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Life goes on

I have good news to share I'm back to work part time. :Clap-Hands: I'm working 6 to 8 hours a week for now. The Dr. has given me approval to work up to 16 hours a week. :happydance:   I'm back working with the same group I was working with before my stroke. Before my stroke I was a subject matter expert on six different Computer Systems. After all the downsizing company has done they are left without a subject matter expert to help them rewrite those systems. So that's what I'm doing

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Driving and stuff

Well I've been practicing my driving with the spinner knob and even went on the freeway this week. :happydance: It's getting easier the more I drive and I am not quite as nervous as I was when I first started. It feels so good to be able to go where I want to go when I want to go and not have to ask anyone to take me. I've also found that my self confidence is growing. I have gone to the store twice now on my own just to pick up a couple of things but it really made me feel good.   I guess th

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It's been a while

Well it's been a while since I blogged. Our old computer bit the dust and we had to buy a new one. It's taken a while to get the new one all set up and to learn how to work all the bells and whistles.   Let me bring you up to date on what's been going on. I finished my OT and PT at the rehabilitation Institute of Michigan. I've started the drivers valuation at the rehabilitation Institute of Michigan and this week we had the spinner knob installed on the car. I need to practice driving with

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I hate insurance

First I want to thank everyone for the congratulations on picking up the marble.   Now I need to vent a little. :notfair: The Insurance only gave me seven sessions with the OT but they did give me 12 sessions with the PT. Just tell me how much can you really accomplish in only seven sessions and two of them were the evaluation sessions. So I don't think I will get a whole lot out of the OT this time around but I'll see what I can do, anything is better than nothing I guess. When I was talkin

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A small step forward

Well I'm back in PT and OT again. Not sure for how long we are waiting on the insurance to decide. But something good happened in OT last week. I PICKED UP A MARBLE WITH MY LEFT HAND :happydance: from the table and lifted it up to the top of the milk crate! I couldn't let go of it so the therapist had to take it out of my hand. But the point is I did pick it up and lifted it without dropping! I was so happy I had tears in my eyes. Such a little thing that means so much. I'm hoping the insurance

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Moving forward

Yesterday I found that I could raise my wrist to neutral from a position of the wrist hanging over the edge of the table. I was able to do this without the use of the electrical stimulation. It's a small thing to everyone else but a very big thing for me.   My index finger and thumb on my left hand stay straight most of the time now. I've been able to achieve this by getting Botox and using the electrical stimulation to strengthen the fingers and thumb.   My life is now a series of small vic

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Winter is back

Well we got about 9 inches of snow yesterday and last night, so much for an early spring. When my husband went to work this morning he said the roads were bad. The news is telling people that if they don't have to drive to stay home. Our snow shoveler was here and got the walks and driveway all clean. They're saying we could get another 3 inches later today and another 5 inches later this week. I really hate winter it can be spring anytime I'm ready. I almost wish we hadn't had the 50° temperatu

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Decisions and the weather

Well I came to a decision it is one i have been thinking about for a long time. My husband doesn't agree with my decision but with the help with the social worker I've come to see that I cannot let other peoples feelings about me become how I see myself. Sometime between now and May as soon as I can get everything setup I'm going to go take a driver's evaluation at the rehabilitation center near us if they Say I am okay to drive I am going to start driving whether or not my husband wants me to.

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Rocker T knife and other good stuff

Well it's the weekend again the week has just flown by. I had a few questions on my last blog so I wanted to answer those. The website where I found the rocker T knife is at www.activeforever.com. I also have the Swedish cutting board and it makes life easier as well. For opening bottles or holding things in place while you're trying to use them I would recommend the 'Dycem Non-Slip Rolls' I have this stuff in the bathroom and the kitchen. That way I can use it to open the mouthwash bottle in th

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Life goes on

With the holidays over and winter in full swing things are falling into a routine you now. I'll be starting PT again for my rotator cup very soon. I found out last week that each year my PT renews so I can get another 60 consecutive days per injury. Once I finish the 60 days for the rotator cup I will try and do another 60 days of PT for stroke recovery. Once we get the taxes done and see how much were going to get back I hope to be able to do at least 10 more sessions of HBOT. It cost $126 a se

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Christmas, chocolate, and stuff

Well the blood clot in my heart is finally gone. On December 7 I had a TEE done and they found that the clot was no longer there, so they were finally able to test my ICD. Everything tested okay with the ICD and I do not have to return to have it checked again until June. I do have a home monitoring system, it monitors my device while I am sleeping and sends information to the device clinic every few days. But the device clinic can program the dates for home monitoring electronically based on wh

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Health

Well if it isn’t me having medical problems then it’s my sister having them or both of us.   My Sister had an ICD put in today now we both have one. The doctors said her heart was worse than they thought. They want to do another surgery in Jan, but for now she will go home to recover.   With her sidelined, it means that I will not get to go on any rides to just get out of the house for awhile. She will not be able to drive for about 5 weeks. It also means that my husband will have to

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I did it

Well I did it, I went on my trip. :Clap-Hands:   I collect Longaberger baskets and my consultant does an annual bus trip of one or two days to Dresden Ohio. Last year’s was cancelled due to a number of things, but this year they did a one day trip to the Homestead. This is the factory and a number of shops owned by Longaberger, as well as the make a basket shop. In the make a basket shop a master weaver helps you weave a basket. You do about 80% of the work and the Master Weaver helps y

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disappointed

Well I am a bit disappointed today as I watch the rain fall. We were suppose to go to the Renaissance Festival (I use my scooter) today (this is the last weekend, but with the rain we cannot go. We got costumes and everything for this year and now we can’t go. We were going with my sister, brother in law, nephew, and two nieces. Everyone has the costumes this year. They are a bit warm, so we waited to go until the weather was not in the high 80’s. But issues the last couple of weekends have

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Heat and bad memories

The Heat we have had this year brings back bad memories for me.   It takes me back to the summer of 1988. We had heat like this that year too, but it was the end of July into Aug that year. I loss my Grandpa because of the heat that Aug.   His AC went out in the morning of Aug 5th and he sat in his trailer with just a fan all day. When my Dad and I took over his supper as we did every night we found out about the AC. My dad put him in the car, not hearing his demands that we just lea

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I lost it

Well thanks to the time I spent in the hospital and my low energy level (new heart meds) I have lost just about all the progress I had made on my left leg.   Before the hospital I could walk around the house 25 times without a break. Now I am luckily is I can make it 5 Times. Even taking breaks all I can do is 15 Times now. I am back to where I was in March of 2009.   It is hard to think of starting over again, and this time there is no PT to help and the new heart meds are here to st

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I fell

Well I fell yesterday. I was coming up the porch steps and my left leg just buckled so down I went. :oops: I landed first on my left hip and then I twisted to save my left shoulder (I one they just put the ICD in) so I went down on my back and hit my head. I called the Doctor and She said that is I had any changes in my sight or had nausea, or threw up to go to the ER otherwise I should be OK. I am very sore right now and mad at myself for falling. I knew I was tired so I should have been

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Not as planned

Well the EP study did not go as planned. I went into a life threatening rhythm and they had to defibrillate me twice, that left me with burns on my chest and back from the pads. I was admitted to the hospital and there I stayed until late Wednesday. :thumbsd:   On Monday they repeated the TEE and found a shadow that could be a Clot in the Heart. I was given a ton of blood thinners. On Tuesday they removed my Pacemaker and replaced it with a ICD (cardioverter-defibrillator). The ICD I

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The Day has come at last

Well I had the TEE done today and the good news is that are no clots in my heart :big_grin: , so the EP study and possible ablation are on for tomorrow. Hopefully they will be able to fix the ventricular tachycardia. I have to be at the Hospital at 6:30am for Friday. :tired: I will be in the hospital at least overnight, and could be up to 2 days. More Later  

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This Week

Let me start with a Thank you to everyone that left me a comment on my last blog, it helped.   This week the engine went on our SUV with only 66,000 miles on it. Well we finally caught a break and it is still under warranty so the dealership is going to put a new engine in the SUV for just $100. It's about time we caught a break. Sometimes I feel like if it were not for Bad luck we would not have any luck at all. Now I am dating myself, that a song from Hee Haw.       Well I am g

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An open letter to my family

I am sorry you don't like the "New" me. I am so tired of hearing "You need to try and act Normal again" I can never be the person I was before the stroke. The person I am now is me and that will not change. I am sorry I can't do all the things that you think I should be doing. I am not going to wake up one morning and all my issues will be gone and I will be back to "normal".   I am so tired of hearing that "I just need to try harder". Don't you think I want to get the use of my arm a

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Sisters and other stuff

Well My sister is having more problems with her Heart too. They may have to put in a defibrillator/pacemaker to help her. I have been where she is so I am trying to help her work thru her feelings. She is 10 years younger than me and has some of the same heart issues as I do. She is having some of the same issues I had about 10 years ago. I am hoping that she does not have all the same issues that I have. I am still going thru tests. I have a TEE (transesophageal echocardiogram ) sched

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Looks Good

Well things are getting back to normal (whatever that is) around here now. Over the weekend we had all the Windows replaced in our house. It is something we have needed to do for a number of years now. This coming weekend we will get the back door, back screen door and front screen door replaced, again it is something we needed to do for a few years now. The new windows look so nice, the old windows were from when the house was built in the late 1940's. We ordered new window treatments for

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My heart has problems

Well we spent most of the day at the Doctors and he thinks my heart is really messed up, so I am scheduled for a number of tests this week and Will be scheduled for more we think in about two months. I have ventricular tachycardia which is bad. He thinks it may be coming from 5 or 6 different places in the heart, normally people who have ventricular tachycardia have it in only one or two places in the heart. the test I will have in about two months is a EP study. Based on the information col

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One Month

Well it has been a month now since we lost Brown Sugar. I still miss him very much, but it is getting easier as each day goes by. Little Fudge is growing fast, she is over 18 pounds now and is 16 weeks old. She helps fill the hole in my heart and is helping Kahlua get over the loss of Brown Sugar.   My heart continues to get worse and they have moved up my Doctor appointment to this coming Monday with the new heart Doctor. I am hoping he will be able to treat it without many problems.

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