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A little positive...

Posted by JeriB in Dad's Journey (JeriB), 29 September 2014 - - - - - - · 26 views

Dad and I got out on Saturday and took a train ride to see the colors. According to him, he enjoyed the day and we just had nice afternoon.

The positive thing, is that he took the stairs by two on Saturday. Skipping a stair. He has not done that since the TIAs/Strokes started in January and he did it again on Sunday, after we went out for lunch.

I k...

Still the same

Posted by Pearls in When your soul dies, 29 September 2014 - - - - - - · 48 views

Noooooooooooooooo!!! Tired of hearing the old cliche. No i am not still the same. I am different. My life is different. I will never be who i used to be again. I am that brain damaged woman hobbling down the street with the wide eyed gaze, the odd smile,moving at a snail's pace. People feel they have to tell me how good i look for "someone who has h...


Posted by Englishrose in Englishrose's Blog, 29 September 2014 - - - - - - · 35 views

One of my biggest personal losses as a result of stroke was handwriting- ok we use computers and phones most of the time but cards, lists, diary I still prefer to write.

I cannot confess to being as committed to practising my writing as I have been about general fitness, but suddenly, with no warning, it's improved exponentially.

If anyone knows the "wh...

Been a while since I have blogged!

Posted by Tinamomof2 in Tinamomof2's Blog, 28 September 2014 - - - - - - · 39 views

And I sure have missed it! Been so busy, mom was in the hospital for 3 weeks, then sent home with hospice, hospice only lasted for about a week, then we started morphine and mom only lasted 2 days. She passed away Thursday night at 3:30 in the morning (I guess Friday morning) She went peacefully. . We just made her funeral arrangements yesterday. Her show...


Posted by tross15 in tross15's Blog, 28 September 2014 - - - - - - · 39 views

Hello my name is Tammy I'm 42 yrs old I have some left side weakness suffered a right ischemic stroke 2yrs ago I have a small amt of weakness on my right side I had to relearn to walk and I have left side periphial vision loss

day57 09.28.2014 grandma gets rid of the NG tube =)

Posted by Cipeko in Cipeko's Blog, 28 September 2014 - - - - - - · 30 views

Hello all,

Must mention that I'm a little or way too drunk to write this down but...still...I know it's been ages since last entry but...still..there I go, must update the status somehow...and couldn't wait for this...=) great news...

Grandma got rid of her NG tubing on last friday, the 26th of Sept,on her 55th day of the stroke...that was my mother's p...


Posted by Brijay14 in Brijay14's Blog, 27 September 2014 - - - - - - · 61 views

So I am a newbie to this site and to blogging in general. I want to take the time to introduce myself. I am probably one of the youngest ones on this site. I am 23 years old and a Stroke survivor. My story is unlike anyone else's I have ever heard of or that anyone that I know of has ever heard of. I survived a stroke at birth. Yes, you read that right,...

what do you say?

Posted by lmctrouble in Lynda's thoughts, 27 September 2014 - - - - - - · 26 views

Whenever I'm out in public with my shoulder sling on I get comments like "that looks painful" or questions like "what happened". I say I had a stroke which seems to shock most people - today I wanted to say "I hurt it sliding into home plate" or something equally as outrageous. What do you say to people when they ask "what happened"?

When the Caregiver Goes Down - Another Fall

Posted by srademacher in spacie1's Blog, 27 September 2014 - - - - - - · 55 views

In the ten years that I have been caring for Gary, I've worked out a system for transfers that keeps me from getting injured if he loses control and starts to fall, where I basically end up letting him lower himself to the floor as opposed to trying to lift him and both of us going down. He has to do most of the work during transfers and I am just there...

Nowhere Else to Vent!!!!

Posted by catbeleu in catbeleu's Blog, 26 September 2014 - - - - - - · 67 views

I know I haven't been on in a while but life has just been one big rollercoaster for me lately. I don't mean that it has been so active that I haven't had time blog it's just that my emotional state has been such that I am going insane I think! Mike is on a new therapy quest to fix his hand and it seems to be doing some good, but as all things stroke it i...

Friends or Predators?

Posted by HostSue in Sue's Sentiments, 25 September 2014 - - - - - - · 99 views

Being a widow is different from being a wife, loneliness is a factor, not having someone to consult, doing all the things you have to do alone, planning for one, eating alone...you get the picture. But there is also a prejudice out there about widows. Someone recently called me a "merry widow"...hmmm, not sure about that. I do seem to be happier these day...

Getting Control of My Fatigue?

Posted by LadyRose in LadyRose's Blog, 24 September 2014 - - - - - - · 41 views

Just adding to my post yesterday. Although I'm really tired now, after being awake for 3.5 hours, This morning was the first in a very long time that I initially awoke feeling like I had enough sleep......Maybe there's hope that the increased med. dose may help. Fingers crossed (on my unaffected side).


Posted by Rose Smith in Rose Smith's Blog, 22 September 2014 - - - - - - · 45 views

Had to go to the Dermatologist stat today as my lung transplant coordinator didn't like the look of a growth on my left calf.
Immunosuppressed transplant recipients are highly susceptible to skin cancers and I am fair skinned.
They did a biopsy and I should know something by the end of the week.
Also,my lower leg edema (my "cankles")seem to have returned....

great trip

Posted by mlp in mlp's Blog, 22 September 2014 - - - - - - · 44 views

went to maine with my 2 sisters and niece for 5 days and had a wonderful time .i love watching the ocean. i am so blessed to have the family I do. we sometimes laugh so hard I honestly lose my breath. we try to go every other year missing last yr. because of the birth of my grandson who just turned one.it was a lot of fun, food , shopping, ocean and beau...


Posted by Budweiser in Bill's Blog, 17 September 2014 - - - - - - · 37 views

Hello all

Haven't been on for awhile for here's my latest. I'm engaged and live together now with her 2 kids. Downside I had to put my Budweiser down in May 2014. Hardest thing I ever had to do but was thinking for him and not myself. I will try to get back on more here.


1 million views of my blog - Deans' Stroke Musings

Posted by dreinke in oc1dean's Blog, 17 September 2014 - - - - - - · 113 views

And it only took 4 years 1 month. www.oc1dean.blogspot.com
I like having my own blog where I can say completely outrageous things like the entire stroke medical world is f-bombed up, and then prove it by pointing to research they should be following. This does not meet Dale Carnegies book, 'How to Win Friends and Influence People'. I will need someone el...

when you want something in life whole universe inspires to help you

Posted by achandra in achandra's Blog, 15 September 2014 - - - - - - · 60 views

As most of you I loved reading spiritual books and love oprah's super soul sunday series on her OWN network where she interviewed Author of book Alchemist. I loved his thoughts & believed in them since I have seen becoming true in my own life. His one of the suggestion was any time you want something in life then don't give up on it because of fear of...


Posted by lwisman in Lin's Musings, 13 September 2014 - - - - - - · 82 views

Another week has gone by. Here it is mid Sept and we are having early Nov weather. Geesh!

My sister has been having problems with her hip so she agreed to three weeks of having someone else mow our lawn. Actually I have been trying to talk her into giving up mowing the lawn for two years. She is 74, not 24! Anyway this week is the third week so we shall...

Home Care Team

Posted by johnk6749 in johnk6749's Blog, 13 September 2014 - - - - - - · 145 views

I feel like the Home Care Team has become the Home Invasion Team. They are passing each other in the doorway coming and going. I have been told by most of them to look into bringing in more people. I told them that there have been more people in this house in the past 2 weeks than in the past 20 years.

Yesterday Mom had what I would call a good session w...

My Big Knee Operation 12 September 2014

Posted by fking in fking's Blog, 11 September 2014 - - - - - - · 79 views

Well tomorrow 9/12/14 is operation day for me on my right knee, I will be so glad to get this operation over with so I can try to walk again and stand up on my own!! These last two weeks has been a pain in the butt for me not being able to even stand up or walk on my own!! I sat on my bed all day and must wait for my wife to come home and help me walk to...

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