February 17, 2005

1

ctaylor2's Blog

starting bad ending good

Well this week is ending on a much higher note than it began. Monday was one of the worst days I

Guest

February 17, 2005

1

kimberly9's Blog

lie detector tests

i don't know why, but even though most of my long term memory is EXCELLENT, sometimes i can't remember things unless someone brings it up. anyway, our company accountant ( my dad's best friend) is a retired FBI agent. he's one of the MOST interesting people i know. for some reason he started talking about lie detector tests yesterday and it brought back a memory. back in the early 80's i worked for a bank and took another bank job in atlanta. atlanta is a LOT more "picky" about who they hi

Guest

February 16, 2005

2

To The People Who Tease Me

As I am now, you may yet be So I'm asking you nicely Don't Tease Me Please And get your laughs out of taunting me Not caring that once I was just like you Young and active, productive and smart And that just like you I have a heart It can be broken and tears can fall I'm just like you just different that's all I ask you please don't laugh at me Because I'm not what I used to be One day you may join the souls like me Whose lives are changed by injury Or illness that e

Guest

February 16, 2005

1

The Night Time In Rehab

It's nearly time for morning dew As I remain awake, unable to rest Though my body aches with fatigue From my very busy day My mind struggles with everything As though it sees all things as new The questions that pour from my damaged brain Re-building my memory banks Trying to set order from the chaos Left behind so kindly by the stroke That came along to ride with the headache That robbed me of more humanity And they ganged up and beat the hell out of me Leaving me to l

Guest

February 16, 2005

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Paperwork

I finally got the paperwork from Dr. FeelGood's office today. It came this morning just after 9:00am. I decided to call them a little after 9. I spoke to the secretary for Dr. FeelGood. I told her that his nurse told me that I would get the information faxed to me today. I give her the fax number and waited. Sure enough the fax machine rings and starts printing out the pages I was so eagerly awaiting. I look at the fax cover sheet. 11 Pages is what I see. I am beside myself with exc

Guest

February 16, 2005

2

I'd like to share the wealth

You know, it is a good thing I don't have powers like God is supposed to have. I would abuse those powers, not a doubt in my mind. I seek revenge on those I feel deserve it. Well I am wound up about the spouse and his mother. I know I should not be letting them make me angry, I know I am a better person then the Narcissist and his mother who seems to adore her youngest child a tad too much, where it borders on incest and being sick. But You know what? This is my blog and I'm going to say somet

Guest

February 15, 2005

5

Valentines Day

Well, I'm finally finished my work for the day. It was relatively uneventful. I spent several hours tonight updating my anti-virus and firewall software. If my software ever got a bug or my sensitive information for our organization got sent somewhere without me knowing it I don't think I would ever recover. I'm not worried about somebody hacking into my computer because it's never happened in 10 years! My computer is small potatoes compared to a corporation, which is where hacki

Guest

February 15, 2005

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Well, now what happens???

Well I heard from Dr. FeelGood's office at the Cleveland Clinic today. They told me the results of the labs and tests they performed on me. They did two tests, a second doppler on the carotids, and a transcranial doppler test. Both of those turned out normal. They did a lipid panel (cholesterol was normal, triglycerides were high) and the ultra sensitive c-reactive protein test was high. I am still suffering from a sinus infection so that maybe a false positive. Prior to this, they did

Guest

February 15, 2005

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