Thank you guys! Well I went to UNC Chapel Hill on Friday. My bestfriend (my cousin) went with me and stayed the entire weekend so that was nice. When my dad came to get her, he brought my brother with him so he stayed with me for a day or 2 then my dad came back and stayed with me the last 2 days. Everything was really nice. The food was great and the nurses were very nice. I mostly watched tv and read a book.
Well the good news is I know that majority of the time I am not having seizures. I
Thank you guys so much for your comments. I signed my lease today and got my power turned on. The apartment is huge. My last apartments were 650-700 sq ft at the most. This one is 975 sq ft. I wish I could've got excited today but I was so worried about the EEG still. I am so ready to decorate my new place and live my seizure free life! This EEG thing just worries me because Im scared they will take me off my medicine like last time which will mess things up after I've been doing so good. Im als
I love you guys thank you so much for your support. I have so much more I've been wanting to share with you guys but I guess I get scared that Im going to jinx myself with the good news plus sometimes I don't like thinking about the bad stuff I write about because it triggers those feelings.
Well my great news is today will make it 2 weeks that I have been seizure free (knock on wood). I don't know if its the hormone (birth control), the fact that I cut back on the keppra, the fact that I've be
Today I went back to my family doctor. I have been going to him since I was in 3rd grade but I had not been to him for about 2 years while I had moved away. I usually dont like him. He always seemed kind of slow to me and I never trusted him I guess because for the longest he diagnosed me with everything he could think of accept seizures and ever suggested a brain scan. It took me having the grand mal and being transported to UNC to finally find out what was going on.
So yeah I was not reall
I wanted to add more to my last entry but I didnt want it to get too long so I decided to write another one. I appreciate your comments. Oh yeah I wanted to make a correction. I am taking 1500 mg a day again not 1750. The last time the neurologist switched me to 1500 he put me on 750 mg twice a day. This time he just told me to chop up my 500 mg tablets and take 1 and a half twice a day. I had a anxiety attack after taking my meds this morning. I had to sit down and put my head down but after I
I saw my therapist this morning then talked to my neurologist. My neurologist is such a quack. He never knows anything. I asked him if it is okay for me to start the abilify even though it says ask your doctor if you have seizures. He said any medication that messes with your brain can cause seizures. I think I am NOT going to start the abilify. My mood is crappy but lately its only been cause of the seizures and taking more keppra. I told him my seizures have gotten worse since I increased the
the good
Well as I said yesterday, I had been feeling pretty good. This morning I felt even better because I drove myself to the doctor in the rain then stopped at the pharmacy on my way home! I have been thanking God every night, every morning, and throughout the day. It felt so good to drive my car again. I had not drove in 2 weeks. Its been tough because I get invited to a lot of christian events but I live so far away from that side of town. I hate asking for a ride especially from people I
Today I seen the psychiatrist and yesterday I talked to the therapist. The psychiatrist wanted me to take Xanax for my anxiety but I told him I'd rather try the therapy sessions instead of being on more medication. I told him that the side effects for Abilify say to consult your doctor before taking it if you have seizures so he told me to wait to start it until I see my neurologist again.
He also told me to take my clonazepam twice a day. I love the clonazepam because it helps me fall aslee
I didn't realize how messed up I had been feeling wow. Since I moved back home altogether I had been feeling kind of down about my situation but I was still going to church, going to the gym, and just spending time with family to keep from feeling completely depressed. It wasn't until today that I realized how depressed I was. I mean in the past 3 weeks I have pretty much had 4 partial seizures and 2 tonic clonic seizures.
I have not got in my car in almost 2 weeks and it seems like even when I
I am going to see my gynecologist right now. I cant believe this. At first I thought it was just a theory but now I am absolutely positively sure. As I said in my last entry I was seizure free the whole time I was on the mini pill and the seizures came back right after I moved and quit taking the pill.The hormone in the mini pill actually helps seizures. My theory is that I have always had catamenial epilepsy but the mini pill helped it for all those years and I didnt even realize it.
After
I went to see the therapist today. She wants me to come back next week. We only talked for about 45 minutes and I feel like I barely scratched the surface but I know she can't fix my life. My goals I made today are to work on my fear, get control of my anxiety, and find a productive outlet for my depression I guess. All of these are very hard.
As for the fear and anxiety, I am constantly scared that I am going to have a seizure. As I said in one of my last entries, I feel EVERYTHING in these
So about 3 hours ago, I had the worst seizure ever. Im guessing it was grand mal. I was laying down watching a sermon on my laptop (trying to be encouraged) when suddenly my left arm started rising up, my head turned to the left, and my body turned to the right. My brother was the only one home but he was in his room with his door shut. I thought he would hear me especially when my laptop fell off my bed and hit the floor. All I could do was jerk uncontrollably to my left side. The next thing I
I am just going to be raw and honest right now. I honestly feel like dying. It may just be hormones but I really feel like Im living hell on earth. Sure I have food, clothes, and shelter. I also have money in the bank. I just got my income tax return and my settlement from my accident. But I have no peace. This whole week has just been torture. I don't like blogging when I am PMSing or extremely upset because I don't want to be debbie downer all the time but I just don't know what else to do rig
My week got a little better. I cannot remember what I did on Tuesday and Wednesday right now but yesterday was pretty good. I woke up and went to the gym for yoga. We worked on hips and abs so it was a workout. I did the nustep machine for 20 minutes before yoga. Tried to get my most out of my last day. Before I left, I asked my instructor if he knew anyone that does acupuncture. Another lady heard me and told me about an acupuncturist who was trained in Korea I think. Im going to check him out.
Well this entry is not about seizures or depression. Its about the same thing I have been blogging about since 2007-my left side. It seems like everyone has got better except me and I am the one who's been like this for the longest. Yesterday I went to the hospital to see my mom. I went to the chapel and prayed. I gave thanks that Im not in the hospital anymore. I was in that very same hospital after my stroke. I am thankful and I have come a long way since then as far as walking. I mean when I
Thanks everyone for your comments. They really give me a lot to think about.
Wednesday on my way to the doctor, I had a panic attack while I was driving. My appointment was at 8:25 so I left early so i could dodge rush hour traffic but ended up getting stuck in rush hour and school traffic. I got to the office parking lot but I was in the wrong parking lot and it was a dead end. I figured I would just find a parking spot and just turn around but there were no empty spaces. I decided I would jus
Thanks for your comments. I commented back on my last entry. Right now I do not know what to do. Yesterday I was about to go to the bank but as soon as I walked into the kitchen (to get to the garage) I felt weird for a quick second. I sat down and focused on my breathing and I felt fine. but I still got my dad to drive me because I was feeling anxiety. This morning I had my appointment with the psychiatrist.
My dad had told me he had to work so I would have to drive myself. I was feeling an
I always get scared when things are going good because I know something bad is coming my way so I can't get too comfortable with the good life. My dad was just saying this same exact thing today. He is the biggest pessimist I know and his negativity wears me down. Lately he had been acting very hateful and moody because of money issues and my brother quit his job so that put more bills on my dad. I felt really sad and upset like I am just a burden on my dad since I moved back here and living wit
I went to the neurologist yesterday. Of course the appointment was pointless. He does not want to see me again until I see the epileptologist. I asked him about the seizures and hormones. His only comment was to try to schedule another EEG when I think Im about to get my period so there can be a better chance of me having a seizure. I asked him if he thinks I should just go ahead and get the VNS but he said we need to make sure these are seizures first. He then asked me if I wanted to start vimp
Yesterday I did not have another seizure but I did have a headache the whole day. I finally took some pain pills and it helped the headache go away. Unfortunately, today it feels like I have been having seizures all day. I keep getting eye twitches and thinking a seizure is going to happen. This morning I was watching tv and during the commercial break I looked at my phone and started to feel really weird. I tried to calm myself down and pray to God but I knew I was having the seizure. I felt my
I spent the weekend with my family. On Saturday night I went out to dinner with my brother, sister in law, and niece. Yesterday I went to church with my cousin and her 3 kids. It was the church I used to go to since I was a baby and the church I was baptized at but I had not been since high school. I enjoyed it though. Everyone remembered me and made me feel really welcomed. They knew me before the stroke, prayed for me through the surgeries, and I remember getting a standing ovation the day I w
Warning: This is a very long entry. I've done some research and this is like my notes
Yesterday my dad and I went all the way to Duke Neurology of Raleigh only to find out we had been scheduled at the wrong place. I was really looking forward to getting some answers so after I sat there and gave my whole medical history to the neurologist, I was kind of irritated when he informed me that he is a neuromuscular doctor and has no training in seizures. My dad and I came all the way back home, went
Yesterday my arm was feeling weird. I had a headache the entire day and my arm just felt weird. It felt the way it feels before I have a seizure. When I have a seizure most of the time I can remember my arm (the affected one) moving uncontrollably. Either it suddenly starts to rise up or it starts jerking like Im trying to hit someone but something is pushing my arm back down. I was pretty scared all day but I eventually fell asleep.
Well today I swear I had my wrist support on all day. My a
Thanks you guys. exercise really does help. I went back to the gym this morning. The guy that did my assessment spoke to me and remembered my name. Seniors Yoga really made me feel good about myself. My instructor helped me a lot and told me to be patient and put me in a pose I could hold when the class did exercises that were too difficult for me. One lady told me I did a really good job and she thought I did a great job just being there and trying. :-) One of the things we did was visualize ou
Thanks for all of your support. I will try to go through my blog post and see if I can find anything that seems to be repeating. Its always so hard to remember dreams and things that happen in the middle of the night so Im glad I blogged a lot of times it happened. My memory has been extremely bad since last week when I passed out/slept walked/whatever. I literally feel like I am repeating myself when I talk on the phone because I cant remember who I talked to and what I told them about. I have
