Well this morning Dan had a seizure, despite all our medication trials and modifications......however, it was not nearly as big of a seizure.?it would still be classified as a grandmal, but on a much less " grand" scale... He still can breathe through this, and that has always been the worst particular mean 3 min seizures. With no breathing not good, this newer improved seizures much less scary ( AS if?) Dan is still upset about it but understands this is progress even if it does not seem like i
Well we are still just moving along......Dan did pretty good all things considered. I am still mad at this I Pad... But I figure I better just learn it... I checked out lap tops and the new "tile system" fails to impress me so I might as well still with this and just decideto " learn it" doggone it any way..I miss a mouse to go back and fix those errors .... But of course it means no more replys to anyone's blogs... So if anyone specifically cares what I think PM me and I can converse that way..
I can't respond to blogs via my I pad. But am wondering can I write one , so this only a test. If this were an actual emergency your local television station would provide you with further instruction...teehee. This is only a test....".................... Well apparently that worked ..I can write blog just not respond to one hmmm not even my own... We are doing well Dan is still titrating down on his Dilantin, had one seizure last Friday nite.... He just grunted three or four times loud and then
well since our move into town we havent had it to bad in terms of ND weather... but today is our first "blizzard" it is cold i guess with the wind chill it will be about 20 below tonight.. and the car is in the garage LOL ( dan likes to keep the garage clean and car free) but snow and such will trump his wishes and he seems ok with it... it has been unseasonable warm as of late and that for dan and i has been nice.... but the snow is here now -- and since it was a dry year here that is OK .. so
dan had a nuerology appt yesterday 11-29-2012 we discussed many, many things-- one thing she couldnt figure out was dans body weight and his lamital doseage and his blood levels they did not correspond --- she said he should easily be at a 9 but he is always at a 3 or so--- i told her dan positivly takes his med - i have dogs and little kids so i make sure every pill is taken care of... she never doubted that anyhow... so she started reviewing his meds and --- his dilantin and his lamicatal are
Dans PT moved Dan from a severe fall risk while walking to a moderate risk today.... I also notice he is so much stronger and steady when walking with the quad cane of course.. the PT said he just seemed more balanced, and i do have to agree.. although factoring in the no antecedent seizure risk takes him right back to a severe fall risk... but all the PT is helping and we will be two years out from stroke date in March -- so yep progress will continue- plugging along slowly, but, at least we ar
well we made it the entire time in NY-- seizure free ( except for one night - dan might have had a small one) but dan had a grand mal seizure yesterday at 10 am.... I had gotten up at 4 am vomiting YUCK--- then the "runs" started,- more YUCK... my 16 yr old stayed home THANK GOD from school to help out- of course i blame her for the bug in the first place. LOL but i got both vomiting and the "runs" at the same time - decide to do a quick shower.... before the routine starts all over again... i
a well - new experiences... travelled all the way to NY and spent time with Sting ( Ray and Colleen) we did lots!! mostly toured the area getting a taste of the different "culture" we have way more in common than not.. and we all treated ourselves to a cruise..and with the hurricane we drove straight through we had an experience..and we went to the Bahamas - Dan and I did get off the ship but stayed in our comfort zone.. of course the actual beach was out due to wheelchair and mobility issues bu
Dan for the most part has been doing pretty well with the move and all -- pretty ok mood and we sorta have settled into some sort of routine... so the ugly depression and mood swings have been at bay.. but yesterday - he was crabby and i should have just left him in bed... he was just a thundercloud sitting and waiting for something/one to make him mad... we were walking out to go to therapy and his leg sorta weakend ( does this on occassion) but he blew up - of course it was my fault his leg go
well today i got my blood transfussion---- i hope to have a little more energy.. i had no one available to watch dan for me so i brought him with.. no one minded ... and he pretty much snuggled down with his own little personal tv in a really nice recliner and slept.. i did a little reading... dan did have to use the bathroom so i unplugged my iv. and we got him into the wheelchair and went down the hall to the bathroom.. all went well. but the new shift ER doc who is familiar with us had a obv
i am up sort early this morning and havent let any of the animals out yet... gotta walk those dogs.... dan gets the biggest kick out of letting them out of the condo he sits right next to the patio door and opens it up and lets them go... which of course is not ok with the city...... but in reality we live right on the border of city limits and we have a pasture a couple hundred feet away from us and a soybean field about 25 feet from us with deer that are routinley out and about teasing the dog
well i'm not sure about the spelling of it nor do i care a whole lot about the spelling.... dan is sick with what i believe is aspiration pnuemonia- he was eating at the time of his last seizure and it seems he did aspirate into his lungs... i worried about that... or he just a has a plain out bad cold.. i dont know cause getting into a Doc is near impossible -- especially one we actually know.. so ironically the ER doc knows him well so i will wait till tonight and take him in then... stupid an
dan and i are more or less settled in our new home... i had fought so hard to stay on the farm and i do miss it so much.... but in reality oh that cold reality this is a much better situation for us.. not something we would have done in a million years if it hadnt been for the stroke but- the stroke as we all know "rules" our lives.. it in our paticular situation dictates where we live, where we go, requires a lot of planning just to run to the grocery store, it dictates relationships,when we sl
well we are here at the new condo--- still have things to do at the farm but the house out there is all cleared out..the farm hasent sold we have had offers a low ball and a young couple but fmha has changed the critera and the out buildings - quonset and barn make the place ineligable for that paticular loan ... sooo makes it a little tougher... but i have a dilema jamestown nd where i live has just been chosen as the site for a billion and a half dollar fertalizer plant ---- so this will chang
well we are here spending our first night at the new place... it is beautiful ---- dan is upset wants to go home..... he understands on many levels what needs to be but also is frusterated with the cost of it all.... me - i figure we havent starved yet and faith has gotten us through this far so i keep reminding myself --- god will take care of us --good or bad ---------- i wish it would have been feasible for me to have built on at the farm, but with each seizure and health crisis dans quality
my question has always been what if dan has a seizure in the tub... well he did today not in bathwater but sitting there doing his compulsive cleaning...had to have ambulance come and do a safe transfer to get him out of the tub...then to the ER and overnight admit.... another day here in our household..nancyl
well the farm hame is not handicap assessible - old ranch style long narrow hallway - you know the type... it is a very nice home i put a lot of money into trying to get it more assessible .. to a piont it worked and as the PT called it minimally assessible.. well minimal at dans age does not cut it-- at 53 i want him to no be limited by structure... so with the help of my SIL i have managed to purchase a condo -- one level about as assessible as possible... this of course is causing a big chan
dan has lost enough weight that the docs are getting "concerned" ------ i was hoping at some point dans issue of not eating and drinking would resolve itself..Guess not... so the nuerologist is recommending it and dan consented to it for her..so now surgical consult still have to call and get that set up..the nuerologist is hoping this will help with the incredible pain he experiences in his stomach - she feels like if could get adequate hyderation via g tube it will start to resolve..of course
well i finally got my gift of acceptance of dans stroke---- others have talked in the past about how when you dream of your loved one with their new health condition - you have accepted what is...... i dreamt of dan 2 nights in a row.. night one he was walking with me but was very frail and small - almost child like in stature.. i was assisting him walking..... night two i dreamt the same dream but dan was of normal ( the new normal) stature and walking with me with assistance.... kind of nice--
dan has been doing pretty well as of late - mood ok , at least hasent carried the depression for days at a time.. Untill 2 days ago -- he just cant seem to understand the trouble he brings unto himself when he quits eating and drinking ( especially the drinking).. he is shakey and tired and crabby but is not able to see why.. I talk to him till i am blue in the face--- and i mean talk, not preach... but this is what he is deciding again.. And i know where it will land him/us---- back at the hosp
well after having so many "tough" times with Dan - i decided it was time to look into a condo--- completley handicap assessible with a sticker tag of 180,000. grand-- here in ND that huge.... anyhow i didnt get the place and i actually bid 500.00 higher than asking.. but i was not a cash sale...... so no go for me..... the other people bid a little lower with cash --- so the boom in ND as predicted is hitting home... im gonna sound very pregidous here but i have only seen the underbelly of out o
for one day i wish "others" ( defined as former friends, family ect.) had to do what we do everyday..not only as the caregiver but the person who had a stroke.. if they knew how mean it is to see you there and walk the other way because it is to hard for "them" to say hello. if they knew how hard it was to go into the opposit sex'es bathroom to assit your loved one.. if they knew what it was like to constanly walk and only be seeing the world as hurdels like the lip is to high for the wheel chai
i wrote this last night and it is gone today - so i must have messed up something... dan the king of refusing to eat drink and now take his meds has managed to get himself into the hospital... the direction it looks like this is taking is-- a G tube it will solve ( i hope) the hyderation,nutritional and medicine issues.. But is it the right thing to do?? I mean for sure it is a ethical decision or a question of ethics and morals... do i his spouse have the right to impose a procedure on him just
well dan is now refusing his meds-- and he will not drink his supplements or eat -- so i'm going to have to make a decision... do i have a g- tube put in? it would solve the hyderation,nutrition and medication problem.. but it takes away more control from dan who is already with none..is it right to impose a medical procedure on him cause i can ( i am his legal gaurdian with medical) so yes i can make it happen ---- but is is right?? It is a big dilema... a moral dilema... remember although d
dan has been progressing latley - but now he has taken to his bed and has decided not to get up.. he will not give an explanation.. has indicated he plans to stay there for 2 days --- problem this is day three..i am so frusterated... and yes we do things when he is up and moving- but not so much that he should feel the need to rest for days at a time... and he is always in control of when we go home ,if he wants to leave ect.... at this point its kinda like if laying in bed and sleeping/watching
