• entries
    215
  • comments
    1,685
  • views
    42,665

About this blog

new frusterations

Entries in this blog

iPad application and chat assist...

So I have the cursed iPad, but maybe not cursed....... I downloaded a application called chat assist..... And Dan has been diligently working with it....... I give him flash card words... Like 10 of them.... House, dog, cat, blue, red. Ect........ And he types the word on a key board attached to the iPad. As he types it says each letter as he types it and then it says the word as a whole..... So the word dog............ Dan types a d and the chat assist says " d" then the o , and the g .... T

nancyl

nancyl

Had to go visit the ER for fun.......... No Beth did

Beth our 16 yr old works at the hospital as a housekeeper .. They have treated her very well. And she is a hard worker like her dad... Today she got hurt at work.. Nothing drastic.. She is a tiny little thing only 5' 3" and was trying to put a laundry bag down the laundry Shute... The string on the bag got wrapped around her wrist , ( she obviously didn't realize) so when she finally managed to push the bag through the spring loaded door of the Shute. The laundry bag took off and darn near pull

nancyl

nancyl

Over this hump for now..update

Well Dan finally gave in and ate something and took his pills... No seizure no dehydration, just another control issue... But yes I have learned lessons .... I will call and get him in for another surgical consult.. But he isn't moving yet... By that I mean he won't leave the house... He is still sore from his fall in AZ, it was a bad one... And. It Is what started a great deal of this mess..there is no nursing homa availability in this area period the boom from the western part of the state has

nancyl

nancyl

Heart sobbing crying and wanting to die , while my daughter stood and held some pie..

So I think I am officially broken, since my failure last couple weeks , it caused a snowball effect... Big surprise probably not to people who are not idiots.. I am a idiot.. I tried to ,I've a life that would adapt to the stroke, to live a life around it.... Dan hasent been taking his pills again, started last night. And again this morning.. Not much I can do about it.. Except offer, encourage and conjole, manipulate, cry, beg... I have done it all.. But I foolishly thought taking out his sto

nancyl

nancyl

Not sure how I am gonna pull this off

So my daughter ( the one who has the house in AZ ) is planning to go to AZ during the end of the month.. I have Weston for that week.. I agree to it knowing it is time to step into the role of grandparent, at the level , my , parents provided me with.. I never traveled but they did day care for 3 kids ,day and night for me , while I worked and Dan worked.. My dream as a grandparent was to do the same for my children.. So we have weston for a week.. This should be interesting.. I will have some h

nancyl

nancyl

At the ER again...

Dan has not been himself since the attempt at having a life last week... AKA the AZ trip...I just don't know what , but he seems a little off.... We ended up in the ER as he was having severe leg pain ..affected side.. And his INR was low due to the drop off of Dilantin from his drug regimen .... Haven't heard yet the results just a little bored so thought I would blog..... It just goes on and on and on... Don't it my fellow stroke caregivers/ survivors... BUt oh the road is so long. And I am

nancyl

nancyl

Excellent point about people's understanding of brain damage vs. Stroke

Absolutely true, I found... Just say brain damage from a accident after all that is what a stroke is in technical medical terms... A cerebral accident.... I just say accident and when asked how , he tripped on a rug and tore his carotid artery on the inside..... Scares the crap out of people as a stroke of any type should.... But believe me TSA could care less, not all but a large enough percentage of them... At least our experience will help others in the future and sandy I also have thought t

nancyl

nancyl

Made it home.... Urghhhhhh!

We we are home and thank goodness, it was a pins and needle type of day.... First Dan just wouldnt move any faster....and then he was mad cause I was moving fast to get ready for the taxi, I had as much done as I could but, there is always last min. Things to check.... We get into the taxi, Dan wasn't very pleasant to the driver.. It was a girl ...he is a sexist back seat driver...got to the airport and I am always asked can he walk through the scanner, he can with a cane so my answer is yes, b

nancyl

nancyl

Dans first official fall at home in over year,

Weird that sandys blog would be about balance and Jamie talked about it to, I can't respond to a blog, so I will chime in here... Ironically today Dan fell in the shower.. Didn't slip, just got off balance and try as he and I might we couldn't get it corrected, so he fell back into the corner luckily nothing was there except the wall and floor of the shower.... It took us a while to get him out of the predicament but we did .. He basically had to stand up from a but on floor, knees pulled up as

nancyl

nancyl

Doing ok ..

Well another interesting day, brother an wife went home to CA .... Dan slept till 1 pm which is great .. He had his meds and said goodbyes... And back to sleep... Up at 1 out to a shopping mall I found sorta nice, my daughter had recommended it, didn't find much .. But the layout and accessibility was the best I have ever seen... Go figure in a retirement community LOL... but it was good..for me... Less good for Dan, we found a nice burger joint and Dan just kept sucking the pop down,, and yep

nancyl

nancyl

Still here

We are still here in AZ... it was so strange that guy also known as my husband, who came and replaced my husband appeared here.. I had not seen that guy in along while. He gave me a real reminder of my world last year at this time.. And dealing with his attitude would have been easier at home but of course this wouldn't have happened if we hadn't left home... And I could have dealt with his behavior if he hadn't been holding the ace of sitting in a car ( luckily a big suv) and having to worry

nancyl

nancyl

Huge thanks ... And guess what , I know nothing !!

Ok first and foremost,THANK YOU SARAH...( she talked me out of a tree, almost literally) she reminded me of what I already ( we all already know) know.....and boy it has been a close one today ..I was one half hour from calling the airline and paying 500.00 e5 Extra dollars to fly home today... Yes I have travel insurance .. That is a shell game apparently.... All they guarantee is. It the cost of the flight , it is the cost of the flight you booked.. And of course I had the cheapest days I co

nancyl

nancyl

No need to envy me...

Ok so we made it AZ almost Ll was OK ..we did have a couple hour delay in Bismarck taking off... But we arrived and e drugging seemed ok.... Dan had made it clear he wanted to go to a casino.. So it became a priority for me to get us over to one on Sunday , we ate ..very little as Dan would say... At a local Denny's here... And I called Sarah from this area and made arrangements to meet up... Dan had somehow on the trip over from this are ( San tan valley ) to the Chandler area had a mental brea

nancyl

nancyl

Going to AZ tomorrow

Tiny repreve from this sub zero freezer we are in..... Flying to AZ tomorrow for a week , my daughter and her boyfriend have a house they bought as an investment ... She wishes she could move the house here... Lol it is closet some casinos it is in the queens creek area... I've never ever been to AZ ... NY was my very first flight.. My FSI ( daughters boyfriend) does ok financially or I could not do any of the things I get to do.. But he loves her enough that basically if aprils mom is happy (

nancyl

nancyl

Oh yes it got cold up here !!

Yep Fred the whole state was minus fifty more or less for a few days.... We were all snuggled up... Didn't really go anywhere.. Dan refused therapies because of it and his dentist appt.. No biggie..the one plus when it gets so cold it rarely snows...but it does blow.....it is the reason my daughters more or less new Toyota corolla battery went caput... But I guess Toyota puts in dinky ones to begin with, so no surprise and it was covered by warranty....took dans big north face parka out... And

nancyl

nancyl

Bethys hives and our lives

Obj I made a rhyme !! Took Beth to the allergist doc and learned a few things..... 80% of all hive breakouts will never have a known cause... Hers because of the fast moving non weeping type and sorta whitish in the middle are known to be seen by the docs in clusters...... Many times they follow a viral illness and can continue for weeks or even months... No real explanation but he was pretty sure her case was similar to the case he seen previously... Oh the other thing he doubted it had anythi

nancyl

nancyl

Two in a day ?!!

So my darn little yip,yip ( dog) gets out again.... Yes it is a daily issue..he runs straight to the field and pasture.. And mostly just snoops around the area...but I got me a neighbor who has not enough to do.. He is fourtyish with his own health issues.. Obesity and diabetes.. We are both out shoveling snow.. Now mind you I pay 200.00 in condo fees A month for this service?? But whatever it wasn't much and the exercise is good.. The guy comes over to me and starts yelling at me about the do

nancyl

nancyl

Bad mamma..

My Bethany has been very I'll with some unknown allergy..she gets the most god awful hives and her face ,extremities will swell up...we have been to the ER 3 times .... Because I am not all I should be for the poor kid her boyfriend has had to take her, with me writing a quick. Note to the doc saying ok to treat.... But last night was bad ..and we can't rely treat her assheis scheduled for allergy test tomorro ... When her face swelled I gave her one half a benedryl , and the ER doc gave her Xan

nancyl

nancyl

Ditto on sandys safe gaurding observations

Ditto....my dear ditto......same worries I have, and given the deficits ..mentally.. ,it requires much diligence on our part... Think our lives are gonna get more interesting..........

nancyl

nancyl

reminiscing

I,Ll be quick....I miss my farm, even in this blizzard, I miss my old life, I miss the fact ibhavent been as good and attentive parent as I should have been to Bethany.... My god she had a anaphylactic type reaction that sent her to the ER ...about a month ago and her boyfriend had to take her....i miss my privacy, I miss letting the dogs run, I miss looking at my barn, I miss looking at my gazebo all covered in snow.. I miss my deck..in the summer.....yes I am where I need to be absolutely give

nancyl

nancyl

Almost a blog a day..tee hee...just drove off and left the cane behind ...100 miles away !!

Since I can't respond to blogs not even my own, but can start new ones ..this is my way of replying to other people's blogs.. I can respond to forums...weird, but IPAD related... I am getting used to the apple way of things so even if I invest in a new computer it will probably be a apple....time to get with the technological program I guess......... Any how sting that is so wonderful , about they coming to your house.... It would be a so much better test anyhow given the fact he is in his own e

nancyl

nancyl

Dan is running my but off

Dan has always been a high energy guy, I am finding he is reminding me of a toddler,, I can't keep up with his shenanigans, and honestly I am getting sick of them..... I can be walking by with a load of laundry and all he sees is the door left open.... Mr OCD is really, really getting to me... Tonight there was lint on the bathroom floor , he wanted me to pick it up now, but he also needed to use the bathroom.. So about the time I give up go to pick the darn piece of lint up he steps only foo

nancyl

nancyl

Off the Dilantin and sharper

Well Dan is fully titrated off the Dilantin...and by golly he is " sharper" then I would have expected! In such a short duration...while he is absolutely not fixed ( don't we wish) ..he is more aware and constantly asking questions.. But he speaks in numbers a lot...he doesn't realize he does this and it can be a mixture of numbers and letters.. A three in his mind looks like a E so that gets thrown in a lot..I also had to make two trips to Fargo no particular reason other than he wanted to..and

nancyl

nancyl

Morning sickness, been there done that..reply for Jessica ..lol sting and Sue !!

Since I can't post replies to blogs..this is my reply..... Mind you I have never had a stroke, I have had four great kids all healthy and wild.... And grown now... My oldest I was sick for about four months all day everyday......my son second oldest I was sick for about 2 months really only in the mornings...my third I was sick like three months only in the mornings and my fourth I was sick everyday all day I was pregnant..even threw up the day she was born .... One thing that did help for me sa

nancyl

nancyl

Can't post to sting but here are my thoughts !!!...

Great !!!!! I am so glad you seem to have found someone involved in actual care for ray.... Dan is finally moving Into another stage but last year it sure would have been nice to have someone, any one .. And I did. But not a true specialist.....and after meeting ray and talking with him... I know he is there right under the surface.. And in reality he has more cognition than Dan, which can be depressing for ray.. The ying and yang of those two....I am excited to order that book as well..... Yo

nancyl

nancyl